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Experiences with
Amyotrophic lateral sclerosis (ALS)
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Parkinson’s , increased risk for ALS. Expand our research to what benefits ALS because it will benefit PD as well.
Based on sound research, I here posit that PWP are at a considerably greater risk of developing
ALS
. This is true for both “sporadic” and genetic PD. Furthermore, whether one’s PD develops in to
ALS
or not, thus far in my research, what benefits a person with
ALS
will also benefit a PWP.
Based on sound research, I here posit that PWP are at a considerably greater risk of developing
ALS
. This is true for both “sporadic” and genetic PD. Furthermore, whether one’s PD develops in to
ALS
or not, thus far in my research, what benefits a person with
ALS
will also benefit a PWP.
Hidden
in
Cure Parkinson's
2 years ago
Autoimmune Autonomic Ganglionopathy Associated with Voltage-Gated Potassium Channel Antibodies
The literature I found said dysautonomia wasn't a feature of
ALS
. When dysautonomia co-occurs with motor neuron disease it is called
ALS
plus syndrome aka parkinsonism. I came across a recent article about Clive Svendsen, PhD at Cedars-Sinai who said, "We don't think
ALS
is one disease."
The literature I found said dysautonomia wasn't a feature of
ALS
. When dysautonomia co-occurs with motor neuron disease it is called
ALS
plus syndrome aka parkinsonism. I came across a recent article about Clive Svendsen, PhD at Cedars-Sinai who said, "We don't think
ALS
is one disease."
SilentEchoes
in
Cure Parkinson's
2 years ago
interpreting my blood test results
Hello again I posted here about a month ago, and received really useful information about what blood tests for hypothyroidism should reveal. I have now had the results of the tests, which are quite lengthy, but do not seem to have any information on T3 and T4 levels. Please could some wise person comment
Hello again I posted here about a month ago, and received really useful information about what blood tests for hypothyroidism should reveal. I have now had the results of the tests, which are quite lengthy, but do not seem to have any information on T3 and T4 levels. Please could some wise person comment
humlies
in
Thyroid UK
2 years ago
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What is AMX0035, and Why Is It Important for All of Us?
Phase II of the study of AMX0035 and
ALS
has produced some excellent results. Because
ALS
has no known cure, the drug is going to be released for people to use now.
Phase II of the study of AMX0035 and
ALS
has produced some excellent results. Because
ALS
has no known cure, the drug is going to be released for people to use now.
SilentEchoes
in
Cure Parkinson's
2 years ago
Heart rate over 100. Should I lower or up my Levo??
Hi I was wondering if someone had any advice on whether or not I should lower or up my Levo dose? I had upped from 100mg to 112.5 mg beginning of June, but my heart-rate just keeps going over 100bpm when I’m not doing anything. I’m still tired and feel as if I just can’t be bothered. I’ve been sitting
Hi I was wondering if someone had any advice on whether or not I should lower or up my Levo dose? I had upped from 100mg to 112.5 mg beginning of June, but my heart-rate just keeps going over 100bpm when I’m not doing anything. I’m still tired and feel as if I just can’t be bothered. I’ve been sitting
HappyBadger
in
Thyroid UK
2 years ago
Optimum diet for PD (spoiler alert, it’s nothing like the SAD diet and sugar is killing you.).
Here I will be adding some information about diet that is relevant to all people who want to salvage their brains whether their problem be PD, ALZ,
ALS
or any other (yes, other) autoimmune disease.
Here I will be adding some information about diet that is relevant to all people who want to salvage their brains whether their problem be PD, ALZ,
ALS
or any other (yes, other) autoimmune disease.
Hidden
in
Cure Parkinson's
2 years ago
Huperzine A : NMDA pathway, reduces glutamate Excitotoxicity associated with PD, ALS, and ALZ
There is an abundance of information on how it is effective at decreasing the glutamate excitoxicity which is known to cause neurological degeneration in
ALS
, PD, and ALZ.
