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Experiences with
Amyotrophic lateral sclerosis (ALS)
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Twitching knees
Because i was worried I had
ALS
. He said i strained a muscle. About a week after that it seemed like my knees would twitch and the pain was still hurting in my knee and the cracked and popped when doing squats or just bending my knees.
Because i was worried I had
ALS
. He said i strained a muscle. About a week after that it seemed like my knees would twitch and the pain was still hurting in my knee and the cracked and popped when doing squats or just bending my knees.
CATWOMAN74
in
Anxiety and Depression Support
2 years ago
Trehalose : sugar replacement that induces autophagy / reduces protein aggregation (according to what I’ve read)
https://www.nature.com/articles/s41419-018-0749-9 Validating my hope of it being beneficial, it’s being trialed for
ALS
used intravenously.
https://www.nature.com/articles/s41419-018-0749-9 Validating my hope of it being beneficial, it’s being trialed for
ALS
used intravenously.
Hidden
in
Cure Parkinson's
2 years ago
List of blood panel Abbreviations.
I hope this list helps others read their blood work panel.. I'm not sure if they are the same in the UK. A1A Alpha-1 Antitrypsin A1c Hemoglobin A1c AB Antibody ABG Arterial Blood Gas ABRH ABO Group and Rh Type ABT Antibody Titer ACA Anti-Cardiolipin Antibodies ACE Angiotensin Converting Enzyme
I hope this list helps others read their blood work panel.. I'm not sure if they are the same in the UK. A1A Alpha-1 Antitrypsin A1c Hemoglobin A1c AB Antibody ABG Arterial Blood Gas ABRH ABO Group and Rh Type ABT Antibody Titer ACA Anti-Cardiolipin Antibodies ACE Angiotensin Converting Enzyme
EllaNore
in
Pernicious Anaemia Society
2 years ago
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Ibrance side effects
Ibrance 75 mg side effects nervous about starting Glad to have found this group it has helped - I had stage two breast cancer 3 years ago alsnjad am axilliary dissection 24 lymph nodes removed- been painful
als
nerve pain for last 3 years - had regular bone scans and this last one showed metastasis
Ibrance 75 mg side effects nervous about starting Glad to have found this group it has helped - I had stage two breast cancer 3 years ago alsnjad am axilliary dissection 24 lymph nodes removed- been painful
als
nerve pain for last 3 years - had regular bone scans and this last one showed metastasis
Tantalon7211
in
SHARE Metastatic Breast Cancer
2 years ago
Test Result Comments Welcomed Pre Endo Appt
Dear Unlockers, I’ve got a telephone consultation with my endo this Friday and am writing to ask for your views on my test results in advance. I had a lot of blood work done in April in preparation for an endo appt which was rearranged, so I had to repeat the thyroid panel this month. There was very
Dear Unlockers, I’ve got a telephone consultation with my endo this Friday and am writing to ask for your views on my test results in advance. I had a lot of blood work done in April in preparation for an endo appt which was rearranged, so I had to repeat the thyroid panel this month. There was very
PDS1
in
Thyroid UK
2 years ago
Dopaminergic deficit in amyotrophic lateral sclerosis assessed with SPECT
Studies have provided evidence for an involvement of the dopaminergic system in
ALS
. The purpose of this study was to investigate whether patients with
ALS
show presynaptic nigrostriatal dopaminergic deficits detectable by single photon emission computed tomography (SPECT).
Studies have provided evidence for an involvement of the dopaminergic system in
ALS
. The purpose of this study was to investigate whether patients with
ALS
show presynaptic nigrostriatal dopaminergic deficits detectable by single photon emission computed tomography (SPECT).
SilentEchoes
in
Cure Parkinson's
2 years ago
Could there be a link between the enteric neurons, gut microbiome and ALS?
Sun said she heard about U.S. military veterans who suffered from GI issues while they were serving overseas and later diagnosed with
ALS
. Several research studies have shown veterans have an elevated risk of developing
ALS
.
Sun said she heard about U.S. military veterans who suffered from GI issues while they were serving overseas and later diagnosed with
ALS
. Several research studies have shown veterans have an elevated risk of developing
ALS
.
SilentEchoes
in
Cure Parkinson's
2 years ago
Side Effects of Niraparib (ZEJULA)?
While I await the results of my genetic test to see if I have the DNA repair defect to allow me to participate in the AMPLITUDE clinical trial, I have been looking at the SEs for Niraparib and they don’t look very pleasant, so I wondered if anyone has used it and has personal experience to share?
While I await the results of my genetic test to see if I have the DNA repair defect to allow me to participate in the AMPLITUDE clinical trial, I have been looking at the SEs for Niraparib and they don’t look very pleasant, so I wondered if anyone has used it and has personal experience to share?
Benkaymel
in
Advanced Prostate Cancer
2 years ago
Fasciculations ? Muscle twitching that is muscles you didn’t even know you have? Sensation of internal twitches?
I have symptoms of PD but I also have fasciculations like
ALS
. Please, I’m scared, please tell me the truth but please take in to consideration that I’m very scared. My Dad has PD. My maternal uncle had
ALS
. I’ve avoided genetic testing due to anxiety. I think I might have both PD and
ALS
.
I have symptoms of PD but I also have fasciculations like
ALS
. Please, I’m scared, please tell me the truth but please take in to consideration that I’m very scared. My Dad has PD. My maternal uncle had
ALS
. I’ve avoided genetic testing due to anxiety. I think I might have both PD and
ALS
.
Hidden
in
Cure Parkinson's
2 years ago
NAD+, NMN, SARM1 and neuroprotection.
