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Experiences with
Amyotrophic lateral sclerosis (ALS)
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MJF is offering free smell tests
There is a Parkinson's/
ALS
/Dementia syndrome. Smell loss isn't a part of
ALS
. Curious to see the results. https://www.michaeljfox.org/smell-loss-brain-health?ps_cid=fb-a1b1R00000AQ7sB
There is a Parkinson's/
ALS
/Dementia syndrome. Smell loss isn't a part of
ALS
. Curious to see the results. https://www.michaeljfox.org/smell-loss-brain-health?ps_cid=fb-a1b1R00000AQ7sB
SilentEchoes
in
Cure Parkinson's
2 years ago
liver enzymes
hello, My dads past 2 PET scans have shown NED. he was diagnosed last summer with MBC to his bones. my dads liver enzymes (ASTs) went from 28 to 38 in a month and normal for the lab he goes to is less than 40. His ALK phos is normal and his ALTs the other liver enzyme went from 26 to 32 in a month
hello, My dads past 2 PET scans have shown NED. he was diagnosed last summer with MBC to his bones. my dads liver enzymes (ASTs) went from 28 to 38 in a month and normal for the lab he goes to is less than 40. His ALK phos is normal and his ALTs the other liver enzyme went from 26 to 32 in a month
Jenniferp2122
in
SHARE Metastatic Breast Cancer
1 year ago
Are you ready to kick neurotoxins to the curb?
For what it's worth, there's no effing way Roundup Original II didn't cause my
ALS
or cause/contribute to your PD. SE
For what it's worth, there's no effing way Roundup Original II didn't cause my
ALS
or cause/contribute to your PD. SE
SilentEchoes
in
Cure Parkinson's
9 months ago
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I'm lonely and scared
I think regardless of the countless neurologist who say I don't have
als
every time I feel the muscles go missing or won't engage I ho into panic Then I get huge depersinalization and derealization that happens and just lose my mind crying. I am a 39 year old male by the way.
I think regardless of the countless neurologist who say I don't have
als
every time I feel the muscles go missing or won't engage I ho into panic Then I get huge depersinalization and derealization that happens and just lose my mind crying. I am a 39 year old male by the way.
ToesKnees
in
Functional Neurological Disorder - FND Hope
1 year ago
An update on Peter Mac and Lu-177
I just wanted to update on my previous post (https://healthunlocked.com/advanced-prostate-cancer/posts/149757852/update-on-failing-enzalutamide). I have now heard from Michael Hoffman at Peter Mac and his response to my request to be considered was as follows: [i]"Our Lu-177 treatment guidelines require
I just wanted to update on my previous post (https://healthunlocked.com/advanced-prostate-cancer/posts/149757852/update-on-failing-enzalutamide). I have now heard from Michael Hoffman at Peter Mac and his response to my request to be considered was as follows: [i]"Our Lu-177 treatment guidelines require
CrocodileShoes
in
Advanced Prostate Cancer
1 year ago
Fecal Microbiota Transplantation (FMT) For PD And Much Much More
There currently are no drugs available for
ALS
which can stop disease progression or offer significant symptom relief, so this case report is very important and warrants further study in a larger group of people with
ALS
: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9898040/ Here is an important
There currently are no drugs available for
ALS
which can stop disease progression or offer significant symptom relief, so this case report is very important and warrants further study in a larger group of people with
ALS
: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9898040/ Here is an important
chartist
in
Cure Parkinson's
1 year ago
Help with bloods please
I used to be on here under mandy72 Help with bloods pleaseBreathless, slow heart rate (dipping as low as 50) dizzy and nausea...... Reason for the blood tests apart from when I was at Dr's heart rate was low 60, ecg and chest xray all good Full blood count Haemoglobin concentration 142 g/L [115.0 - 165.0
I used to be on here under mandy72 Help with bloods pleaseBreathless, slow heart rate (dipping as low as 50) dizzy and nausea...... Reason for the blood tests apart from when I was at Dr's heart rate was low 60, ecg and chest xray all good Full blood count Haemoglobin concentration 142 g/L [115.0 - 165.0
Licklemoose
in
Thyroid UK
1 year ago
Study links Glyphosate in Roundup to Neurodegenerative Disease
Parkinson's disease is a smouldering campfire -
ALS
is a raging wildfire. How does glyphosate travel to the brain? Small incremental doses from eating contaminated food are enzymatically transported by the vagus nereve via the gut/brain axis. The result is a smouldering inflammatory process.
