Search
Search
About
Log in
Join
Experiences with
Aminolevulinic Acid
Posts
Communities
4,118 public posts
Filter results
diagnosed with PMR
quick introduction , am early 50’s contacted GP after 9months or so of increasing all over pain and stiffness especially in the morning , extreme fatigue, I asked if I could consider HRT as thought maybe it could be menopause symptoms , had been taking naproxen for menstrual pain and migraines for about
quick introduction , am early 50’s contacted GP after 9months or so of increasing all over pain and stiffness especially in the morning , extreme fatigue, I asked if I could consider HRT as thought maybe it could be menopause symptoms , had been taking naproxen for menstrual pain and migraines for about
Emilydarby
in
PMRGCAuk
8 months ago
GCA. LVV
Hi Everyone,This is my first post,apologies if it’s a little long.I am a 74 year old male in UK.My journey started in March 2020 when my GP diagnosed GGA with PMR.I was started on 40mg prednisolone immediately and put on fast track to see a rheumatologist at the local hospital.I was seen the following
Hi Everyone,This is my first post,apologies if it’s a little long.I am a 74 year old male in UK.My journey started in March 2020 when my GP diagnosed GGA with PMR.I was started on 40mg prednisolone immediately and put on fast track to see a rheumatologist at the local hospital.I was seen the following
Oxfordboy2
in
PMRGCAuk
8 months ago
Osteoporosis
I tried once weekly 70 mg Alendronate. Was on it 2 weeks and suffered severe migraines to the point I had presssure in my eyeballs. Anyone had similar experience ?
I tried once weekly 70 mg Alendronate. Was on it 2 weeks and suffered severe migraines to the point I had presssure in my eyeballs. Anyone had similar experience ?
Coffeelover57
in
Osteoporosis Support
8 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Update 7.7
It has been a while since my last update. Overall, things are going well. I feel better than ever, other than my knees. Time for another hyaluronic acid injection to lubricate the knees. I am going to try Durolane this time. It is a single injection instead of a series of three. In other news
It has been a while since my last update. Overall, things are going well. I feel better than ever, other than my knees. Time for another hyaluronic acid injection to lubricate the knees. I am going to try Durolane this time. It is a single injection instead of a series of three. In other news
hunter5582
in
MPN Voice
8 months ago
Gastric side effect of PMR medications
Hello, I am relatively newly diagnosed with PMR, in July 2023, and just starting my tapering journey. I started on 20mg Prednisolone (now just reached 10mg), plus I take 15mg Lansoprazole and once a week 70mg Alendronic Acid. I started well, feeling great with the loss of my joint pain, but after
Hello, I am relatively newly diagnosed with PMR, in July 2023, and just starting my tapering journey. I started on 20mg Prednisolone (now just reached 10mg), plus I take 15mg Lansoprazole and once a week 70mg Alendronic Acid. I started well, feeling great with the loss of my joint pain, but after
Suobe
in
PMRGCAuk
8 months ago
Smart Protein and amino acids
I have had an under active thyroid for many years, I’ve recently learns about T4 and T3 tests. All mine have come back as “normal”. I have read about amino acids which can help you, I eat healthy, exercise 3 times a week and I’m no spring chicken. I never loose weight and when attending medial appointments
I have had an under active thyroid for many years, I’ve recently learns about T4 and T3 tests. All mine have come back as “normal”. I have read about amino acids which can help you, I eat healthy, exercise 3 times a week and I’m no spring chicken. I never loose weight and when attending medial appointments
Spud68
in
Thyroid UK
14 days ago
strontium
I’ve recently finished 2 year course of Teriparatide and have a hospital appointment shortly to decide next treatment. I have discussed possibility of Stontium with doctor. Does anyone have experience of taking this? Are some kinds of Strontium better than others and will I have a choice as to what
