Search
Search
About
Log in
Join
Experiences with
Ala-Cort
Posts
Communities
1,749 public posts
Filter results
Side Effects of Niraparib (ZEJULA)?
While I await the results of my genetic test to see if I have the DNA repair defect to allow me to participate in the AMPLITUDE clinical trial, I have been looking at the SEs for Niraparib and they don’t look very pleasant, so I wondered if anyone has used it and has personal experience to share?
While I await the results of my genetic test to see if I have the DNA repair defect to allow me to participate in the AMPLITUDE clinical trial, I have been looking at the SEs for Niraparib and they don’t look very pleasant, so I wondered if anyone has used it and has personal experience to share?
Benkaymel
in
Advanced Prostate Cancer
2 years ago
Honouring the Divine Masculine
Harnessing the power of Sun. Surya is Sanskrit for Sun. Surya Namaskar - salutation to the Sun. We recently moved though Summer Solstice here in the Northern Hemisphere. 21st June 2022. A potent day. How fitting too that Fathers Day falls so very close to Summer Solstice.. The longest day of light.
Harnessing the power of Sun. Surya is Sanskrit for Sun. Surya Namaskar - salutation to the Sun. We recently moved though Summer Solstice here in the Northern Hemisphere. 21st June 2022. A potent day. How fitting too that Fathers Day falls so very close to Summer Solstice.. The longest day of light.
WhollyAligned
Administrator
in
Nutrition and Yoga for Health
2 years ago
Has anyone had a similar journey?
Hello everyone, My name is Mac and I’ve been struggling with various health complaints for a couple of years. In December 2021 they got particularly bad, and I’ve basically had a consistent low to middle grade fever for 7 months straight. My muscles and joints are all quite sore and after a day of work
Hello everyone, My name is Mac and I’ve been struggling with various health complaints for a couple of years. In December 2021 they got particularly bad, and I’ve basically had a consistent low to middle grade fever for 7 months straight. My muscles and joints are all quite sore and after a day of work
Tinylittlemac
in
LUPUS UK
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
FDA Clears New Antibody Test to Help in SLE Diagnosis
Marta Figueiredo, PhD | June 16, 2022 Thermo Fisher Scientific has received regulatory authorization in the U.S. to market its EliA Rib-P blood test, designed to improve the diagnosis of systemic lupus erythematosus (SLE), particularly in patients without hallmark antinuclear antibodies (ANAs). The
Marta Figueiredo, PhD | June 16, 2022 Thermo Fisher Scientific has received regulatory authorization in the U.S. to market its EliA Rib-P blood test, designed to improve the diagnosis of systemic lupus erythematosus (SLE), particularly in patients without hallmark antinuclear antibodies (ANAs). The
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
anyone advise what these results mean?
i had a rather delayed diabetes checkup where they did a full blood work everything came back ok except for liver, doctors want to see me in a month so currently getting stressed (hopefully over nothing) my results are below Liver function tests Serum alanine aminotransferase level 71 u/L
i had a rather delayed diabetes checkup where they did a full blood work everything came back ok except for liver, doctors want to see me in a month so currently getting stressed (hopefully over nothing) my results are below Liver function tests Serum alanine aminotransferase level 71 u/L
Paw1983
in
British Liver Trust
2 years ago
I'm getting a Spinal Cord Stimulator in Two weeks.
Hi, I'm new here. In 2 weeks I get a permanent SCS implant, and am so excited . I had the 7 day trial application, and to my astonishment, was relatively pain free for the first time in 10 years. Are there any others here with the SCS? My other chronic illness is PMR, which I developed in 2013.
Hi, I'm new here. In 2 weeks I get a permanent SCS implant, and am so excited . I had the 7 day trial application, and to my astonishment, was relatively pain free for the first time in 10 years. Are there any others here with the SCS? My other chronic illness is PMR, which I developed in 2013.
