Further to my original post, I have included links to provide you with two examples of videos created for the Faces and Voices Campaign. Your submissions can be a photo with a short bio if you like, it's entirely up to you. As it states in the first post, we will work with you to come up with a video presentation - nothing will be published without your approval. This is a golden opportunity for past and present caregivers, patients, family, loved ones or friends to raise disease awareness.
We, in the PSP-CBD and MSA community, must be the ones to bring about change that will effectively raise awareness leading to further understanding and support towards treatment and a cure.
youtube.com/watch?v=qqPeUHG...
drive.google.com/file/d/1Cy...
This campaign has the possibility to surpass the Ice Bucket Challenge for ALS, which created increased understanding and support so much so, that researchers have created two new drugs to treat ALS and believe there will be a cure in a few years time.
With everyone's support, Faces and Voices will make waves, and by comparison, the Ice Bucket Challenge will be just that- a drop in the bucket.
Tim