Experiences with
Amyotrophic lateral sclerosis (ALS)904 public posts
another pharma update
This is in regards to the pharma Ipsen...
They are trialing a drug called Elafibranor. It is being used for treatment in PBC, biliary atresia (in children) , PSC, Alagille Syndrome, and Primary Familial Cholestasis.
With patients taking Urso, often up to 40% do not see improvement. 3-5% of patients
Seladelpar update
About a month or more ago, I wrote about this upcoming drug's potentially to be the next drug for second line treatment. By that I mean that for some reason someone was not responding to or not able to take Urso. 40% of patients are failed by Urso.
Cymabay, the pharma who manufacturers Seladelpar,
Want to take advantage of all our features? Just log in!
or
Good report
Had my every 6 month check up with the hepatologist today. Labs were all good. My alk phos is 121 - normal range for my lab is 37-153. Kidney function good as well.. always make sure part of your regular lab work is a comprehensive metabolic profile (CMP).
Now just to make myself committed to making