Purplecrow
in
Neuro Support
2 years ago
interpreting my blood test results
Hello again I posted here about a month ago, and received really useful information about what blood tests for hypothyroidism should reveal. I have now had the results of the tests, which are quite lengthy, but do not seem to have any information on T3 and T4 levels. Please could some wise person comment
Hello again I posted here about a month ago, and received really useful information about what blood tests for hypothyroidism should reveal. I have now had the results of the tests, which are quite lengthy, but do not seem to have any information on T3 and T4 levels. Please could some wise person comment
humlies
in
Thyroid UK
2 years ago
AMA negative but ANA positive
Hi there, I was diagnosed with PBC just over two years ago, which was such a shock to me me as I had no idea about this condition (only visited doctor for a routine check-up 😧!!) Have been on Urso ( 2 years) but my ALP and GGT are still high!! Had biopsy and fibroscan 10.1 Specialist says I am
Hi there, I was diagnosed with PBC just over two years ago, which was such a shock to me me as I had no idea about this condition (only visited doctor for a routine check-up 😧!!) Have been on Urso ( 2 years) but my ALP and GGT are still high!! Had biopsy and fibroscan 10.1 Specialist says I am
Liz_K
in
PBC Foundation
2 years ago
Feel lost
Hi all just looking for some advice if possible please. Has anyone had lupus diagnosed without a positive ana ? I have all the symptoms aside from swelling but the rheumatologist has now diagnosed fibromyalgia due to no positive ana. My liver enzymes have been raised since 2014 and I've been having symptoms
Hi all just looking for some advice if possible please. Has anyone had lupus diagnosed without a positive ana ? I have all the symptoms aside from swelling but the rheumatologist has now diagnosed fibromyalgia due to no positive ana. My liver enzymes have been raised since 2014 and I've been having symptoms
Haylz2109
in
LUPUS UK
2 years ago
Heart rate over 100. Should I lower or up my Levo??
Hi I was wondering if someone had any advice on whether or not I should lower or up my Levo dose? I had upped from 100mg to 112.5 mg beginning of June, but my heart-rate just keeps going over 100bpm when I’m not doing anything. I’m still tired and feel as if I just can’t be bothered. I’ve been sitting
Hi I was wondering if someone had any advice on whether or not I should lower or up my Levo dose? I had upped from 100mg to 112.5 mg beginning of June, but my heart-rate just keeps going over 100bpm when I’m not doing anything. I’m still tired and feel as if I just can’t be bothered. I’ve been sitting
HappyBadger
in
Thyroid UK
2 years ago
TSH high end, B12 deficiency, perimenopausal starting HRT soon.. what's what with all the bloods please?
Hi, to give the full picture I posted this on the b12 site but looking for your thoughts on the thyroid part of it please ... Prior to having covid in Dec 2020, I was physically fit and healthy. Started Sertraline in Nov 2017 for severe pmt. Gave birth in Oct 2018, was induced with hormones and given
Hi, to give the full picture I posted this on the b12 site but looking for your thoughts on the thyroid part of it please ... Prior to having covid in Dec 2020, I was physically fit and healthy. Started Sertraline in Nov 2017 for severe pmt. Gave birth in Oct 2018, was induced with hormones and given
B12-118
in
Thyroid UK
2 years ago
Advice on latest lab please?
Just wondering if you could give advice on my last bloods? I feel ok, not swelling, but can not loose weight at all. I stop feel always cold, but my heart rate increase to 85/min I used NDT 3 years, was great, but the factory was closed, and I can not buy anymore lacto free NDT (without prescription)
Just wondering if you could give advice on my last bloods? I feel ok, not swelling, but can not loose weight at all. I stop feel always cold, but my heart rate increase to 85/min I used NDT 3 years, was great, but the factory was closed, and I can not buy anymore lacto free NDT (without prescription)
BC99
in
Thyroid UK
2 years ago
New England Journal of Medicine tweets video about implanted spinal neurostimulator for MSA to treat orthostatic hypotension
"Patients with multiple-system atrophy often have debilitating orthostatic hypotension. An implanted spinal cord stimulator could help to manage this hypotension and related syncope. New research findings are summarized in a short video. " https://twitter.com/Dysautonomia/status/1514920435598700553?s
"Patients with multiple-system atrophy often have debilitating orthostatic hypotension. An implanted spinal cord stimulator could help to manage this hypotension and related syncope. New research findings are summarized in a short video. " https://twitter.com/Dysautonomia/status/1514920435598700553?s
Rhyothemis
in
Multiple System Atrophy Trust
2 years ago
Negative ANA Test
My ANA was negative but asking biopsy was positive for interface dermatitis ???? the skin doctor said possibly cutaneous lupus. Is it possible to have it on skin only and not in the blood?