There is an abundance of information on how it is effective at decreasing the glutamate excitoxicity which is known to cause neurological degeneration in
ALS
, PD, and ALZ.
Hidden
in
Cure Parkinson's
2 years ago
TSH high end, B12 deficiency, perimenopausal starting HRT soon.. what's what with all the bloods please?
Hi, to give the full picture I posted this on the b12 site but looking for your thoughts on the thyroid part of it please ... Prior to having covid in Dec 2020, I was physically fit and healthy. Started Sertraline in Nov 2017 for severe pmt. Gave birth in Oct 2018, was induced with hormones and given
Hi, to give the full picture I posted this on the b12 site but looking for your thoughts on the thyroid part of it please ... Prior to having covid in Dec 2020, I was physically fit and healthy. Started Sertraline in Nov 2017 for severe pmt. Gave birth in Oct 2018, was induced with hormones and given
B12-118
in
Thyroid UK
2 years ago
Advice on latest lab please?
Just wondering if you could give advice on my last bloods? I feel ok, not swelling, but can not loose weight at all. I stop feel always cold, but my heart rate increase to 85/min I used NDT 3 years, was great, but the factory was closed, and I can not buy anymore lacto free NDT (without prescription)
Just wondering if you could give advice on my last bloods? I feel ok, not swelling, but can not loose weight at all. I stop feel always cold, but my heart rate increase to 85/min I used NDT 3 years, was great, but the factory was closed, and I can not buy anymore lacto free NDT (without prescription)
BC99
in
Thyroid UK
2 years ago
Butyrate , TUDCA or UDCA : trials for PD, ALS, ALZ - Slows ALS decline
This is a continuation of my message that what benefits
ALS
and ALZ is of great relevance to PD.
This is a continuation of my message that what benefits
ALS
and ALZ is of great relevance to PD.
Hidden
in
Cure Parkinson's
2 years ago
A phase 3 clinical trial found ultra-high dose methylcobalamin slowed functional decline in patients with early-stage ALS
A phase 3 clinical trial found ultra-high dose methylcobalamin slowed functional decline in patients with early-stage amyotrophic lateral sclerosis. https://ja.ma/3L1hd6C
Question
Does twice-weekly intramuscular injection of 50-mg ultrahigh-dose methylcobalamin slow clinical progression in
A phase 3 clinical trial found ultra-high dose methylcobalamin slowed functional decline in patients with early-stage amyotrophic lateral sclerosis. https://ja.ma/3L1hd6C
Question
Does twice-weekly intramuscular injection of 50-mg ultrahigh-dose methylcobalamin slow clinical progression in
Hidden
in
Cure Parkinson's
2 years ago
GABA astrocytes and glutamate : researching your understand how these contribute to PD.
Higher levels of glutamate are said to contribute to PD,
ALS
, and ALZ. Here I intend on collecting data and notes in an effort to understand the many years of scientific research on the relationship of glutamate, GABA and PD.
Higher levels of glutamate are said to contribute to PD,
ALS
, and ALZ. Here I intend on collecting data and notes in an effort to understand the many years of scientific research on the relationship of glutamate, GABA and PD.
Hidden
in
Cure Parkinson's
2 years ago
Factors Associated with Falls During Hospitalization for Coronavirus Disease 2019 (COVID-19)
Having today written on another post, lamenting the ignoring of thyroid issues, I find this paper which shows commendable inquisitiveness and interesting observations. Although the population investigated was small, I find the difference in TSH between the fallers and the non-fallers very interesting
Having today written on another post, lamenting the ignoring of thyroid issues, I find this paper which shows commendable inquisitiveness and interesting observations. Although the population investigated was small, I find the difference in TSH between the fallers and the non-fallers very interesting
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Some Questions
Hello all. My husband (GL 9, PSA 77, 3-4 bone mets-diagnosed 8/19 - Casodex, Eligard, Zytiga/prednisone, plus radiation) had a CT and bone scan yesterday. Nothing of consequence on the CT. Bone scan showed “Focus of minimally increased uptake in T7 decreased conspicuity. No other significant interval
Hello all. My husband (GL 9, PSA 77, 3-4 bone mets-diagnosed 8/19 - Casodex, Eligard, Zytiga/prednisone, plus radiation) had a CT and bone scan yesterday. Nothing of consequence on the CT. Bone scan showed “Focus of minimally increased uptake in T7 decreased conspicuity. No other significant interval
Dett
in
Advanced Prostate Cancer
2 years ago
Still more questions than answers.