I’ve recently finished 2 year course of Teriparatide and have a hospital appointment shortly to decide next treatment. I have discussed possibility of Stontium with doctor. Does anyone have experience of taking this? Are some kinds of Strontium better than others and will I have a choice as to what
Snowybear
in
Bone Health and Osteoporosis UK
8 months ago
How big are AA tablets
I am considering trying weekly alendronic acid tablets but am worried they will be too big for me to swallow since I have dysphagia (difficulty swallowing). Please, what shape and how long/wide are the tablets people take? Note that there are good reasons why I should not have infusions. Meds involving
I am considering trying weekly alendronic acid tablets but am worried they will be too big for me to swallow since I have dysphagia (difficulty swallowing). Please, what shape and how long/wide are the tablets people take? Note that there are good reasons why I should not have infusions. Meds involving
Jubux
in
Bone Health and Osteoporosis UK
8 months ago
Methionine restricted diet for recurring PSA and positive PMSA pet scan w/ 1 bone met
quick to the point. PSMA pet showed 1 L2 small met and some lymph activity. My PSA went from 2.01 to 2.9 in one month. after doing some research on diets and supplements . I found that the keto diet is extremely high in the amino acid methionine and I made it worse trying to reduce my blood pressure
quick to the point. PSMA pet showed 1 L2 small met and some lymph activity. My PSA went from 2.01 to 2.9 in one month. after doing some research on diets and supplements . I found that the keto diet is extremely high in the amino acid methionine and I made it worse trying to reduce my blood pressure
Eieio
in
Advanced Prostate Cancer
22 days ago
Has anyone done an Organic Acid Test(OAT)?
I’ve been doing a lot of testing lately to determine what I should be eating or supplementing. The OAT will test methylation, b vitamins, oxalates, Mitochondria, amino acids and more. It also tests some neurotransmitters related to dopamine but understanding how I can use that information is above my
I’ve been doing a lot of testing lately to determine what I should be eating or supplementing. The OAT will test methylation, b vitamins, oxalates, Mitochondria, amino acids and more. It also tests some neurotransmitters related to dopamine but understanding how I can use that information is above my
Debgiffen
in
Cure Parkinson's
24 days ago
Amino acid complex, is it worth trying?
I have been seeing more and more about amino acids and the possible benefits for those with hypothyroidism. Their importance for conversion, also their benefits regarding liver health. I'm also type2 diabetic, it seems there may be benefits there too. Have any of you looked into this? If so are there
I have been seeing more and more about amino acids and the possible benefits for those with hypothyroidism. Their importance for conversion, also their benefits regarding liver health. I'm also type2 diabetic, it seems there may be benefits there too. Have any of you looked into this? If so are there
Jones1969
in
Thyroid UK
1 month ago
Anyone with alendronate side effects?
I was just diagnosed with osteoporosis in July of this year. My physician immediately started me on alendronate. Approximately two months into treatment I began having severe shoulder joint and muscle pain that is making it too painful to do most exercise I had begun. My physician thinks it is unrelated
I was just diagnosed with osteoporosis in July of this year. My physician immediately started me on alendronate. Approximately two months into treatment I began having severe shoulder joint and muscle pain that is making it too painful to do most exercise I had begun. My physician thinks it is unrelated
ohsuzyq
in
Osteoporosis Support
8 months ago
Anyone taking Anticoagulants for AF, together with Alendronic Acid for Osteoporosis?
