Spinal cord stimulation?

[Jade22]

Hi I have alot of lower back problems, 2 hernatid disc pushing on nerves crumbling disc ect.... It's making my life a misery. I've had 2 lots epdural injections the last lot in November has made the pain even worst want to have SCS

Has anyone had SCS spinal cord stimulation & could you tell me you experience please?

[Toui]

Hi I recognise your pain. I had surgery 4 years ago for Cauda equina which was too late and I now have adhesive arachnoiditis. I was referred to a specialist team in Nottingham by the surgeon who looks after me. I have had the first telephone appointment and they agree that I suffer from neuropathic pain which makes me a candidate for SCS. I am due to meet the multi-disciplinary team on the 21 July to see if this is for me. I have been told that I could wait anything between 6 to 12 months for a trial and the final implant. In the meantime I am booked in for a nerve block injection on the 20 May. I could let you know how this progresses.

Take care and keep up your spirits

[Jade22 in reply to Toui]

Hi Toui, thanks for replying that would be grate if you could do that & let me know how things go along the way Im very grateful. Hopfully you don't have too long to wait and it all goes well. Look forward to hearing from you again soon, I the meantime stay strong and take care.

Thanks again jade

[Jade22 in reply to Toui]

Also I'm sorry to hear about you having cauda equine I've heard its extremely painful & such a shame the surgery was too late as I've been warned of the damage that, that can do. Good luck 🤞 that SCS work and gives you the relief you need.Take care

[Toui]

Hi there. Well I have had a bilateral nerve block. What an experience and I did not feel a thing even though it was done under local anaesthetic. This was Thursday and I have not taken any pain killers since and took off an opiate patch. I know this is only temporary relief but I am glad I have had it - I have been able to do more without the constant acute pain. The numbness is still there and that will never go away but I feel better since I can sleep better now.

Hope you stay strong and take care

[Jade22 in reply to Toui]

Hi Toui I'm glad your feeling better☺️, are you still going to have the SCS?

[Toui in reply to Jade22]

Hi Jade 22

Yes I am still going ahead with it because this likely to be temporary. I have read a lot of posts about this from bad experiences but I view it that there must equally be good experiences with it.

[Gregger]

Hi Jade22 I have a scs, had it put in last august and I’m so thankful for this device. Is there anything specific that you’d like to know? If so just ask 👍🏻