These mechanistic insights may enable axon-protective therapies for a variety of human neurodegenerative diseases including peripheral neuropathy, traumatic brain injury and potentially
ALS
and Parkinson's. 4 Axonal integrity is maintained by the opposing actions of the survival factors NMNAT2 and
These mechanistic insights may enable axon-protective therapies for a variety of human neurodegenerative diseases including peripheral neuropathy, traumatic brain injury and potentially
ALS
and Parkinson's. 4 Axonal integrity is maintained by the opposing actions of the survival factors NMNAT2 and
House2
in
Cure Parkinson's
1 year ago
Ldn & fibro
It doesn’t just help for fibro by the way too, reports for cancer,
als
, ms and other illnesses have been reported so it’s worth trying at least best of luck x
It doesn’t just help for fibro by the way too, reports for cancer,
als
, ms and other illnesses have been reported so it’s worth trying at least best of luck x
twinklwitch
in
Fibromyalgia Action UK
2 years ago
MPN / CALR treatment
https://www.meduniwien.ac.at/web/en/ueber-uns/news/detailseite/2020/news-im-dezember-2020/haematoxylin-
als
-killer-calr-mutierter-krebszellen/ Have a good day
https://www.meduniwien.ac.at/web/en/ueber-uns/news/detailseite/2020/news-im-dezember-2020/haematoxylin-
als
-killer-calr-mutierter-krebszellen/ Have a good day
dbus1417
in
MPN Voice
2 years ago
Safety and Efficacy of TUDCA as add-on Treatment in Patients Affected by ALS Trial
Safety and Efficacy of TUDCA as add-on Treatment in Patients Affected by
ALS
Trial https://clinicaltrials.gov/ct2/show/NCT03800524 They are doing 1 gram, twice a day.
Safety and Efficacy of TUDCA as add-on Treatment in Patients Affected by
ALS
Trial https://clinicaltrials.gov/ct2/show/NCT03800524 They are doing 1 gram, twice a day.
Bolt_Upright
in
Cure Parkinson's
2 years ago
I am scared
I have strokes to look fwd 2
ALS
2 look fwd to hd to look fwd to and m.s help
I have strokes to look fwd 2
ALS
2 look fwd to hd to look fwd to and m.s help
Cbotishere
in
Men's Health Forum
2 years ago
anyone advise what these results mean?
i had a rather delayed diabetes checkup where they did a full blood work everything came back ok except for liver, doctors want to see me in a month so currently getting stressed (hopefully over nothing) my results are below Liver function tests Serum alanine aminotransferase level 71 u/L
i had a rather delayed diabetes checkup where they did a full blood work everything came back ok except for liver, doctors want to see me in a month so currently getting stressed (hopefully over nothing) my results are below Liver function tests Serum alanine aminotransferase level 71 u/L
Paw1983
in
British Liver Trust
2 years ago
Parkinson’s , increased risk for ALS. Expand our research to what benefits ALS because it will benefit PD as well.
Based on sound research, I here posit that PWP are at a considerably greater risk of developing
ALS
. This is true for both “sporadic” and genetic PD. Furthermore, whether one’s PD develops in to
ALS
or not, thus far in my research, what benefits a person with
ALS
will also benefit a PWP.
Based on sound research, I here posit that PWP are at a considerably greater risk of developing
ALS
. This is true for both “sporadic” and genetic PD. Furthermore, whether one’s PD develops in to
ALS
or not, thus far in my research, what benefits a person with
ALS
will also benefit a PWP.
Hidden
in
Cure Parkinson's
2 years ago
Autoimmune Autonomic Ganglionopathy Associated with Voltage-Gated Potassium Channel Antibodies
The literature I found said dysautonomia wasn't a feature of
ALS
. When dysautonomia co-occurs with motor neuron disease it is called
ALS
plus syndrome aka parkinsonism. I came across a recent article about Clive Svendsen, PhD at Cedars-Sinai who said, "We don't think
ALS
is one disease."
The literature I found said dysautonomia wasn't a feature of
ALS
. When dysautonomia co-occurs with motor neuron disease it is called
ALS
plus syndrome aka parkinsonism. I came across a recent article about Clive Svendsen, PhD at Cedars-Sinai who said, "We don't think
ALS
is one disease."
SilentEchoes
in
Cure Parkinson's
2 years ago
What is AMX0035, and Why Is It Important for All of Us?
Phase II of the study of AMX0035 and
ALS
has produced some excellent results. Because
ALS
has no known cure, the drug is going to be released for people to use now.
Phase II of the study of AMX0035 and
ALS
has produced some excellent results. Because
ALS
has no known cure, the drug is going to be released for people to use now.
SilentEchoes
in
Cure Parkinson's
2 years ago
interpreting my blood test results
Hello again I posted here about a month ago, and received really useful information about what blood tests for hypothyroidism should reveal. I have now had the results of the tests, which are quite lengthy, but do not seem to have any information on T3 and T4 levels. Please could some wise person comment
Hello again I posted here about a month ago, and received really useful information about what blood tests for hypothyroidism should reveal. I have now had the results of the tests, which are quite lengthy, but do not seem to have any information on T3 and T4 levels. Please could some wise person comment
humlies
in
Thyroid UK
2 years ago
Optimum diet for PD (spoiler alert, it’s nothing like the SAD diet and sugar is killing you.).
Here I will be adding some information about diet that is relevant to all people who want to salvage their brains whether their problem be PD, ALZ,
ALS
or any other (yes, other) autoimmune disease.
Here I will be adding some information about diet that is relevant to all people who want to salvage their brains whether their problem be PD, ALZ,
ALS
or any other (yes, other) autoimmune disease.
Hidden
in
Cure Parkinson's
2 years ago
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