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T Cell treatment
Hi, my good friend, who had bowel cancer ten years ago, was unfortunately diagnosed with ALL about six months ago. He was in remission following chemo, then had stem cell transplant. About a month afterwards things went pear shaped quickly. The leukaemia was back with a vengeance! He is now having T
Hi, my good friend, who had bowel cancer ten years ago, was unfortunately diagnosed with ALL about six months ago. He was in remission following chemo, then had stem cell transplant. About a month afterwards things went pear shaped quickly. The leukaemia was back with a vengeance! He is now having T
Marilyn1959
in
Leukaemia Support
6 years ago
Advice if possible please
Hi all Sorry for the long post! I’ve posted a couple of times in the PA forum as have been having blood tests relating to low B12 as had a borderline serum result 192 (181-800) and range of symptoms pointing towards this - tingling and numbness in hands and feet, occasional tingling in head and back
Hi all Sorry for the long post! I’ve posted a couple of times in the PA forum as have been having blood tests relating to low B12 as had a borderline serum result 192 (181-800) and range of symptoms pointing towards this - tingling and numbness in hands and feet, occasional tingling in head and back
Scully12
in
Thyroid UK
6 years ago
Recent SLL/CLL Patient Question
Hello. I found out I have SLL/CLL earlier this year at 31. I had Rituxan treatment shortly after since I have neutropenia I can't seem to shake. I will save this for another post. My lymph nodes are visible but not huge yet. Since I have 11q I have read it can become a bulky disease. Not sure if they
Hello. I found out I have SLL/CLL earlier this year at 31. I had Rituxan treatment shortly after since I have neutropenia I can't seem to shake. I will save this for another post. My lymph nodes are visible but not huge yet. Since I have 11q I have read it can become a bulky disease. Not sure if they
DriedSeaweed
in
CLL Support
6 years ago
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Very poorly newbie - Desperate for help
Hello everyone... I've been meaning to post on here for a long time but get extremely overwhelmed and have so much that has happened/is happening that I don't know where to start, trying to gather all the information and put it in to words with declining cognitive impairment and extreme fatigue is so
Hello everyone... I've been meaning to post on here for a long time but get extremely overwhelmed and have so much that has happened/is happening that I don't know where to start, trying to gather all the information and put it in to words with declining cognitive impairment and extreme fatigue is so
Flossles
in
Thyroid UK
6 years ago
Relapsed DLBCL
Hi everyone. I have been well since finishing my treatment for DLBCL in Sept 2016 which was 6 cycles of R chop. Pet/ct scan in November 2016 gave me the all clear. Now after having a lump removed from my shoulder it has shown traces of high grade Lymphoma although it has presented differently from the
Hi everyone. I have been well since finishing my treatment for DLBCL in Sept 2016 which was 6 cycles of R chop. Pet/ct scan in November 2016 gave me the all clear. Now after having a lump removed from my shoulder it has shown traces of high grade Lymphoma although it has presented differently from the
Clementslr
in
Non Hodgkin's Lymphoma Friends
6 years ago
PA when IFA and PCA test results are negative
Hi All, I commented on a recent thread that I thought some people had PA even when Intrinsic Factor Antibody test and Parietal Cell Antibody test results were both negative. I speculated that this could be due to an immunoglobulin deficiency leading to inability to produce certain antibodies. I've now
Hi All, I commented on a recent thread that I thought some people had PA even when Intrinsic Factor Antibody test and Parietal Cell Antibody test results were both negative. I speculated that this could be due to an immunoglobulin deficiency leading to inability to produce certain antibodies. I've now
Sleepybunny
in
Pernicious Anaemia Society
6 years ago
GCA and tocilizumab withdrawal
Has anyone given up taking tocilizumab (Actemra) and remained in remission or did you get GCA back. Is there a program to reduce injections in stages?
Has anyone given up taking tocilizumab (Actemra) and remained in remission or did you get GCA back. Is there a program to reduce injections in stages?
christine2715
in
PMRGCAuk
6 years ago
Sickle cell and?
