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Lupus Anticoagulant testing while on Warfarin
I have searched the group but I do not seem to find what I need to know. If your hematologist insist on testing for Lupus Anticoagulant how many days must you stop warfarin before the test? The hematologist says that the DVRTT test works without stopping Warfarin. But I have read many times that while
I have searched the group but I do not seem to find what I need to know. If your hematologist insist on testing for Lupus Anticoagulant how many days must you stop warfarin before the test? The hematologist says that the DVRTT test works without stopping Warfarin. But I have read many times that while
Raw57
in
Hughes Syndrome APS Forum
1 year ago
ALP and when to add 2nd line therapy
I was diagnosed Feb. 2022 ALP was 307. Started URSO right away. ALP went down quickly - In July 2022 it was 107 but October 2022 was 119 and April 2023 was 120. So my specialist wanted to add ocaliva. I convinced him to give it another 6 months before adding anything and he agreed. So I am praying
I was diagnosed Feb. 2022 ALP was 307. Started URSO right away. ALP went down quickly - In July 2022 it was 107 but October 2022 was 119 and April 2023 was 120. So my specialist wanted to add ocaliva. I convinced him to give it another 6 months before adding anything and he agreed. So I am praying
Heaslea
in
PBC Foundation
1 year ago
end of he line
Since diagnosis in 2018, I have pretty much run the gamut of affordable SOC treatments and I finally got my Onco to agree that the treatments were doing more harm than good (based on side effects and endlessly climbing PSA). I have continual gut pain. Is this type of pain what we hear about as
Since diagnosis in 2018, I have pretty much run the gamut of affordable SOC treatments and I finally got my Onco to agree that the treatments were doing more harm than good (based on side effects and endlessly climbing PSA). I have continual gut pain. Is this type of pain what we hear about as
Frigataflyer
in
Advanced Prostate Cancer
1 year ago
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androgen receptor inhibitor for nmCRPC
So if you become castration resistant. Your PCa will grow without androgen. Your MO will recommend an androgen receptor inhibitor. Why bother inhibiting PCa androgen receptors if it can survive without androgen?? Confused.
So if you become castration resistant. Your PCa will grow without androgen. Your MO will recommend an androgen receptor inhibitor. Why bother inhibiting PCa androgen receptors if it can survive without androgen?? Confused.
Hidden
in
Advanced Prostate Cancer
1 year ago
Minoxidil
As most of you can relate to, I have given up so much in my life due to RLS. Every possible RLS trigger is in fact a trigger for me. I have given up HRT, SSRIs, statins, caffeine, alcohol, spicy foods (I used to put fresh jalapeno peppers on EVERYTHING), sugar, all processed foods, most carbs, and the
As most of you can relate to, I have given up so much in my life due to RLS. Every possible RLS trigger is in fact a trigger for me. I have given up HRT, SSRIs, statins, caffeine, alcohol, spicy foods (I used to put fresh jalapeno peppers on EVERYTHING), sugar, all processed foods, most carbs, and the
Birdland
in
Restless Legs Syndrome
1 year ago
Why the Hesitancy in Recommending Combination T3/T4 Therapy?
Found this recent interview with Antonio Bianco MD PhD from 25 May 2023 https://www.medscape.com/viewarticle/989985?ecd=wnl_edit_tpal&uac=308298BV&impID=5466843&faf=1#vp_1 Disappointed that he still regards a "normal" TSH as the overriding consideration before all others...
Found this recent interview with Antonio Bianco MD PhD from 25 May 2023 https://www.medscape.com/viewarticle/989985?ecd=wnl_edit_tpal&uac=308298BV&impID=5466843&faf=1#vp_1 Disappointed that he still regards a "normal" TSH as the overriding consideration before all others...
Zephyrbear
in
Thyroid UK
1 year ago
effusion pleural
just shoked CT scan for chest… nothing found and 1.5cm efflusion in right pleural spece is it cancer efflusion correct? Who had such and is ir big or not? 2 month ago scan ther was clear :(((
just shoked CT scan for chest… nothing found and 1.5cm efflusion in right pleural spece is it cancer efflusion correct? Who had such and is ir big or not? 2 month ago scan ther was clear :(((
Inguc_is
in
My Ovacome
1 year ago
Medication Storage Ideas?
