Experiences with Aminolevulinic acid | HealthUnlocked

2,586 public posts

Advice please?

Hi, I was told I had osteoporosis in May 2018. My scores were: Femur neck: T score -1.1, Z score -0.1 Spine: T score -2.5 Z score -1.4 Looking at the charts, my interpretation is that my hip is just in the osteopenia range and my spine just in the osteoporosis range. If it hadn't been that I startedHi, I was told I had osteoporosis in May 2018. My scores were: Femur neck: T score -1.1, Z score -0.1 Spine: T score -2.5 Z score -1.4 Looking at the charts, my interpretation is that my hip is just in the osteopenia range and my spine just in the osteoporosis range. If it hadn't been that I started

Swallow17in Bone Health

Newbie!

Hi everyone, I’ve been using this app for a few other groups but new to this one! I’ve always had horrific periods, I remember watching embarrassing bodies when it first started and someone on there had endo. I went to the GP and she was so lovely and understanding, she agreed my symptoms sounded likeHi everyone, I’ve been using this app for a few other groups but new to this one! I’ve always had horrific periods, I remember watching embarrassing bodies when it first started and someone on there had endo. I went to the GP and she was so lovely and understanding, she agreed my symptoms sounded like

Bloop45in Endometriosis UK

PSA and Alk. Phosphatase

My father is getting monthly zoledronic acid inj. since Nov 2019 after his PSA began to rise.However ,this month his psa lowered from 23(last month) to 21 while alk. Phosphatase rose from 130(last month) to 179. What does this signify? He is also taking abiraterone 250mg 4 pills a day along with prednisoneMy father is getting monthly zoledronic acid inj. since Nov 2019 after his PSA began to rise.However ,this month his psa lowered from 23(last month) to 21 while alk. Phosphatase rose from 130(last month) to 179. What does this signify? He is also taking abiraterone 250mg 4 pills a day along with prednisone

Vsahayin Advanced Prostate Cancer

Wit's end! Switch Levo brands, try NDT again, be patient with different dosage?

Dear wise and helpful friends, On 13 Dec. my labs were the best ever and on 31 Jan. they changed again, with TSH too high etc. I’m putting them next to each other: TSH: 4.80 -- range is 0.20 – 5.00 -- then TSH : 5.99 - FT3: 4.10 – range is 1.8 – 4,5 -- then FT3: 5,12 FT4: 10.01 – range is 7.0Dear wise and helpful friends, On 13 Dec. my labs were the best ever and on 31 Jan. they changed again, with TSH too high etc. I’m putting them next to each other: TSH: 4.80 -- range is 0.20 – 5.00 -- then TSH : 5.99 - FT3: 4.10 – range is 1.8 – 4,5 -- then FT3: 5,12 FT4: 10.01 – range is 7.0

Koolain Thyroid UK

statins and genetic high cholesterol

Sorry if this is long I will be 66 this month and have been on thyroid meds since age 18 on doses varying from 100-150 during which I had 4 healthy pregnancies and under went treatment for cancer in my 40’s Do to the cancer I had a pelvic exenteration ( radical hysterectomy with colostomy) I haveSorry if this is long I will be 66 this month and have been on thyroid meds since age 18 on doses varying from 100-150 during which I had 4 healthy pregnancies and under went treatment for cancer in my 40’s Do to the cancer I had a pelvic exenteration ( radical hysterectomy with colostomy) I have

debbiegrecoin Cholesterol Support

stopping levo for a time before test and statins?

Sorry if this is long I will be 66 this month and have been on thyroid meds since age 18 on doses varying from 100-150 during which I had 4 healthy pregnancies and under went treatment for cancer in my 40’s Do to the cancer I had a pelvic exenteration ( radical hysterectomy with colostomy) I haveSorry if this is long I will be 66 this month and have been on thyroid meds since age 18 on doses varying from 100-150 during which I had 4 healthy pregnancies and under went treatment for cancer in my 40’s Do to the cancer I had a pelvic exenteration ( radical hysterectomy with colostomy) I have

debbiegrecoin Thyroid UK

Aclasta infusion.

