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Serositis
Hi I’m new here, been struggling with bilateral pleural effusion since may last year and now my second bout of pericarditis so my respiratory consultant is sending everything to a rheumatologist as he believes I have lupus but does anyone else have this please and what medication are you on etc.. Any
Hi I’m new here, been struggling with bilateral pleural effusion since may last year and now my second bout of pericarditis so my respiratory consultant is sending everything to a rheumatologist as he believes I have lupus but does anyone else have this please and what medication are you on etc.. Any
Numptybrain
in
LUPUS UK
2 months ago
pd dialysis and swimming ?
last week it was so hot here I wanted to get in a pool so bad. But I’m extra careful with my exit site . But I read stories where people say they swim in the salt water ocean or a pool . And had no problems. I am wanting to hear from any of you who have gone swimming have you gone in an ocean or a
last week it was so hot here I wanted to get in a pool so bad. But I’m extra careful with my exit site . But I read stories where people say they swim in the salt water ocean or a pool . And had no problems. I am wanting to hear from any of you who have gone swimming have you gone in an ocean or a
Beachgirl32
in
Kidney Dialysis
10 months ago
BNP levels raised....update......well, not really!
You may recall my post a few weeks ago about this. My Face to Face appointment turned out to merely be for my GP to listen to my chest, which incidentally is clear...no wheezing etc., and to ask me a few questions. She did agree to chase up my overdue echocardiogram and get me moved " further up the
You may recall my post a few weeks ago about this. My Face to Face appointment turned out to merely be for my GP to listen to my chest, which incidentally is clear...no wheezing etc., and to ask me a few questions. She did agree to chase up my overdue echocardiogram and get me moved " further up the
Wightbaby
in
AF Association
9 months ago
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sjogrens
Hi Everyone, Diagnosed last Nov with PBC. 2 weeks ago I started getting a really bad taste in mouth and some dry mouth. The taste is terrible ! How do you treat this to get rid of taste? Does anyone have Sjogrens w/ PBC? What are the symptoms? How is this treated? I see my doc in Oct. Thanks
Hi Everyone, Diagnosed last Nov with PBC. 2 weeks ago I started getting a really bad taste in mouth and some dry mouth. The taste is terrible ! How do you treat this to get rid of taste? Does anyone have Sjogrens w/ PBC? What are the symptoms? How is this treated? I see my doc in Oct. Thanks
Samanthaann
in
PBC Foundation
9 months ago
visual disturbances and eye problems
Hi everyone, If have moth FND & FM and have had some strange things going on , does anyone have strange vision. I see eye floaters all day when my eyes are open and when I close my eyes but this has also developed into what I can only describe as black and white static vision. I’ve have issues with
Hi everyone, If have moth FND & FM and have had some strange things going on , does anyone have strange vision. I see eye floaters all day when my eyes are open and when I close my eyes but this has also developed into what I can only describe as black and white static vision. I’ve have issues with
Loobyloo1966
in
Functional Neurological Disorder - FND Hope
9 months ago
visual snow and fibromyalgia
does anyone have strange vision. I see eye floaters all day and when I close my eyes but this has also developed into what I can only describe as black and white static vision. I’ve have issues with my eyelids not automatically opening too. Migraines are most likely linked but not the reason. It’s bizarre
does anyone have strange vision. I see eye floaters all day and when I close my eyes but this has also developed into what I can only describe as black and white static vision. I’ve have issues with my eyelids not automatically opening too. Migraines are most likely linked but not the reason. It’s bizarre
Loobyloo1966
in
Fibromyalgia Action UK
9 months ago
Road blocks
Hi all,I thought I'd update you all. I went into hospital in the 20/02 to have my second last chemo before the BMT. Upon admission, I had a fever. After 4 days of fevers and a rash from head to toe, the doctors elected to postpone the BMT. So now the search is on to find out what drugs didn't agree
Hi all,I thought I'd update you all. I went into hospital in the 20/02 to have my second last chemo before the BMT. Upon admission, I had a fever. After 4 days of fevers and a rash from head to toe, the doctors elected to postpone the BMT. So now the search is on to find out what drugs didn't agree
Sagiegirl
in
MPN Voice
2 months ago
Peripheral Arterial Disease (PAD)
Morning all, Four years ago I had PAD in my right leg. As the surgeon found crystalline deposits when attempting to fit a stent it was not possible to treat it that way and I had a bypass operation instead. Since then I have not felt a single pain in that leg But now I am having the same problem in
Morning all, Four years ago I had PAD in my right leg. As the surgeon found crystalline deposits when attempting to fit a stent it was not possible to treat it that way and I had a bypass operation instead. Since then I have not felt a single pain in that leg But now I am having the same problem in
--John--
in
Couch to 5K
9 months ago
Indigestion Medications
Hi All Can anyone recommend an effective indigestion tablet/liquid that is gluten free. I tried gaviscon advance recently which worked so well but then I reacted as if I’d eaten gluten, it is listed as gluten free so must have been another ingredient that I’m sensitive to, but don’t want to try it
Hi All Can anyone recommend an effective indigestion tablet/liquid that is gluten free. I tried gaviscon advance recently which worked so well but then I reacted as if I’d eaten gluten, it is listed as gluten free so must have been another ingredient that I’m sensitive to, but don’t want to try it
Galaxy2
in
Gluten Free Guerrillas
2 months ago
COLONOSCOPY AND GASTROSCOPY TOMORROW
Hi everyone, having my first colonoscopy and gastroscopy tomorrow, to say I am stressed is an understatement, keep imagining all sorts of things, any advice on how to handle the anxiety would be greatly appreciated.