Parkinson's disease is a smouldering campfire -
ALS
is a raging wildfire. How does glyphosate travel to the brain? Small incremental doses from eating contaminated food are enzymatically transported by the vagus nereve via the gut/brain axis. The result is a smouldering inflammatory process.
SilentEchoes
in
Cure Parkinson's
2 years ago
Phase 1 trial of VRG50635 - a novel therapeutic discovered & "delivered into the clinic in just 4 years" by an AI-powered platform
I know it is for
ALS
but it gives me hope that AI can deliver so fast. https://www.vergegenomics.com/news-blog/verge-genomics-initiates-first-in-human-dosing-in-phase-1-trial-of-novel-therapeutic-for-
als
I know it is for
ALS
but it gives me hope that AI can deliver so fast. https://www.vergegenomics.com/news-blog/verge-genomics-initiates-first-in-human-dosing-in-phase-1-trial-of-novel-therapeutic-for-
als
Hidden
in
Cure Parkinson's
2 years ago
thought I’d do a new post
I wrote last week about iron results, and was asked if I had more results so I’m giving them now I was on 150 thyroxine/12/1/2 t3 , haemoglobin level. 141g/l. ( 115-165g/l White blood 7.3. ( 4.10- 11/10g/l Platelet count 208. (135-450g/l Red cell count 4.9 (3.8-4.8 Heamatocrit 0.429 (0.37-
I wrote last week about iron results, and was asked if I had more results so I’m giving them now I was on 150 thyroxine/12/1/2 t3 , haemoglobin level. 141g/l. ( 115-165g/l White blood 7.3. ( 4.10- 11/10g/l Platelet count 208. (135-450g/l Red cell count 4.9 (3.8-4.8 Heamatocrit 0.429 (0.37-
Kowbie
in
Thyroid UK
1 year ago
Atrial fibrillation effects on liver function
Can AFib detrimentally effect liver function? I’ve had two high blood results for Gamma-glutamyl transferase and Alanine aminotransferase both over 150, treble & double respectively from a blood test two weeks ago. I’ve not drunk any alcohol over that period the only thing that’s changed is getting
Can AFib detrimentally effect liver function? I’ve had two high blood results for Gamma-glutamyl transferase and Alanine aminotransferase both over 150, treble & double respectively from a blood test two weeks ago. I’ve not drunk any alcohol over that period the only thing that’s changed is getting
El-P
in
British Heart Foundation
1 year ago
Toxicological Effects of Berberine and Sanguinarine 2018
I have a lot of faith in Berberine, but somebody (you know who you are [Thanks!]) shared this article with me. It is interesting: Toxicological Effects of Berberine and Sanguinarine
2018https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5867333/#:~:text=The%20toxicity%20of%20pure%20compound,immune%20cells
I have a lot of faith in Berberine, but somebody (you know who you are [Thanks!]) shared this article with me. It is interesting: Toxicological Effects of Berberine and Sanguinarine
2018https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5867333/#:~:text=The%20toxicity%20of%20pure%20compound,immune%20cells
Bolt_Upright
in
Cure Parkinson's
1 year ago
Rasagiline: The Neuroprotective Activities of the Novel Multi-Target Iron-Chelators in Models of Alzheimer’s Disease, ALS and Aging
https://www.mdpi.com/2073-4409/12/5/763/html However, accumulating evidence has shown that iron-dependent oxidative stress (OS), increased iron levels, and monoamine oxidase (MAO)-B activity, as well as reduced antioxidant levels and activities in the brain, maybe major pathogenic factors in neurodegenerative
https://www.mdpi.com/2073-4409/12/5/763/html However, accumulating evidence has shown that iron-dependent oxidative stress (OS), increased iron levels, and monoamine oxidase (MAO)-B activity, as well as reduced antioxidant levels and activities in the brain, maybe major pathogenic factors in neurodegenerative
Hidden
in
Cure Parkinson's
1 year ago
Severe health anxiety
This specific time, Ive been dealing with twitching muscles for no apparent reason but of course my anxiety takes over and creates a narrative that I must have
ALS
.