This is my 4th day following zolendronic acid infusion and I thought I would share how this has been for me. I was very resistant to having further treatment having stopped taking alendronic acid due to side effects. However, after recent DEXA scan showed fracture in T9 and after much discussion IThis is my 4th day following zolendronic acid infusion and I thought I would share how this has been for me. I was very resistant to having further treatment having stopped taking alendronic acid due to side effects. However, after recent DEXA scan showed fracture in T9 and after much discussion I

Cook1703in Bone Health

Pain Relief

Does anyone know of any alternative pain relief options for endometriosis / adenomyosis? I’ve struggled with endometriosis for the last 14 years but I’m currently in the middle of a big flare up and have been off work since October. I had a laparoscopy 2 weeks ago but unfortunately the endometriosisDoes anyone know of any alternative pain relief options for endometriosis / adenomyosis? I’ve struggled with endometriosis for the last 14 years but I’m currently in the middle of a big flare up and have been off work since October. I had a laparoscopy 2 weeks ago but unfortunately the endometriosis

Lauramcg1in Adenomyosis Advice Association

Pain Relief

Does anyone know of any alternative pain relief options for endometriosis? I’ve struggled with endometriosis for the last 14 years but I’m currently in the middle of a big flare up and have been off work since October. I had a laparoscopy 2 weeks ago but unfortunately the endometriosis tissue has nowDoes anyone know of any alternative pain relief options for endometriosis? I’ve struggled with endometriosis for the last 14 years but I’m currently in the middle of a big flare up and have been off work since October. I had a laparoscopy 2 weeks ago but unfortunately the endometriosis tissue has now

Lauramcg1in Endometriosis UK

Antioxidants

I’m aware of the situation with antioxidants and cancer, in particular with chemo. I was told that Alpha Lipoic Acid 600 mg daily and B-6 50 mg daily can help with neuropathy from Taxotere. I’m curious as to hear from others on this. Related: what about antioxidants in conjunction with immunotherapyI’m aware of the situation with antioxidants and cancer, in particular with chemo. I was told that Alpha Lipoic Acid 600 mg daily and B-6 50 mg daily can help with neuropathy from Taxotere. I’m curious as to hear from others on this. Related: what about antioxidants in conjunction with immunotherapy

Chugachin Advanced Prostate Cancer

Doctor wants me to start Alendronic Acid.

Hi all, had a bad couple of weeks, started when I tried to reduce my Pred for the first time down to 12.5mg from 15mg, after the first week I was feeling rotten by the 2nd week back to where I was last November when diagnosed. Phoned doctors who put Pred back up to 15mg and ordered bloods. 2 days laterHi all, had a bad couple of weeks, started when I tried to reduce my Pred for the first time down to 12.5mg from 15mg, after the first week I was feeling rotten by the 2nd week back to where I was last November when diagnosed. Phoned doctors who put Pred back up to 15mg and ordered bloods. 2 days later

Rebel21in PMRGCAuk

Zoledronic acid

Just been told I have to have another infusion . My first one was in Oct 2019 . Told my bone markers are still low. Anyone else experienced this as I thought these infusions were yearly for 3 years .?Just been told I have to have another infusion . My first one was in Oct 2019 . Told my bone markers are still low. Anyone else experienced this as I thought these infusions were yearly for 3 years .?

AmandaTFin Bone Health

SO ANGRY: RESULTS GIVEN VIA EMAIL...REALLY!!??

So angry and I decided to write my frustrations out and seek help from all of you. My husband sees Dr Oh at Mount Sinai. Did bone scan and CT scan friday. 5 docetaxel treatments to date but he had a PSA increase past 2x's (.5 and again 1.5.) Dr Oh suggested adding carboplatin for number 6. I askedSo angry and I decided to write my frustrations out and seek help from all of you. My husband sees Dr Oh at Mount Sinai. Did bone scan and CT scan friday. 5 docetaxel treatments to date but he had a PSA increase past 2x's (.5 and again 1.5.) Dr Oh suggested adding carboplatin for number 6. I asked

