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Hi I'm thinking of having spinal cord stimulation can anyone who has had it tell me your experience?
Hi I've been suffering with lower back problems & sever pain for years and it's making my life a misery. All the painkillers I'm on are not helping anymore. I've had 2 set of spinal injections and epdurals, the last lot was last year November since then my pain is even worst. I'm in absolute agony everyday
Hi I've been suffering with lower back problems & sever pain for years and it's making my life a misery. All the painkillers I'm on are not helping anymore. I've had 2 set of spinal injections and epdurals, the last lot was last year November since then my pain is even worst. I'm in absolute agony everyday
Jade22
in
Pain Concern
3 years ago
Spinal cord stimulation?
Hi I have alot of lower back problems, 2 hernatid disc pushing on nerves crumbling disc ect.... It's making my life a misery. I've had 2 lots epdural injections the last lot in November has made the pain even worst want to have SCS Has anyone had SCS spinal cord stimulation & could you tell me you
Hi I have alot of lower back problems, 2 hernatid disc pushing on nerves crumbling disc ect.... It's making my life a misery. I've had 2 lots epdural injections the last lot in November has made the pain even worst want to have SCS Has anyone had SCS spinal cord stimulation & could you tell me you
Jade22
in
Pain Concern
3 years ago
ANA Positive 1:80 Nucleolar pattern 2013 and ongoing pain. The last 5 weeks I can barely walk.
I paid privately for another ANA test and awaiting the results which should be with me today. I have Hashimotos, B12 Deficiency with positive Gastric Parietal Cell Abs but no diagnosis of Pernicious Aneamia. For the past 8 years I’ve been back and forth to my GP with mainly pain in my lower joints,
I paid privately for another ANA test and awaiting the results which should be with me today. I have Hashimotos, B12 Deficiency with positive Gastric Parietal Cell Abs but no diagnosis of Pernicious Aneamia. For the past 8 years I’ve been back and forth to my GP with mainly pain in my lower joints,
angelharley
in
LUPUS UK
3 years ago
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Diagnosis?
Hello all, Firstly apologies if I am in completely the wrong place. I was diagnosed with fibromyalgia around four years ago; but I’m concerned it’s something more (and always have) - I have an appointment on Thursday with my doctor as a friend mentioned lupus and I am here to get the experts opinion/
Hello all, Firstly apologies if I am in completely the wrong place. I was diagnosed with fibromyalgia around four years ago; but I’m concerned it’s something more (and always have) - I have an appointment on Thursday with my doctor as a friend mentioned lupus and I am here to get the experts opinion/
ChelleFeegan
in
LUPUS UK
3 years ago
Lupus, Sjogrens or something else?
Last December my blood test showed positive ANA titre 1:1000 with dsDNA and histone antibodies which are typical for Lupus. I went to see rheumatologist who said that my symptoms (sinus problems for years etc.) would match to Sjogrens but he still wanted to double check results few months later. Last
Last December my blood test showed positive ANA titre 1:1000 with dsDNA and histone antibodies which are typical for Lupus. I went to see rheumatologist who said that my symptoms (sinus problems for years etc.) would match to Sjogrens but he still wanted to double check results few months later. Last
Nasty_Tony
in
LUPUS UK
3 years ago
Need Help Interpreting Results
Hello all, My husband (GL 9, several bone mets-diagnosed 8/19-Casodex, Eligard, Zytiga/prednisone, plus radiation) had a bone scan today, along with routine three month blood work and an Eligard shot. He was scheduled for a CAT scan as well, but the MO postponed it as he was recently vaccinated for Covid
Hello all, My husband (GL 9, several bone mets-diagnosed 8/19-Casodex, Eligard, Zytiga/prednisone, plus radiation) had a bone scan today, along with routine three month blood work and an Eligard shot. He was scheduled for a CAT scan as well, but the MO postponed it as he was recently vaccinated for Covid
Dett
in
Advanced Prostate Cancer
3 years ago
Blood test ‘optimal’, feel so ill
Hello all! I’ve found this forum so helpful and would appreciate advice on latest blood test result which is ‘optimal’ but still feel really ill and lots of hypo symptoms. I was diagnosed with hashimotos end of 2020, and recently had blood tests after 8 weeks on 50mg Levo. For some reason they tested
Hello all! I’ve found this forum so helpful and would appreciate advice on latest blood test result which is ‘optimal’ but still feel really ill and lots of hypo symptoms. I was diagnosed with hashimotos end of 2020, and recently had blood tests after 8 weeks on 50mg Levo. For some reason they tested
Mfjames
in
Thyroid UK
3 years ago
Saw cat scan of lungs for the first time, but not sure how to interpret them.
