Intro

[redhood246]

Evening all! I have not been diagnosed w/ MS, but I do have Lupus. I've been having some different issues lately that don't really line up with the Lupus. Originally before being diagnosed my pcp & I were wondering if it was MS, but after positive ANA & dsDNA they went with Lupus. lol That was about 10 yrs ago.

Anyhoo, lately my pins & needles in my feet has become almost constant. It's also started acting up in my hands some. My "wierd" issues are muscle spasms. My right forearm will spasm to the point of making my hand curl inward. I had the same thing happen to my right calf & foot. The muscle afterwards is very tight. I also keep getting this "hot spot" on my back. My husband says there's nothing there nor is it hot to touch. I'm sure there's more, but my memory is for the birds. I've had other issues over the years, which they've always just said oh that's just one of the joys of lupus. SMH

I saw my rheumatologist today and she is testing my magnesium levels as she said that could cause the muscle spasms. Looking over the foods rich in it though - it shouldn't be an issue. But, we'll see.

I'm hesitant to call my neuro for an appt. Seems like most doctors have the opinion of once you have a diagnosis everything is explained by that. Didn't mean for this to be so long. Hope everyone is having a good night!

[greaterexp]

Welcome! Given your symptoms, I’d call your neurologist to be evaluated. It may very well be something other than MS, but I think any change or additional symptoms calls for an evaluation. Your neurologist can pinpoint the cause(s) and get you the appropriate treatment.

I hope you’ll let us know what you find out. I wish you the best and hope you don’t have MS, but we’re here for you.

[Timeflies5]

Hi redhood246...sorry you’re going through all this...I don’t really think most doctors sign off on just one diagnosis... unfortunately, anytime there is a diagnosis of one autoimmune disorder, it MAY increase our risk for other autoimmune problems, too...so I think you would be right in either contacting your PCP or your neurologist just to verbalize your concerns and see where it lands...remember...we pay them to help keep us as safe as possible when it comes to our overall health and well-being. Also, it’s good for us to get a yearly physical...doing such may open opportunities for further conversation. Hope this helps 🙂

[mrsmike9 in reply to Timeflies5]

Very true. I have 3 autoimmune diseases.

[carolek572 CommunityAmbassador]

redhood246 You are doing the correct thing by letting your medical team determine what is ailing you. Be firm and persistent in telling them what you're experiencing. My PCP diagnosed my 'ms' with a mri when my then neuro refused to give me a mri. Go figure.

[redhood246]

Thanks y'all. I don't have time to individually respond right now, work, but wanted to say thank you.

[BigMar7]

Welcome redhood246! You have already gotten excellent advise from our group so I will just add : hope you can get answers soon from your doctors. Good luck. 😀🌸🌺

[Jazzihorsecat]

A very, very warm welcome redhood to our as u can see-very supportive family here!💗 I too had 3 different auto-immune's, 1. M.S., 2. Raynaud's syndrome, & 3. Ciliacs Disease! But I am reversing them, w/ an awesome e'book by Ann Boroch, "The Candida Cure", & "Healing Multiple Sclerosis", of them,

I have been doin the Candida cleanse & diet now for 7 & 1/2 months & I am feeling so much more stable, more regular bowels, no more pains oor spacisity, no more dizzy/drunken feelings, just over all better!👍 cuz I don't do well w/ DMT's💉💊 So, this all natural cleanse is the best, almost reversal of disease!👍 My good friend Ifwcz & her hubby are also on it & feelin great! I go to my neuro. In July, & I bet she'll say no more lesions & mylin is coming back!👍😀 oh & never forget now You're family too!🌺🌸💐🌼

Jazzy🌹💜

[redhood246]

I went to my pcp today. She told me that if I didn't schedule an appt with my neuro she was going to kick my butt. (We have a great relationship.) Once I got home I scheduled the appt. It's July 16th.

One issue I've been having that I haven't mentioned is with bowel control. It's extremely embarrassing. Thank goodness I haven't had a problem at work with it. Any suggestions?

[dailygrump40]

If the symptoms last for more than 24 hrs than call your nuero. I took 3600 mgs a day of Gabapentin years ago for pins and needles. I now take 600 mgs of Horizant 2'xs a day which isn't the easiest to get on and 300mgs of Lyrica 2'xs a day for the burning. You hit the nail on the head when you said once you have one auto immune disease a lot of doctors just blame it for any new problems. Sorry to say. Good luck getting answers to everything going on.