clocin Advanced Prostate Cancer

Alpha Lipoic Acid: MD Anderson

https://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=1&ved=2ahUKEwi3q8WQhrTnAhVYl3IEHfdGAJ4QFjAAegQIAhAB&url=https%3A%2F%2Fclinicaltrials.gov%2Fct2%2Fshow%2FNCT00112996&usg=AOvVaw1LnVCVvFhLM8ywgNTE8Dh3https://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=1&ved=2ahUKEwi3q8WQhrTnAhVYl3IEHfdGAJ4QFjAAegQIAhAB&url=https%3A%2F%2Fclinicaltrials.gov%2Fct2%2Fshow%2FNCT00112996&usg=AOvVaw1LnVCVvFhLM8ywgNTE8Dh3

KevinCLLITPin CLL Support

Say no to supplements

I have seen many in the forum advocating milk thistle,NAC,Alpha lipoic acid etc to reverse or cure their liver disease .But in my view these all may cause further damage and still there are no proper evidence of using these herbs and supplements .I n my view Diet consisting of fish ,lean chicken, milletsI have seen many in the forum advocating milk thistle,NAC,Alpha lipoic acid etc to reverse or cure their liver disease .But in my view these all may cause further damage and still there are no proper evidence of using these herbs and supplements .I n my view Diet consisting of fish ,lean chicken, millets

kuda123in British Liver Trust

Blooming bleeding.

Hi I would appreciate if others could share how they deal with regular lung bleeds. This morning it occurred again, around 10ml coughed up, but I did swallow some. It seems to be every ten days or so and lasts a few days. The most was 60ml or so. Consultants say it’s just part of bronchiectasis for meHi I would appreciate if others could share how they deal with regular lung bleeds. This morning it occurred again, around 10ml coughed up, but I did swallow some. It seems to be every ten days or so and lasts a few days. The most was 60ml or so. Consultants say it’s just part of bronchiectasis for me

astragalin Bronchiectasis Support

Gca

Hi , I've been on prednisolone for suspected GCA ,started on 40mg .managed to taper down to 10mg ,although its caused my blood sugar to be higher & now have to take metformin . Anyway was happy got down to 10mg ,but pain is back ,saw rheumatologist today who says I have to go right back to 40mg againHi , I've been on prednisolone for suspected GCA ,started on 40mg .managed to taper down to 10mg ,although its caused my blood sugar to be higher & now have to take metformin . Anyway was happy got down to 10mg ,but pain is back ,saw rheumatologist today who says I have to go right back to 40mg again

Stradbroke13in PMRGCAuk

Alendronic acid, Hydroxychloroquine and Prednisolone

Hi to all and hope the new year (freezing January) isn't doing too much damage to you. Last year I wrote about the horrors of my spontaneous vertebral fractures. Sorry about the original spelling mistake in that post. My tablet refused to put the r in vertebral! Since then I was doing well. SlippedHi to all and hope the new year (freezing January) isn't doing too much damage to you. Last year I wrote about the horrors of my spontaneous vertebral fractures. Sorry about the original spelling mistake in that post. My tablet refused to put the r in vertebral! Since then I was doing well. Slipped

catno1in Bone Health

Alendronic Acid

Good morning! I have been taking Alendronic Acid once a week for the past 8 weeks. Last night 1 side of a tooth crown broke off (it has been cracked for the past year). In the expectation that I will get to see the dentist next week, do you think I should NOT take the AA dose due tomorrow ... I doGood morning! I have been taking Alendronic Acid once a week for the past 8 weeks. Last night 1 side of a tooth crown broke off (it has been cracked for the past year). In the expectation that I will get to see the dentist next week, do you think I should NOT take the AA dose due tomorrow ... I do

kalimchein PMRGCAuk

The Miracle of Alpha Lipoic Acid

If you do not know about this treatment for any type of liver issue then you must know more! Anyone who would like more information on it's effectiveness in regenerating the liver and other organs please email me. I have done mucho research and can help you. -------- Edited by HealthUnlockedIf you do not know about this treatment for any type of liver issue then you must know more! Anyone who would like more information on it's effectiveness in regenerating the liver and other organs please email me. I have done mucho research and can help you. -------- Edited by HealthUnlocked

DoctorB2020in Liver4Life