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Newbie to this forum - hello everyone
I saw my GP in March for a routine health check and I told him my ankles and abdomen had become swollen - he ordered blood tests and an abdominal ultrasound. Test results showed Serum alkaline phosphatase level at 150 and Serum alanine aminotransferase level at 54 (both above the high reference limit
I saw my GP in March for a routine health check and I told him my ankles and abdomen had become swollen - he ordered blood tests and an abdominal ultrasound. Test results showed Serum alkaline phosphatase level at 150 and Serum alanine aminotransferase level at 54 (both above the high reference limit
IanM1957
in
British Liver Trust
5 years ago
Intro
Evening all! I have not been diagnosed w/ MS, but I do have Lupus. I've been having some different issues lately that don't really line up with the Lupus. Originally before being diagnosed my pcp & I were wondering if it was MS, but after positive ANA & dsDNA they went with Lupus. lol That was about
Evening all! I have not been diagnosed w/ MS, but I do have Lupus. I've been having some different issues lately that don't really line up with the Lupus. Originally before being diagnosed my pcp & I were wondering if it was MS, but after positive ANA & dsDNA they went with Lupus. lol That was about
redhood246
in
My MSAA Community
5 years ago
Alk phos went up.
Hello everyone, I was diagnosed almost.a year ago after I gave birth to my daughter. My alk phos was around 348. I started urso last July. I have no scarring. My numbers came down to 151. However. I went to the doctor and it went up to 187. I'm worried and frankly I always been stressed since being
Hello everyone, I was diagnosed almost.a year ago after I gave birth to my daughter. My alk phos was around 348. I started urso last July. I have no scarring. My numbers came down to 151. However. I went to the doctor and it went up to 187. I'm worried and frankly I always been stressed since being
Th1712
in
PBC Foundation
5 years ago
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Concerned by Raynaud symptoms and positive ANA
I’m 41 and have developed Raynaud symptoms. Not painful. But cold and a multitude of colours. Also hands flare when stressed. Coupled with that I was getting some hard, red spots on left hand. Went to doctor who carried out some blood tests. In the meantime the spots went away. Blood tests revealed
I’m 41 and have developed Raynaud symptoms. Not painful. But cold and a multitude of colours. Also hands flare when stressed. Coupled with that I was getting some hard, red spots on left hand. Went to doctor who carried out some blood tests. In the meantime the spots went away. Blood tests revealed
Booboos0330
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Confused!
Hi All, new to this platform. Goid to see so much support. I have been under investigation for 4 years, first for MS now lupus. Positive ANA , facial rash, flair ups when stressed or tired. Extreme fatigue. Most days i woke feeling like I had done a heavy session at the gym. When i have flairs my
Hi All, new to this platform. Goid to see so much support. I have been under investigation for 4 years, first for MS now lupus. Positive ANA , facial rash, flair ups when stressed or tired. Extreme fatigue. Most days i woke feeling like I had done a heavy session at the gym. When i have flairs my
Sallmell
in
LUPUS UK
5 years ago
Please help
Hi everyone, I'm in desperate need of help. Last year in June I was sent to Rheumatology as I had hand and wrist pain and a low positive ANA test result. The conclusion was that there was no rheumatic findings, which I agreed with. At the end of my letter from consultant it states that if any more
Hi everyone, I'm in desperate need of help. Last year in June I was sent to Rheumatology as I had hand and wrist pain and a low positive ANA test result. The conclusion was that there was no rheumatic findings, which I agreed with. At the end of my letter from consultant it states that if any more
Elephantmad
in
NRAS
5 years ago
Anti-Nuclear Antibodies May Confuse Lupus Diagnosis
Patients who may have lupus typically undergo an “ANA” test to detect anti-nuclear antibodies (ANAs). Lupus Research Alliance Distinguished Innovator Award recipient Dr. Shu Man Fu of the University of Virginia and colleagues found that people who don’t have lupus also produce ANAs. This suggests that
Patients who may have lupus typically undergo an “ANA” test to detect anti-nuclear antibodies (ANAs). Lupus Research Alliance Distinguished Innovator Award recipient Dr. Shu Man Fu of the University of Virginia and colleagues found that people who don’t have lupus also produce ANAs. This suggests that
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Zytiga working but
My zytiga seems to be working. In one year PSA has gone from 1230 to 0.48. Alk Phos from 782 to 106. Now tests are showing low RBC and low hemoglobin, they suspect blood loss somewhere. Is drop in those counts normal with treatment?