I will be getting my second dose of Lu 177. So far sooooo...... painful although fentanyl is my friend, pain has been managed as of late, My labs are good except one my Alk phos is 1598, I was told by a oncologist this is just a number and dont lose sleep over it, given the treatment I am involved in
I will be getting my second dose of Lu 177. So far sooooo...... painful although fentanyl is my friend, pain has been managed as of late, My labs are good except one my Alk phos is 1598, I was told by a oncologist this is just a number and dont lose sleep over it, given the treatment I am involved in
Costarica1961
in
Advanced Prostate Cancer
2 years ago
Trials coming from Zhittya
Topic #1) Intranasal Delivery of FGF-1 for the Treatment of Parkinson’s Disease and
ALS
(Motor Neuron Disease or Lou Gehrig’s disease) Dr.
Topic #1) Intranasal Delivery of FGF-1 for the Treatment of Parkinson’s Disease and
ALS
(Motor Neuron Disease or Lou Gehrig’s disease) Dr.
EnterTheDragon
in
Cure Parkinson's
3 years ago
Who knows about ferritin/ iron tests? Confused here! Do I need to do something? Help please!
I get confused with ferritin and iron results, as I can't remember how they work together. Ferritin is low, but haemoglobin is ok? My GP marked everything 'normal'. I'd be grateful for some explanation and advice on what to do please! I have felt more tired. In fact absolutely exhausted a couple of
I get confused with ferritin and iron results, as I can't remember how they work together. Ferritin is low, but haemoglobin is ok? My GP marked everything 'normal'. I'd be grateful for some explanation and advice on what to do please! I have felt more tired. In fact absolutely exhausted a couple of
TaraJR
in
Thyroid UK
2 years ago
Green Tea Polyphenols Attenuated Glutamate Excitotoxicity via Antioxidative and Antiapoptotic Pathways
These disorders include Alzheimer’s disease (AD), Parkinson’s disease (PD), Huntington’s disease (HD), and amyotrophic lateral sclerosis (
ALS
) which are caused by a combination of genetic and environmental factors.
These disorders include Alzheimer’s disease (AD), Parkinson’s disease (PD), Huntington’s disease (HD), and amyotrophic lateral sclerosis (
ALS
) which are caused by a combination of genetic and environmental factors.
SilentEchoes
in
Cure Parkinson's
2 years ago
Not all The lu 177 side effects noted, that I have experienced were in the Broschüre.
I had my first dose on feb 23rd and the first few days after treatment with no real issues, until, about day 4. I experienced nausea , vomiting, and lower back pain as well as rib and thigh pains accompanied by neck and cranium discomfort. My stomach is cramping some of these side effects are normal
I had my first dose on feb 23rd and the first few days after treatment with no real issues, until, about day 4. I experienced nausea , vomiting, and lower back pain as well as rib and thigh pains accompanied by neck and cranium discomfort. My stomach is cramping some of these side effects are normal
Costarica1961
in
Advanced Prostate Cancer
2 years ago
Update and first time referral to a neph...
Hi everyone, This is my second post. My first post, my husband had been leaking protein and was told it would go away. A year later, he still has it. Now he's being referred to a Nephrologist for the first time. Does anyone have any suggestions or tips on what to ask? He's not diabetic and his blood
Hi everyone, This is my second post. My first post, my husband had been leaking protein and was told it would go away. A year later, he still has it. Now he's being referred to a Nephrologist for the first time. Does anyone have any suggestions or tips on what to ask? He's not diabetic and his blood
Bananas2007
in
Kidney Disease
2 years ago
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