I have sickle cell disease and just found out I have chronic fatigue syndrome also called ME. I wanted to find out what other conditions people are dealing with plus sickle cell and how you cope. I have 3 children so I guess you will have an idea as to how I am struggling to cope.
I have sickle cell disease and just found out I have chronic fatigue syndrome also called ME. I wanted to find out what other conditions people are dealing with plus sickle cell and how you cope. I have 3 children so I guess you will have an idea as to how I am struggling to cope.
jo19
in
Sickle Cell Society
6 years ago
Advice on Diet and supplements to keep in remission
Hello, peace and health to all. This is my first day on this wonderful site. I was diagnosed with Mantle Cell Lymphoma in July 2015 and underwent RCOP and stem cell transplant with my own cells in Dec 2015. I am currently 63 and in remission and feeling pretty well. My doctor says the odds are the
Hello, peace and health to all. This is my first day on this wonderful site. I was diagnosed with Mantle Cell Lymphoma in July 2015 and underwent RCOP and stem cell transplant with my own cells in Dec 2015. I am currently 63 and in remission and feeling pretty well. My doctor says the odds are the
Maltipoo
in
Non Hodgkin's Lymphoma Friends
6 years ago
Molecular Improvement – Exercise, & Dietary Regime or Medication(?)
Morning/Gooday/Good Evening (?)... :-) To all my MPN cousins, wherever you might be located… Recently, I underwent my second BMB, in preparation for the consideration of undergoing an Allogenic Stem Cell Transplant (ASCT), as in February 2018 I learned that I also have the ASXL1 mutation as well as
Morning/Gooday/Good Evening (?)... :-) To all my MPN cousins, wherever you might be located… Recently, I underwent my second BMB, in preparation for the consideration of undergoing an Allogenic Stem Cell Transplant (ASCT), as in February 2018 I learned that I also have the ASXL1 mutation as well as
socrates_8
in
MPN Voice
6 years ago
Any ideas?
Hi. I have joined this community to seek some idea as to what to expect for my friend. He was diagnosed with ALL earlier this year. All very sudden. He went through chemo regimes and subsequent stem cell transplant two months ago. All bloods and recovery going well. Last bloods about a week ago - all
Hi. I have joined this community to seek some idea as to what to expect for my friend. He was diagnosed with ALL earlier this year. All very sudden. He went through chemo regimes and subsequent stem cell transplant two months ago. All bloods and recovery going well. Last bloods about a week ago - all
Marilyn1959
in
Leukaemia Support
6 years ago
"9 out of 10 doctors on our payroll, recommend this product!" ~ Big Pharma : (
Oh Goody!!! Bio-Thera Solutions, a global biotechnology company based in Guangzhou, China, recently announced that it has initiated a phase 1 clinical trial for BAT1806, a proposed tocilizumab (Actemra) biosimilar. Just what the world needs another Valsartan disaster! https://www.centerforbiosimilars.com
Oh Goody!!! Bio-Thera Solutions, a global biotechnology company based in Guangzhou, China, recently announced that it has initiated a phase 1 clinical trial for BAT1806, a proposed tocilizumab (Actemra) biosimilar. Just what the world needs another Valsartan disaster! https://www.centerforbiosimilars.com
Hidden
in
PMRGCAuk
6 years ago
IVF with donor eggs, previous stem cell transplant and early menopause
Hi ladies Im not sure if you will be able to give any advice but 14 years ago i had leukaemia and my treatment involved chemo and total body radiation for stem cell transplant. My periods stopped straight away and i went into early menopause at 20! I went to see a fertility clinic years ago as i was
Hi ladies Im not sure if you will be able to give any advice but 14 years ago i had leukaemia and my treatment involved chemo and total body radiation for stem cell transplant. My periods stopped straight away and i went into early menopause at 20! I went to see a fertility clinic years ago as i was
Caitlyn84
in
Fertility Network UK
6 years ago
Sickle Cell News - July-September 2018 Edition