My zytiga seems to be working. In one year PSA has gone from 1230 to 0.48. Alk Phos from 782 to 106. Now tests are showing low RBC and low hemoglobin, they suspect blood loss somewhere. Is drop in those counts normal with treatment?
michael00
in
Advanced Prostate Cancer
5 years ago
FND and St. John’s Wort
My doctor prescribed Cymbalta but my health insurance denied it. I looked for a natural antidepressant online and saw St. John’s Wort. Has this helped anyone with FND? Please tell us your experience!
My doctor prescribed Cymbalta but my health insurance denied it. I looked for a natural antidepressant online and saw St. John’s Wort. Has this helped anyone with FND? Please tell us your experience!
AjaStar
in
Functional Neurological Disorder - FND Hope
5 years ago
Making the Best CHOICE for Daddy. What to do next.....
My Dad had his prostate removed 10 years ago. After he recovered from surgery, he had radiation to the area for 6 weeks. ADT shots ONLY from 2010 until 1/2019. Now dx is CRPca, he began Xgeva, Xtandi(stopped as of yesterday 6/3/19) and Lupron in 1/2019. After 5 1/2 months on Xtandi, results from
My Dad had his prostate removed 10 years ago. After he recovered from surgery, he had radiation to the area for 6 weeks. ADT shots ONLY from 2010 until 1/2019. Now dx is CRPca, he began Xgeva, Xtandi(stopped as of yesterday 6/3/19) and Lupron in 1/2019. After 5 1/2 months on Xtandi, results from
savingdaddy
in
Advanced Prostate Cancer
5 years ago
Second Opinion Update
Before I would go to the rheumatologist, I visited another primary doctor for a second opinion. She... Reviewed my lab results one by one Reviewed my current symptoms from 6 weeks ago through now (mouth sores, swollen lymph nodes, one swollen tonsil, mild fatigue, on and off pain in ribs, one week headaches
Before I would go to the rheumatologist, I visited another primary doctor for a second opinion. She... Reviewed my lab results one by one Reviewed my current symptoms from 6 weeks ago through now (mouth sores, swollen lymph nodes, one swollen tonsil, mild fatigue, on and off pain in ribs, one week headaches
GhostfaceMcGee
in
LUPUS UK
5 years ago
10 day difference in labs before and after pain medication
I went by ambulance to the ER for severe muscle spasms on left side of my back. They drew blood before giving me any medication. While waiting for results I was given an i.v. of morphine and some sort of muscle relaxer. All labs came back in normal range so I was released with instructions to take Naproxen
I went by ambulance to the ER for severe muscle spasms on left side of my back. They drew blood before giving me any medication. While waiting for results I was given an i.v. of morphine and some sort of muscle relaxer. All labs came back in normal range so I was released with instructions to take Naproxen
shadowme2
in
PBC Foundation
5 years ago
Hi- Have fatigue, joint pain, swollen glands, mouth ulcers, scaly red rash on face when in sun since Xmas but ANA test just back negative?
I’m 57 and realised I’ve had periods like this for over 20 years. Only when I developed the rash that I considered Lupus - it’s like reading about myself -
I’m 57 and realised I’ve had periods like this for over 20 years. Only when I developed the rash that I considered Lupus - it’s like reading about myself -
cathART
in
LUPUS UK
5 years ago
Did your loved ones want you to get a second opinion?