Yesterday, I saw my chest cat scan for the first time. I was at a consultation with a neurosurgeon regarding a spinal cord stimulator. My rheumatologist told me I had only some minor scarring in the bottom of my lungs when he cut my prednisone from 10 MG to 5 MG, but the cat scan did not look like minor
Yesterday, I saw my chest cat scan for the first time. I was at a consultation with a neurosurgeon regarding a spinal cord stimulator. My rheumatologist told me I had only some minor scarring in the bottom of my lungs when he cut my prednisone from 10 MG to 5 MG, but the cat scan did not look like minor
eternalgardener
in
Living with Interstitial Lung Disease (ILD)
3 years ago
Iron panel, CRP, ESR?
Hi all, so after having a Medichecks full thyroid test in April my result were: TSH 1.39 mIU/L (0.27-4.2)F Freethyroxine 19.4pmol/l (12-22) Yesterday my GP repeated a TSH only test which came back as follows: 0.62 mIU/L (0.38-5.5). Could I be going slightly hyper now? I wasnt expecting the GP to repeat
Hi all, so after having a Medichecks full thyroid test in April my result were: TSH 1.39 mIU/L (0.27-4.2)F Freethyroxine 19.4pmol/l (12-22) Yesterday my GP repeated a TSH only test which came back as follows: 0.62 mIU/L (0.38-5.5). Could I be going slightly hyper now? I wasnt expecting the GP to repeat
Minimouse1
in
Thyroid UK
3 years ago
PBC and Autoimmune Hepatitis
Diagnosed with PBC 2012 last biopsy 3yrs ago stage 2. Labs not improving over the years dispite using Urso and Ocaliva combined. Now trying steroids and bone marrow suppressants incase I have autoimmune hepatitis. My Alt and Ast stabalized but still have elevated alk phos. Any body out there with
Diagnosed with PBC 2012 last biopsy 3yrs ago stage 2. Labs not improving over the years dispite using Urso and Ocaliva combined. Now trying steroids and bone marrow suppressants incase I have autoimmune hepatitis. My Alt and Ast stabalized but still have elevated alk phos. Any body out there with
Q8Cooper
in
PBC Foundation
3 years ago
How long does PSA stay down after chemo?
Just finished my tenth session of taxotere. It dropped my PSA over 80% to under 5 and my alk Phos over 80% to 61. The doc wants me to take a few months off the have my body recover. The last two sessions kicked the stuffing out of me. For those that have had Taxotere how long did you see your drop
Just finished my tenth session of taxotere. It dropped my PSA over 80% to under 5 and my alk Phos over 80% to 61. The doc wants me to take a few months off the have my body recover. The last two sessions kicked the stuffing out of me. For those that have had Taxotere how long did you see your drop
Newyork6264
in
Advanced Prostate Cancer
3 years ago
Could I Have Cirrhosis?
In 2018 I was drinking a lot, woke up with right upper quadrant pain and went to the ER. They said my liver was fine after blood work and ultrasound. I followed up with a gastroenterologist and got labs for everything under the sun and he thought my liver was ok too, but I wasn’t convinced but after
In 2018 I was drinking a lot, woke up with right upper quadrant pain and went to the ER. They said my liver was fine after blood work and ultrasound. I followed up with a gastroenterologist and got labs for everything under the sun and he thought my liver was ok too, but I wasn’t convinced but after
Guitarlife91
in
British Liver Trust
3 years ago
Ovarian cancer metastasis to liver.