My ANA was negative but asking biopsy was positive for interface dermatitis ???? the skin doctor said possibly cutaneous lupus. Is it possible to have it on skin only and not in the blood?
nicole3828
in
LUPUS UK
2 years ago
Factors Associated with Falls During Hospitalization for Coronavirus Disease 2019 (COVID-19)
Having today written on another post, lamenting the ignoring of thyroid issues, I find this paper which shows commendable inquisitiveness and interesting observations. Although the population investigated was small, I find the difference in TSH between the fallers and the non-fallers very interesting
Having today written on another post, lamenting the ignoring of thyroid issues, I find this paper which shows commendable inquisitiveness and interesting observations. Although the population investigated was small, I find the difference in TSH between the fallers and the non-fallers very interesting
helvella
Thyroid UK
in
Thyroid UK
2 years ago
What medication do people find most helps their lupus ? Can no longer take HCQ
I've given it a good try with the HCQ, no doubt it works as well, but for me with lupus brain damage, traumatic brain injury and a previous brain haemorrhage setting off seizures last year, as many of you know, the HCQ is unfortunately causing too many seizures by reducing my seizure threshold. After
I've given it a good try with the HCQ, no doubt it works as well, but for me with lupus brain damage, traumatic brain injury and a previous brain haemorrhage setting off seizures last year, as many of you know, the HCQ is unfortunately causing too many seizures by reducing my seizure threshold. After
LottieLou96
in
LUPUS UK
2 years ago
Malar rash diagnosis/confirmation
I am ANA positive plus Ds DNA (May be spelled wrong !) also pretty severe Raynauds. I also have what appears to be a Malar Rash.My Rheumy has referred me to dermatology but the wait time is incredibly long/ Have any of you sought a private Dermatologist ? I feel my treatment/care plan is at a standstill
I am ANA positive plus Ds DNA (May be spelled wrong !) also pretty severe Raynauds. I also have what appears to be a Malar Rash.My Rheumy has referred me to dermatology but the wait time is incredibly long/ Have any of you sought a private Dermatologist ? I feel my treatment/care plan is at a standstill
DottyLotty999
in
LUPUS UK
2 years ago
Some Questions
Hello all. My husband (GL 9, PSA 77, 3-4 bone mets-diagnosed 8/19 - Casodex, Eligard, Zytiga/prednisone, plus radiation) had a CT and bone scan yesterday. Nothing of consequence on the CT. Bone scan showed “Focus of minimally increased uptake in T7 decreased conspicuity. No other significant interval
Hello all. My husband (GL 9, PSA 77, 3-4 bone mets-diagnosed 8/19 - Casodex, Eligard, Zytiga/prednisone, plus radiation) had a CT and bone scan yesterday. Nothing of consequence on the CT. Bone scan showed “Focus of minimally increased uptake in T7 decreased conspicuity. No other significant interval
Dett
in
Advanced Prostate Cancer
2 years ago
Still more questions than answers.
I will be getting my second dose of Lu 177. So far sooooo...... painful although fentanyl is my friend, pain has been managed as of late, My labs are good except one my Alk phos is 1598, I was told by a oncologist this is just a number and dont lose sleep over it, given the treatment I am involved in
I will be getting my second dose of Lu 177. So far sooooo...... painful although fentanyl is my friend, pain has been managed as of late, My labs are good except one my Alk phos is 1598, I was told by a oncologist this is just a number and dont lose sleep over it, given the treatment I am involved in
Costarica1961
in
Advanced Prostate Cancer
2 years ago
Who knows about ferritin/ iron tests? Confused here! Do I need to do something? Help please!
I get confused with ferritin and iron results, as I can't remember how they work together. Ferritin is low, but haemoglobin is ok? My GP marked everything 'normal'. I'd be grateful for some explanation and advice on what to do please! I have felt more tired. In fact absolutely exhausted a couple of
I get confused with ferritin and iron results, as I can't remember how they work together. Ferritin is low, but haemoglobin is ok? My GP marked everything 'normal'. I'd be grateful for some explanation and advice on what to do please! I have felt more tired. In fact absolutely exhausted a couple of
TaraJR
in
Thyroid UK
2 years ago
1
...
10
11
12
...
88
Next page
10
20
30
40
50
60
70
80
Filter results
Clear filters
Posted in
All communities
LUPUS UK
503 results
Thyroid UK
279 results
PBC Foundation
122 results
View top 10 communities
Sort by
Most Relevant
Newest