Major Stories: 1. Trailblazing Myth-Breaker: Police Sergeant Winston Mmagu lives with sickle cell anaemia – how, how does he cope?! 2. Canada Celebrates 1st official Sickle Cell Day. 3. Genetics Professor Cyril Otoikhian throws damper on World Sickle Cell Day celebrations in Nigeria. Universally
Major Stories: 1. Trailblazing Myth-Breaker: Police Sergeant Winston Mmagu lives with sickle cell anaemia – how, how does he cope?! 2. Canada Celebrates 1st official Sickle Cell Day. 3. Genetics Professor Cyril Otoikhian throws damper on World Sickle Cell Day celebrations in Nigeria. Universally
sicklecellnews
in
Sickle Cell Society
6 years ago
MPN RESEARCH FOUNDATION LAUNCHES STEM CELL TRANSPLANT TIMING TOOL FOR MPN PATIENTS WITH MF
A new tool to improve stem cell transplant outcomes was announced today by the MPN Research Foundation (MPNRF). The SCT Spectrum Transplant Timing tool (SSTT) was created to facilitate communication between myelofibrosis patients and their physicians. The SSTT is a portable on-line tool based on a
A new tool to improve stem cell transplant outcomes was announced today by the MPN Research Foundation (MPNRF). The SCT Spectrum Transplant Timing tool (SSTT) was created to facilitate communication between myelofibrosis patients and their physicians. The SSTT is a portable on-line tool based on a
Mazcd
MPNVoice
in
MPN Voice
6 years ago
Getting there,!!
Almost 9 months since my stem cell transplant tho still breathless getting stronger and being more positive daily,!!
Almost 9 months since my stem cell transplant tho still breathless getting stronger and being more positive daily,!!
Topteam
in
Leukaemia Support
6 years ago
Aml.
In 2014 I was diagnosed with aml was lucky enough to go into remission after two cycles of chemo but still needed bone marrow transplant which I had in the August 2014.after few set backs mainly with gvhd of the skin things are going well .
In 2014 I was diagnosed with aml was lucky enough to go into remission after two cycles of chemo but still needed bone marrow transplant which I had in the August 2014.after few set backs mainly with gvhd of the skin things are going well .
Islay55
in
Leukaemia Support
6 years ago
GCA and clinical trials
I was just diagnosed Great cell Arteritise, I am currently on prednisone. I have an opportunity to joint a clinical trial group, that combines prednisone and Stelara. Has anyone had any experience with clinical trial using drug combinations?
I was just diagnosed Great cell Arteritise, I am currently on prednisone. I have an opportunity to joint a clinical trial group, that combines prednisone and Stelara. Has anyone had any experience with clinical trial using drug combinations?
golf26
in
PMRGCAuk
6 years ago
GCA and people not understanding
I have just come back from a wonderful but tiring holiday in Cornwall. I am so much better now I am on Tocilizumab but still not my old self. This was the first time I have been taking it fortnightly, by injection. rather than weekly and I was told I was not to do too much. I had a long day visiting
I have just come back from a wonderful but tiring holiday in Cornwall. I am so much better now I am on Tocilizumab but still not my old self. This was the first time I have been taking it fortnightly, by injection. rather than weekly and I was told I was not to do too much. I had a long day visiting
christine2715
in
PMRGCAuk
6 years ago
Sickle Cell trait pain
I am a 26 year old female. I was told that I carried the sickle cell trait and I’m anemic. I am in so much pain to where my body hurts. I take iron and B12 faithfully but I can’t get answers from anyone. I’m always exhausted and I have so much pain in my joints. My stomach hurts like hell. Is sickle
I am a 26 year old female. I was told that I carried the sickle cell trait and I’m anemic. I am in so much pain to where my body hurts. I take iron and B12 faithfully but I can’t get answers from anyone. I’m always exhausted and I have so much pain in my joints. My stomach hurts like hell. Is sickle
MrsReese
in
Sickle Cell Society
6 years ago
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