I've got AF and taking Edoxaban. I'm also taking Atorvastatin, Ramipril, Bisoprolol and Levothyroxine.I've just been told that I have Osteoporosis, which is a side effect of taking Letrozole for 5 years for breast cancer. Alendronic Acid can help osteoporosis, together with taking calcium and vitamin
I've got AF and taking Edoxaban. I'm also taking Atorvastatin, Ramipril, Bisoprolol and Levothyroxine.I've just been told that I have Osteoporosis, which is a side effect of taking Letrozole for 5 years for breast cancer. Alendronic Acid can help osteoporosis, together with taking calcium and vitamin
MrsSuzuki
in
AF Association
8 months ago
t12 and calcium supplement
I have got severe osteoporosis and I am wandering if I would be better off with a calcium supplement, I tried adcal-d3 after my zoledronic acid infusion but I had to stop because it gave me constipation, I don't want to be messing about measuring out calcium and I don't know if I am absorbing calcium
I have got severe osteoporosis and I am wandering if I would be better off with a calcium supplement, I tried adcal-d3 after my zoledronic acid infusion but I had to stop because it gave me constipation, I don't want to be messing about measuring out calcium and I don't know if I am absorbing calcium
Radars
in
Bone Health and Osteoporosis UK
8 months ago
Sunshiney days.
Should vit D supplements be adjusted when we are out and about in sunshine? Are amino acids worth taking as supplements? All stuff I come across in random readings. Thanks.
Should vit D supplements be adjusted when we are out and about in sunshine? Are amino acids worth taking as supplements? All stuff I come across in random readings. Thanks.
Calceolaria
in
Thyroid UK
2 months ago
Different Treatment Advice from Endocrinologist and Rheumatologist
Hello, I'm in my thirties and have osteoporosis. Earlier this year I saw an endocrinologist who advised I start HRT (my hormone levels are fine) and I have just seen a rheumatologist who advised I take alendronate. Neither can advise on the other. I wondered whether people had experience with either
Hello, I'm in my thirties and have osteoporosis. Earlier this year I saw an endocrinologist who advised I start HRT (my hormone levels are fine) and I have just seen a rheumatologist who advised I take alendronate. Neither can advise on the other. I wondered whether people had experience with either
Houseelf
in
Bone Health and Osteoporosis UK
8 months ago
Suggestions on Supplements
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
JayPwP
in
Cure Parkinson's
3 months ago
Is anyone here familiar with metabolomic analysis?
I've heard about metabolomics only recently while listening to a Dr Berg podcast. In short, if I understood correctly, it differs from regular blood tests by looking for the concentration of things (like amino acids, minerals, polyphenol, etc...) within your cells rather than the concentration in your
I've heard about metabolomics only recently while listening to a Dr Berg podcast. In short, if I understood correctly, it differs from regular blood tests by looking for the concentration of things (like amino acids, minerals, polyphenol, etc...) within your cells rather than the concentration in your
Mascouche
in
Advanced Prostate Cancer
2 months ago
foods to eat for longevity
https://theenergyblueprint.com/foods-you-need-to-eat-for-longevity/?inf_contact_key=77e91c5d37fb88ad538161bb2cf2cb6ecc0558ed5d4c28cbfab114022b1ec50d Energy blueprint. Foods & Supplements You NEED TO EAT For Longevity and Energy | Dr. Michael Murray. This was really interesting. (Transcript has a few
https://theenergyblueprint.com/foods-you-need-to-eat-for-longevity/?inf_contact_key=77e91c5d37fb88ad538161bb2cf2cb6ecc0558ed5d4c28cbfab114022b1ec50d Energy blueprint. Foods & Supplements You NEED TO EAT For Longevity and Energy | Dr. Michael Murray. This was really interesting. (Transcript has a few
LAJ12345
in
Cure Parkinson's
8 months ago
Lorenzo's Oil Revisited
Chances are you don't take it. I investigated it thoroughly and even had a decent source secured. I only opted out when I was told it would nullify my medical insurance. Depending on whatever scientific report you read it either doesn't work, or stops/reverses progression if you start taking it before
Chances are you don't take it. I investigated it thoroughly and even had a decent source secured. I only opted out when I was told it would nullify my medical insurance. Depending on whatever scientific report you read it either doesn't work, or stops/reverses progression if you start taking it before
monkeybus
in
AMN EASIER
8 months ago
1
...
8
9
10
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
PMRGCAuk
602 results
Endometriosis UK
501 results
Thyroid UK
398 results
View top 10 communities
Sort by
Most Relevant
Newest