This specific time, Ive been dealing with twitching muscles for no apparent reason but of course my anxiety takes over and creates a narrative that I must have
ALS
.
jn3w2
in
Anxiety and Depression Support
1 year ago
Questions about fatigue
I initially posted this to the B12 deficiency forum, and it was suggested that I post it here. I am in the USA. In the spring of 2021 I had been having periods of fatigue that would put me in bed for two or three days at a time, and then suddenly things would be better again. This was a repeating pattern
I initially posted this to the B12 deficiency forum, and it was suggested that I post it here. I am in the USA. In the spring of 2021 I had been having periods of fatigue that would put me in bed for two or three days at a time, and then suddenly things would be better again. This was a repeating pattern
WiscGuy
in
Thyroid UK
1 year ago
Pluvicto Update: Second Treatment Coming up
Will be getting my second treatment on Tuesday. Unfortunately, my PSA has not dropped a whole lot. It went from 248 to 222. My Alk Phos shot up from the mid 300s to almost 600 now. Hoping things improve after the next infusion. Hope it's just dying cancer cells affecting the PSA. I still feel better
Will be getting my second treatment on Tuesday. Unfortunately, my PSA has not dropped a whole lot. It went from 248 to 222. My Alk Phos shot up from the mid 300s to almost 600 now. Hoping things improve after the next infusion. Hope it's just dying cancer cells affecting the PSA. I still feel better
EdBacon
in
Advanced Prostate Cancer
1 year ago
Natural remedies. Essential oils.
Have any of you used essential oils to help with PBC. I have been researching the use of oils to help detox and dilate the ducts to help with releasing the bile. I want to take info to my Dr for discussion. Medication side effects have been so severe that I only take milk thistle. My ALT and AST are
Have any of you used essential oils to help with PBC. I have been researching the use of oils to help detox and dilate the ducts to help with releasing the bile. I want to take info to my Dr for discussion. Medication side effects have been so severe that I only take milk thistle. My ALT and AST are
pbc-zero
in
PBC Foundation
1 year ago
Questions about TSH and other test results
In the spring of 2021 I had been having periods of fatigue that would put me in bed for two or three days at a time, and then suddenly things would be better again. This was a repeating pattern. I took this complaint to the doctor and was diagnosed with B12 deficiency. I was initially put on the treatment
In the spring of 2021 I had been having periods of fatigue that would put me in bed for two or three days at a time, and then suddenly things would be better again. This was a repeating pattern. I took this complaint to the doctor and was diagnosed with B12 deficiency. I was initially put on the treatment
WiscGuy
in
Pernicious Anaemia Society
1 year ago
Ferritin Levels
Could Sue please advise on my Ferritin Levels. Clinician viewed03 May 2023Result typePathologyTestsUrea and electrolytesLiver function testsSerum lipid levelsAcute Kidney Injury StagingSerum total protein levelSerum folate levelSerum ferritin levelFiled byDr Steven Chan at The Orchard Medical Practice
Could Sue please advise on my Ferritin Levels. Clinician viewed03 May 2023Result typePathologyTestsUrea and electrolytesLiver function testsSerum lipid levelsAcute Kidney Injury StagingSerum total protein levelSerum folate levelSerum ferritin levelFiled byDr Steven Chan at The Orchard Medical Practice
VENEER
in
Restless Legs Syndrome
1 year ago
If Pluvicto fails…what next?
I’ve posted here before and have been met with such kindness and helpful knowledge. We’re at another difficult point in my dad’s metastatic PCa journey. Dxed March ‘18, and has gone through the gamut of standard of care (Docetaxal, Jevtana, Ra223, Lynparza, ADT) and now Pluvicto. He had one round about
I’ve posted here before and have been met with such kindness and helpful knowledge. We’re at another difficult point in my dad’s metastatic PCa journey. Dxed March ‘18, and has gone through the gamut of standard of care (Docetaxal, Jevtana, Ra223, Lynparza, ADT) and now Pluvicto. He had one round about
Nettie8200
in
Advanced Prostate Cancer
1 year ago
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