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AMA negative but ANA positive
Hi there, I was diagnosed with PBC just over two years ago, which was such a shock to me me as I had no idea about this condition (only visited doctor for a routine check-up 😧!!) Have been on Urso ( 2 years) but my ALP and GGT are still high!! Had biopsy and fibroscan 10.1 Specialist says I am
Hi there, I was diagnosed with PBC just over two years ago, which was such a shock to me me as I had no idea about this condition (only visited doctor for a routine check-up 😧!!) Have been on Urso ( 2 years) but my ALP and GGT are still high!! Had biopsy and fibroscan 10.1 Specialist says I am
Liz_K
in
PBC Foundation
2 years ago
Feel lost
Hi all just looking for some advice if possible please. Has anyone had lupus diagnosed without a positive ana ? I have all the symptoms aside from swelling but the rheumatologist has now diagnosed fibromyalgia due to no positive ana. My liver enzymes have been raised since 2014 and I've been having symptoms
Hi all just looking for some advice if possible please. Has anyone had lupus diagnosed without a positive ana ? I have all the symptoms aside from swelling but the rheumatologist has now diagnosed fibromyalgia due to no positive ana. My liver enzymes have been raised since 2014 and I've been having symptoms
Haylz2109
in
LUPUS UK
2 years ago
Heart rate over 100. Should I lower or up my Levo??
Hi I was wondering if someone had any advice on whether or not I should lower or up my Levo dose? I had upped from 100mg to 112.5 mg beginning of June, but my heart-rate just keeps going over 100bpm when I’m not doing anything. I’m still tired and feel as if I just can’t be bothered. I’ve been sitting
Hi I was wondering if someone had any advice on whether or not I should lower or up my Levo dose? I had upped from 100mg to 112.5 mg beginning of June, but my heart-rate just keeps going over 100bpm when I’m not doing anything. I’m still tired and feel as if I just can’t be bothered. I’ve been sitting
HappyBadger
in
Thyroid UK
2 years ago
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TSH high end, B12 deficiency, perimenopausal starting HRT soon.. what's what with all the bloods please?
Hi, to give the full picture I posted this on the b12 site but looking for your thoughts on the thyroid part of it please ... Prior to having covid in Dec 2020, I was physically fit and healthy. Started Sertraline in Nov 2017 for severe pmt. Gave birth in Oct 2018, was induced with hormones and given
Hi, to give the full picture I posted this on the b12 site but looking for your thoughts on the thyroid part of it please ... Prior to having covid in Dec 2020, I was physically fit and healthy. Started Sertraline in Nov 2017 for severe pmt. Gave birth in Oct 2018, was induced with hormones and given
B12-118
in
Thyroid UK
2 years ago
Advice on latest lab please?
Just wondering if you could give advice on my last bloods? I feel ok, not swelling, but can not loose weight at all. I stop feel always cold, but my heart rate increase to 85/min I used NDT 3 years, was great, but the factory was closed, and I can not buy anymore lacto free NDT (without prescription)
Just wondering if you could give advice on my last bloods? I feel ok, not swelling, but can not loose weight at all. I stop feel always cold, but my heart rate increase to 85/min I used NDT 3 years, was great, but the factory was closed, and I can not buy anymore lacto free NDT (without prescription)
BC99
in
Thyroid UK
2 years ago
New England Journal of Medicine tweets video about implanted spinal neurostimulator for MSA to treat orthostatic hypotension
"Patients with multiple-system atrophy often have debilitating orthostatic hypotension. An implanted spinal cord stimulator could help to manage this hypotension and related syncope. New research findings are summarized in a short video. " https://twitter.com/Dysautonomia/status/1514920435598700553?s
"Patients with multiple-system atrophy often have debilitating orthostatic hypotension. An implanted spinal cord stimulator could help to manage this hypotension and related syncope. New research findings are summarized in a short video. " https://twitter.com/Dysautonomia/status/1514920435598700553?s
Rhyothemis
in
Multiple System Atrophy Trust
2 years ago
Negative ANA Test
My ANA was negative but asking biopsy was positive for interface dermatitis ???? the skin doctor said possibly cutaneous lupus. Is it possible to have it on skin only and not in the blood?