Hi. There's lots of ideas from other countries that create neat medication storage for mostly bottles but in Britain it's not the way most meds are prescribed to most adults. I'd love to hear your solutions to storing lots of meds in varying (including month to month - mine are a mix of fortnightly
Hi. There's lots of ideas from other countries that create neat medication storage for mostly bottles but in Britain it's not the way most meds are prescribed to most adults. I'd love to hear your solutions to storing lots of meds in varying (including month to month - mine are a mix of fortnightly
Paradigm
in
Asthma Community Forum
1 year ago
Temgesic/Buprenorphine
Hello everyone - especially those of you on Temgesic or buprenorphine in sublingual form. Shumbah posted recently about the short half life of Temgesic as opposed to plain buprenorphine hydrochloride. At that time I did not respond as I was back on oxycodone as per suggestion of my neurologist. However
Hello everyone - especially those of you on Temgesic or buprenorphine in sublingual form. Shumbah posted recently about the short half life of Temgesic as opposed to plain buprenorphine hydrochloride. At that time I did not respond as I was back on oxycodone as per suggestion of my neurologist. However
Jelbea
in
Restless Legs Syndrome
1 year ago
Hypothyroidism and Somatization: Results from E-Mode Patient Self-Assessment of Thyroid Therapy
This newly published paper will go down like the proverbial lead balloon with members here. I had thought (hoped) that Weetman had retired but he is still around. You can bet that the last line of the conclusion: “[i]SSD may be an important determinant of dissatisfaction with treatment and care among
This newly published paper will go down like the proverbial lead balloon with members here. I had thought (hoped) that Weetman had retired but he is still around. You can bet that the last line of the conclusion: “[i]SSD may be an important determinant of dissatisfaction with treatment and care among
helvella
Thyroid UK
in
Thyroid UK
1 year ago
Red light therapy trial results
In the study out of Australia, the new infrared light therapy helmet on patients living with Parkinson's helped improve facial expression, upper limb coordination and movement, lower limb coordination and movement, walking gait, and tremor https://medicalxpress.com/news/2023-04-parkinson-laser-helmet-therapy-motor.amp
In the study out of Australia, the new infrared light therapy helmet on patients living with Parkinson's helped improve facial expression, upper limb coordination and movement, lower limb coordination and movement, walking gait, and tremor https://medicalxpress.com/news/2023-04-parkinson-laser-helmet-therapy-motor.amp
Farooqji
in
Cure Parkinson's
1 year ago
Thyroid or Post Polio
I have already posted on in this community and have had very helpful advice on hypo issues for which I am really grateful. However I also have post polio syndrome so I am never sure if the painful tired legs are the symptoms of hypo or PP or both 😟 just wanted to share this with you 💟
I have already posted on in this community and have had very helpful advice on hypo issues for which I am really grateful. However I also have post polio syndrome so I am never sure if the painful tired legs are the symptoms of hypo or PP or both 😟 just wanted to share this with you 💟
Carri3
in
Thyroid UK
1 year ago
emphysema results
hi everyone I have emphysema . Just had a spirometry test and my results are Fev1 =50%/1.16 Fev1/Fev6 =0.67/87% fev6 =62% how bad is this? Does it mean I only have half lung capacity? How is everyone managing at this level?
hi everyone I have emphysema . Just had a spirometry test and my results are Fev1 =50%/1.16 Fev1/Fev6 =0.67/87% fev6 =62% how bad is this? Does it mean I only have half lung capacity? How is everyone managing at this level?
Usedtodance
in
Lung Conditions Community Forum
2 years ago
osteopenia worse, im on enoxaparin/ lovenox any thoughts on vitk2?