Hello Everyone! My mother was diagnosed with ovarian cancer stage 3c last year. Initially she had 6 cycles of chemo and the they did hysterectomy and omentectomy . Doctor said it’s not spread to the intestines which is a great news. And we were happy that mom would be fine. But after 6 months she had
Hello Everyone! My mother was diagnosed with ovarian cancer stage 3c last year. Initially she had 6 cycles of chemo and the they did hysterectomy and omentectomy . Doctor said it’s not spread to the intestines which is a great news. And we were happy that mom would be fine. But after 6 months she had
Angel86
in
SHARE Ovarian Cancer Support
3 years ago
Help with Lab Results
Hello wonderful people, I would be really grateful for some help interpreting my Blue Horizon thyroid test results. I'm wondering how significant it is that my anti-TPO result is high, while the rest of the results seem perfectly normal. (Took test at 8am, after 12 hour fast with no iron or other vitamin
Hello wonderful people, I would be really grateful for some help interpreting my Blue Horizon thyroid test results. I'm wondering how significant it is that my anti-TPO result is high, while the rest of the results seem perfectly normal. (Took test at 8am, after 12 hour fast with no iron or other vitamin
Aurell
in
Thyroid UK
3 years ago
Negative ANA Test & New Rash (photo)
Hi! I had my first set of bloods done this week and everything came back clear. My symptoms are starting to really control my life now and movement is becoming much tougher due to joint pain and mostly weakness in my muscles I have broken out in scaly circle shaped rashes all over my back aswell which
Hi! I had my first set of bloods done this week and everything came back clear. My symptoms are starting to really control my life now and movement is becoming much tougher due to joint pain and mostly weakness in my muscles I have broken out in scaly circle shaped rashes all over my back aswell which
nim98
in
LUPUS UK
3 years ago
Update on my rheumy appointment this morning. What a shocker!
Hi guys. Firstly thank you so much for your wonderful lovely responses. You all gave me that bit of extra umpff to do it this morning. It's not all good but for him... honestly I think someone has said something to him. A warning a general"be nice" talking to I don't know. Perhaps he's been reading our
Hi guys. Firstly thank you so much for your wonderful lovely responses. You all gave me that bit of extra umpff to do it this morning. It's not all good but for him... honestly I think someone has said something to him. A warning a general"be nice" talking to I don't know. Perhaps he's been reading our
Hidden
in
LUPUS UK
3 years ago
Could this be lupus or is it something else?
I've been back and forth to the doctor's since 2019 regarding a potential auto-immune condition, but up to now, there has been no conclusion. This morning I had a telephone appointment with a rheumatologist who has said for me to come in for a face to face tomorrow morning. So, before my appointment,
I've been back and forth to the doctor's since 2019 regarding a potential auto-immune condition, but up to now, there has been no conclusion. This morning I had a telephone appointment with a rheumatologist who has said for me to come in for a face to face tomorrow morning. So, before my appointment,
Harpssss
in
LUPUS UK
3 years ago
Blood report
Okay I want your guys view's on my report any suggestion or piece of mind would be appreciated And will my B12 & iron medication help me with my RBC's and WBC's ? My haemoglobin has always been below 10 since I'm born as I was born unhealthy :'( My other test reports are as follows *IMMUNOLOGY TEST
Okay I want your guys view's on my report any suggestion or piece of mind would be appreciated And will my B12 & iron medication help me with my RBC's and WBC's ? My haemoglobin has always been below 10 since I'm born as I was born unhealthy :'( My other test reports are as follows *IMMUNOLOGY TEST
Akashrajput
in
Pernicious Anaemia Society
3 years ago
Journey to diagnosis
Hi everyone, hope you’re ok. I’m new here and have been under rheumatology for a year now. I’ve got multiple health conditions and understand that it takes a while to get diagnosed due to the crossover in symptoms. My ANA keeps switching between positive and negative, but the nurse said that happens
Hi everyone, hope you’re ok. I’m new here and have been under rheumatology for a year now. I’ve got multiple health conditions and understand that it takes a while to get diagnosed due to the crossover in symptoms. My ANA keeps switching between positive and negative, but the nurse said that happens
Hidden
in
LUPUS UK
3 years ago
I was looking for answers...
I am trying to see if the diagnosis of lupus was wrong for me ( would really like to switch from Warfarin to Xeralto), and thought my negative Anti -DNA blood tests would rule it out. I have a positive ANA (1:640 speckled fine, atypical). I found this info: “The anti-dsDNA test is fairly specific for
I am trying to see if the diagnosis of lupus was wrong for me ( would really like to switch from Warfarin to Xeralto), and thought my negative Anti -DNA blood tests would rule it out. I have a positive ANA (1:640 speckled fine, atypical). I found this info: “The anti-dsDNA test is fairly specific for
Willow7733
in
LUPUS UK
3 years ago
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