My ANA was negative but asking biopsy was positive for interface dermatitis ???? the skin doctor said possibly cutaneous lupus. Is it possible to have it on skin only and not in the blood?
nicole3828
in
LUPUS UK
2 years ago
Factors Associated with Falls During Hospitalization for Coronavirus Disease 2019 (COVID-19)
Having today written on another post, lamenting the ignoring of thyroid issues, I find this paper which shows commendable inquisitiveness and interesting observations. Although the population investigated was small, I find the difference in TSH between the fallers and the non-fallers very interesting
Having today written on another post, lamenting the ignoring of thyroid issues, I find this paper which shows commendable inquisitiveness and interesting observations. Although the population investigated was small, I find the difference in TSH between the fallers and the non-fallers very interesting
helvella
Thyroid UK
in
Thyroid UK
2 years ago
What medication do people find most helps their lupus ? Can no longer take HCQ
I've given it a good try with the HCQ, no doubt it works as well, but for me with lupus brain damage, traumatic brain injury and a previous brain haemorrhage setting off seizures last year, as many of you know, the HCQ is unfortunately causing too many seizures by reducing my seizure threshold. After
I've given it a good try with the HCQ, no doubt it works as well, but for me with lupus brain damage, traumatic brain injury and a previous brain haemorrhage setting off seizures last year, as many of you know, the HCQ is unfortunately causing too many seizures by reducing my seizure threshold. After
LottieLou96
in
LUPUS UK
2 years ago
Malar rash diagnosis/confirmation
I am ANA positive plus Ds DNA (May be spelled wrong !) also pretty severe Raynauds. I also have what appears to be a Malar Rash.My Rheumy has referred me to dermatology but the wait time is incredibly long/ Have any of you sought a private Dermatologist ? I feel my treatment/care plan is at a standstill
I am ANA positive plus Ds DNA (May be spelled wrong !) also pretty severe Raynauds. I also have what appears to be a Malar Rash.My Rheumy has referred me to dermatology but the wait time is incredibly long/ Have any of you sought a private Dermatologist ? I feel my treatment/care plan is at a standstill
DottyLotty999
in
LUPUS UK
2 years ago
Some Questions
Hello all. My husband (GL 9, PSA 77, 3-4 bone mets-diagnosed 8/19 - Casodex, Eligard, Zytiga/prednisone, plus radiation) had a CT and bone scan yesterday. Nothing of consequence on the CT. Bone scan showed “Focus of minimally increased uptake in T7 decreased conspicuity. No other significant interval
Hello all. My husband (GL 9, PSA 77, 3-4 bone mets-diagnosed 8/19 - Casodex, Eligard, Zytiga/prednisone, plus radiation) had a CT and bone scan yesterday. Nothing of consequence on the CT. Bone scan showed “Focus of minimally increased uptake in T7 decreased conspicuity. No other significant interval
Dett
in
Advanced Prostate Cancer
2 years ago
Still more questions than answers.
I will be getting my second dose of Lu 177. So far sooooo...... painful although fentanyl is my friend, pain has been managed as of late, My labs are good except one my Alk phos is 1598, I was told by a oncologist this is just a number and dont lose sleep over it, given the treatment I am involved in
I will be getting my second dose of Lu 177. So far sooooo...... painful although fentanyl is my friend, pain has been managed as of late, My labs are good except one my Alk phos is 1598, I was told by a oncologist this is just a number and dont lose sleep over it, given the treatment I am involved in
Costarica1961
in
Advanced Prostate Cancer
2 years ago
Who knows about ferritin/ iron tests? Confused here! Do I need to do something? Help please!