I recently told my parents about my primary doctor referring me to a rheumatologist for further evaluation, because I may need to switch back onto their health insurance for now since my current health insurance does not cover specialists (I am almost 24). Before I would go to a rheumatologist, though
I recently told my parents about my primary doctor referring me to a rheumatologist for further evaluation, because I may need to switch back onto their health insurance for now since my current health insurance does not cover specialists (I am almost 24). Before I would go to a rheumatologist, though
GhostfaceMcGee
in
LUPUS UK
5 years ago
AST/ALT ratio?
Hi, I had LFTs done as part of a general health check. I’ve been asked to have LFTs rechecked in a month. Results are as follows: Bilirubin 8 Alk phos 81 AST. 39 ALT. 37 Gamma GT 25 Protein 73 Albumin 43 Globulin 30 I also had a full blood count which was normal. The ALT and AST were highlighted
Hi, I had LFTs done as part of a general health check. I’ve been asked to have LFTs rechecked in a month. Results are as follows: Bilirubin 8 Alk phos 81 AST. 39 ALT. 37 Gamma GT 25 Protein 73 Albumin 43 Globulin 30 I also had a full blood count which was normal. The ALT and AST were highlighted
Waterhouse
in
British Liver Trust
5 years ago
Lupus or something else? Guidance please :)
Hi all, I've been reading many posts on here but yet to write myself. I'm in a bit of a pickle. As a child I was always getting sick. Pneumonia twice, constant throat and chest infections. I've always been pale and slight in frame. Then when I hit 14 (probably puberty related) I had to get tonsils out
Hi all, I've been reading many posts on here but yet to write myself. I'm in a bit of a pickle. As a child I was always getting sick. Pneumonia twice, constant throat and chest infections. I've always been pale and slight in frame. Then when I hit 14 (probably puberty related) I had to get tonsils out
Wardlow
in
LUPUS UK
5 years ago
Was it worth it for you to take advantage of a referral to a Rheumatologist?
My primary doctor just referred me to a rheumatologist to go over my lab work. I am hesitant, because I'm my symptoms are not drastically affecting my daily life, however, my lab work showed a positive ANA with titer of 640 homogenous and 2560 centromere. Did you wait until symptoms got worse, to see
My primary doctor just referred me to a rheumatologist to go over my lab work. I am hesitant, because I'm my symptoms are not drastically affecting my daily life, however, my lab work showed a positive ANA with titer of 640 homogenous and 2560 centromere. Did you wait until symptoms got worse, to see
GhostfaceMcGee
in
LUPUS UK
5 years ago
Herbs !
INFO St johns wort dont use with anti depressants,
INFO St johns wort dont use with anti depressants,
gerrerd
in
Anxiety and Depression Support
5 years ago
According to a Briova Pharmacist, Sodium Phosphate IS allowed while taking Ibrance!
if you look on drugs.com, it will tell you that sodium phosphate has MODERATE interaction with Ibrance and not allowed. I called Briova Specialty Pharmacy today and they told me it was okay. The pharmacist just stressed NO st. john's wort or grapefruit! I also asked if I could have whatever I liked
if you look on drugs.com, it will tell you that sodium phosphate has MODERATE interaction with Ibrance and not allowed. I called Briova Specialty Pharmacy today and they told me it was okay. The pharmacist just stressed NO st. john's wort or grapefruit! I also asked if I could have whatever I liked
Godbeforme
in
SHARE Metastatic Breast Cancer
5 years ago
A big decision , don't know what to do!
I've had back problems for 5 years and tried everything . I had a discectomy in 2017 on L5 but had complications and 2 more surgeries for a csf leak and spinal sepsis. I'm still in a lot pain and at first they said I need a 2 level fusion but the surgeon changed his mind saying it wouldn't help my pain
I've had back problems for 5 years and tried everything . I had a discectomy in 2017 on L5 but had complications and 2 more surgeries for a csf leak and spinal sepsis. I'm still in a lot pain and at first they said I need a 2 level fusion but the surgeon changed his mind saying it wouldn't help my pain
Megnstan
in
Neuro Support
5 years ago
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