I had repeat dexascan says my hips are getting worse, anyone on enoxaparin/lovenox taking vit k2 for “calcium to bone absorption”? Docs are talking about fosamex, etc, but I would rather do vitamins if possible. Not looking for medical advice but would like to know if others with APS are taking it
I had repeat dexascan says my hips are getting worse, anyone on enoxaparin/lovenox taking vit k2 for “calcium to bone absorption”? Docs are talking about fosamex, etc, but I would rather do vitamins if possible. Not looking for medical advice but would like to know if others with APS are taking it
Wittycjt
in
Hughes Syndrome APS Forum
2 years ago
problem with hair
need desperate views, I was diagnosed last year since then my hair has been flyaway and unmanageable an suggestions for best shampoo to use.
need desperate views, I was diagnosed last year since then my hair has been flyaway and unmanageable an suggestions for best shampoo to use.
Melcol
in
Thyroid UK
1 year ago
billionaires
i dot know how many of you heard the " Doc vs Parkinson's" story A doctor who paid almost 20 million dollars to get a stem cell transplant of brain about 3 years ago. He had PD for 15 years and now his symptoms are reversing. Are people with money, power and PD are getting efficient treatment and
i dot know how many of you heard the " Doc vs Parkinson's" story A doctor who paid almost 20 million dollars to get a stem cell transplant of brain about 3 years ago. He had PD for 15 years and now his symptoms are reversing. Are people with money, power and PD are getting efficient treatment and
Rupa88
in
Cure Parkinson's
1 year ago
Hello - my 'Mum' has Idiopathic pulmonary fibrosis
Hi. My auntie who I have had a close mother-daughter type relationship for all my life (I'm 50, she's 80) started showing strong symptoms in late 2021 and was diagnosed last year with Idiopathic pulmonary fibrosis. She is now housebound on 24hr oxygen therapy with carers coming in and lots of visits
Hi. My auntie who I have had a close mother-daughter type relationship for all my life (I'm 50, she's 80) started showing strong symptoms in late 2021 and was diagnosed last year with Idiopathic pulmonary fibrosis. She is now housebound on 24hr oxygen therapy with carers coming in and lots of visits
Daisywendy
in
Lung Conditions Community Forum
2 years ago
Has anyone used Alpha Logic Acid, or L Tyrosine to treat RLS/PLMD.
I just recently started using both Alpha Lopic Acid, as well as L Tyrosine Twice daily. So fare I can’t seen to tell if there working? But, at the same time I’m going through a very serious detox Protocol after being prescribed Kolonpine by two separate sleep doctors. I was on the Benzodiazepines for
I just recently started using both Alpha Lopic Acid, as well as L Tyrosine Twice daily. So fare I can’t seen to tell if there working? But, at the same time I’m going through a very serious detox Protocol after being prescribed Kolonpine by two separate sleep doctors. I was on the Benzodiazepines for
Wanman4
in
Restless Legs Syndrome
1 year ago
Hair thinning on steroids
Any thoughts on hair thinning on steroids? I have been on treatment since early December 2022, and am held at 10mgs Prednisone for three months now as my diagnosis has been changed from PMR to Eosinophilic fasciitis. Body hair as well as head hair is thinning. My questions are: does this start to
Any thoughts on hair thinning on steroids? I have been on treatment since early December 2022, and am held at 10mgs Prednisone for three months now as my diagnosis has been changed from PMR to Eosinophilic fasciitis. Body hair as well as head hair is thinning. My questions are: does this start to
YogaJM
in
PMRGCAuk
1 year ago
Advice about hair loss please
Hi, so diagnosed with sub hypo 2 months ago with very raised antibodies. I've been on 50mg levo which was raised due to symptoms after a few weeks so now on 75mg. But while I have seen an improvement in other symptoms my hair is shedding even more. Can anyone advise how long does it take to calm down
Hi, so diagnosed with sub hypo 2 months ago with very raised antibodies. I've been on 50mg levo which was raised due to symptoms after a few weeks so now on 75mg. But while I have seen an improvement in other symptoms my hair is shedding even more. Can anyone advise how long does it take to calm down
Catsrock23
in
Thyroid UK
1 year ago
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