Waiting part tres

[RunThru]

No quesions really. Radiation down 2 weeks ago to left hip region helped but gut messed up now. Some high intestinal/stomach bleeding (due to what?) caused a couple black stools and dropped Hb a bit, but cleared up now. Case of GERG has joined in. Alk phos at 110ish for last 2 months, PSA at 35 now. Moderate bone pain in hips and right leg, using tylenol for pain, want to stay away from opiods. 2.5 months no systemic treatment (besides radiation and eligard). Pluvicto to start this coming Thursday, Sept 15.Nervous. Hope body stays together til then. And hopefully not a "waiting part quatro" post.

[BB_1]

A your name implies...you can run thru it...

[RunThru in reply to BB_1]

Thanks. not much of running now...but mindset persists!

[BB_1 in reply to RunThru]

ditto...In my early days I was an ultra runner...trying to keep that mind set of running thru the uglies...

[Seasid]

i would like to understand why are you waiting for your therapy?

Especially I don't understand why can't you continue with enzalutamide?

If it is a clinical trial could you post the link? That would be great.

Thanks in advance.

[RunThru in reply to Seasid]

Not a clinical trial. Just a long waiting list at this point. I finally got in number

[Seasid in reply to RunThru]

So they are not allowing you to use Enzalutamide during the Lutetium PSMA therapy?

Do you know why Enzalutamide is not allowed?

[RunThru]

It failed

[Seasid in reply to RunThru]

Will you do chemotherapy after the completion of your Lutetium treatment?

[RunThru in reply to Seasid]

its not scheduled. Why do you ask?

[Seasid in reply to RunThru]

i know that our member Brysonal did exactly that. He had 3 x cycles of Docetaxel chemotherapy after Lutetium PSMA therapy.

If you have some PSMA negative cancer left chemotherapy would deai with it. (This is my logic.)

[Seasid in reply to Seasid]

he had only 3 Lutetium infusions

[RunThru in reply to Seasid]

thanks! Ill keep this in mind.

[Seasid in reply to RunThru]

He has a Finland oncologist.

Most important is that your blood count stay in a normal range.

[Seasid in reply to Seasid]

no bone marrow infiltration by the cancer and no bone marrow suppression.

[RunThru]

yea, i agree. Had blood done yesterday and it was fine, hopefully itll stay that way