I get confused with ferritin and iron results, as I can't remember how they work together. Ferritin is low, but haemoglobin is ok? My GP marked everything 'normal'. I'd be grateful for some explanation and advice on what to do please! I have felt more tired. In fact absolutely exhausted a couple of
I get confused with ferritin and iron results, as I can't remember how they work together. Ferritin is low, but haemoglobin is ok? My GP marked everything 'normal'. I'd be grateful for some explanation and advice on what to do please! I have felt more tired. In fact absolutely exhausted a couple of
TaraJR
in
Thyroid UK
2 years ago
Video spinal cord stimulation and PD
https://youtu.be/iMtzq3UxhTY
https://youtu.be/iMtzq3UxhTY
House2
in
Cure Parkinson's
2 years ago
Lost in Autoimmune Land: If my labs are so good, why do I still feel so bad?
Hello, All! Yesterday had my first in-person visit with my rheumatologist in a year and a half. I handed him a 3- page synopsis of all my joint and related issues (only because I would kick myself later for having forgotten certain points!), and had an alarming number of vials of blood drawn. Most
Hello, All! Yesterday had my first in-person visit with my rheumatologist in a year and a half. I handed him a 3- page synopsis of all my joint and related issues (only because I would kick myself later for having forgotten certain points!), and had an alarming number of vials of blood drawn. Most
RxMe
in
Sjogren's Support
2 years ago
Not all The lu 177 side effects noted, that I have experienced were in the Broschüre.
I had my first dose on feb 23rd and the first few days after treatment with no real issues, until, about day 4. I experienced nausea , vomiting, and lower back pain as well as rib and thigh pains accompanied by neck and cranium discomfort. My stomach is cramping some of these side effects are normal
I had my first dose on feb 23rd and the first few days after treatment with no real issues, until, about day 4. I experienced nausea , vomiting, and lower back pain as well as rib and thigh pains accompanied by neck and cranium discomfort. My stomach is cramping some of these side effects are normal
Costarica1961
in
Advanced Prostate Cancer
2 years ago
Update and first time referral to a neph...
Hi everyone, This is my second post. My first post, my husband had been leaking protein and was told it would go away. A year later, he still has it. Now he's being referred to a Nephrologist for the first time. Does anyone have any suggestions or tips on what to ask? He's not diabetic and his blood
Hi everyone, This is my second post. My first post, my husband had been leaking protein and was told it would go away. A year later, he still has it. Now he's being referred to a Nephrologist for the first time. Does anyone have any suggestions or tips on what to ask? He's not diabetic and his blood
Bananas2007
in
Kidney Disease
2 years ago
What now, coach? (PCa has spread to liver within 3 months of starting Eligard.)
Hello all, I have a dilemma, and I would definitely appreciate any ideas that you might have. The dilemma is, will it be safe for me to start my initial Docetaxel treatments on Monday, 2-28-22, considering the new information I now have showing my PCa has rather dramatically spread to my liver. Below
Hello all, I have a dilemma, and I would definitely appreciate any ideas that you might have. The dilemma is, will it be safe for me to start my initial Docetaxel treatments on Monday, 2-28-22, considering the new information I now have showing my PCa has rather dramatically spread to my liver. Below
Skipper238
in
Advanced Prostate Cancer
2 years ago
Cost of Interferon Alfa 2a
Does Interferon Alfa 2a (Pegasus) cost $1000 for 180mcg/ml ?? Without insurance?
Does Interferon Alfa 2a (Pegasus) cost $1000 for 180mcg/ml ?? Without insurance?
MrThara
in
MPN Voice
2 years ago
CD19 CAR-T cell therapy for B-ALL achieved remarkable efficacy with a complete remission of 70–90%
This looks interesting but way over my knowledge base. Perhaps some of you super brains can figure this out. In recent years, the increasing advancements and applications of cellular immunotherapy have enabled the use of chimeric antigen receptor (CAR) T cell therapy, and it has emerged as an efficacious
This looks interesting but way over my knowledge base. Perhaps some of you super brains can figure this out. In recent years, the increasing advancements and applications of cellular immunotherapy have enabled the use of chimeric antigen receptor (CAR) T cell therapy, and it has emerged as an efficacious
Scout4answers
in
Advanced Prostate Cancer
2 years ago
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