Hi everyone, having my first colonoscopy and gastroscopy tomorrow, to say I am stressed is an understatement, keep imagining all sorts of things, any advice on how to handle the anxiety would be greatly appreciated.
dojoman59
in
IBS Network
3 months ago
low lobulated lesion of rectum
found large low lesion of rectum after sigmoidoscopy discharged me back to gp So much pain lost weight can’t eat pain all time feels like sitting on golf ball this happened after hospital did manual evacuation after had new hip last Oct Feel so unwell all the time
found large low lesion of rectum after sigmoidoscopy discharged me back to gp So much pain lost weight can’t eat pain all time feels like sitting on golf ball this happened after hospital did manual evacuation after had new hip last Oct Feel so unwell all the time
Perrie46
in
Bowel Disease Support
3 months ago
Bile acid malabsorption
I got diagnosed with bile acid malabsorption in January this year i am on colesevelam for it the thing is i have lost nearly 3 stone in weight since over the last year is this normal with bam ,i have a gastroenterologist appointment in November so mayb get some answers as my stomach is still not right
I got diagnosed with bile acid malabsorption in January this year i am on colesevelam for it the thing is i have lost nearly 3 stone in weight since over the last year is this normal with bam ,i have a gastroenterologist appointment in November so mayb get some answers as my stomach is still not right
Netbet22
in
IBS Network
7 months ago
stool withholding - dulcosoft liquid an option?
Hi We have a nearly 4 y/o daughter who started withholding about 4 months ago. She point blank refused any mivicol or cosmocol, not even the flavoured ones so we were told to try lactulose. But even then we can only get about 15ml in her a day because she likes water. someone recommended Dulcosoft
Hi We have a nearly 4 y/o daughter who started withholding about 4 months ago. She point blank refused any mivicol or cosmocol, not even the flavoured ones so we were told to try lactulose. But even then we can only get about 15ml in her a day because she likes water. someone recommended Dulcosoft
Sugarrush575
in
ERIC
3 months ago
Prednisalone
I have wrote recently about hydroxychloroquine upsetting my stomach I have tried them three times, each time I have been taken steriods also ,after stopping g hydroxychloroquine agian about a week ago ,I find mystomach still in a mess ,now I'm beginning to wonder if it the steriods that are giving me
I have wrote recently about hydroxychloroquine upsetting my stomach I have tried them three times, each time I have been taken steriods also ,after stopping g hydroxychloroquine agian about a week ago ,I find mystomach still in a mess ,now I'm beginning to wonder if it the steriods that are giving me
Alice70
in
NRAS
3 months ago
Extremely bad acid heartburn
hi, On here about my mum again. She is suffering really bad with acid reflux. She hasn’t had chemo for 4 weeks but they did attempt debulking surgery which didn’t work. So we are not sure if it’s something to do with the blood thinners or she’s worried it is the cancer. has anyone else suffered
hi, On here about my mum again. She is suffering really bad with acid reflux. She hasn’t had chemo for 4 weeks but they did attempt debulking surgery which didn’t work. So we are not sure if it’s something to do with the blood thinners or she’s worried it is the cancer. has anyone else suffered
Holsgram
in
My Ovacome
3 months ago
Blood
My alanine is 19u/l and aspartate is 34u/l I think these are both what they should be but is there a circumstance of the 2. My bilirubin is 12. Thanks
My alanine is 19u/l and aspartate is 34u/l I think these are both what they should be but is there a circumstance of the 2. My bilirubin is 12. Thanks
Belleben
in
British Liver Trust
9 months ago
timing between Lupron injections
After 17 months on firmagon injections, I switched to the 84 day lupron injection on June 15. How far can the 84 days be safely extended? I am currently scheduled for another injection on September 14, which is 91 days. I hope that is ok, as our scheduling was extended because of vacation conflicts
After 17 months on firmagon injections, I switched to the 84 day lupron injection on June 15. How far can the 84 days be safely extended? I am currently scheduled for another injection on September 14, which is 91 days. I hope that is ok, as our scheduling was extended because of vacation conflicts
Gatodd
in
Advanced Prostate Cancer
9 months ago
Rectal pain
Hi, I had hemmies years ago which I had banded and also injected which seemed to solve the problem but then got an anal fissure and after struggling with it for years finally got surgery. Fast forward to now and I have constant pain in the rectum and am waiting for colonoscopy, my question is, does
Hi, I had hemmies years ago which I had banded and also injected which seemed to solve the problem but then got an anal fissure and after struggling with it for years finally got surgery. Fast forward to now and I have constant pain in the rectum and am waiting for colonoscopy, my question is, does
Boresum
in
Bowel Disease Support
3 months ago
Grumbling oesophagus?
Several days ago I had general anaesthetic for the first time (cardioversion). It was all fine, but I soon noticed a grumbling oesophagus -- first when I put in earplugs on the morning after (noisy neighbour). Then last night, 72hrs later, the noises (in my oesophagus) were audible to me as I sat on
Several days ago I had general anaesthetic for the first time (cardioversion). It was all fine, but I soon noticed a grumbling oesophagus -- first when I put in earplugs on the morning after (noisy neighbour). Then last night, 72hrs later, the noises (in my oesophagus) were audible to me as I sat on
Redactrice
in
Atrial Fibrillation Support
3 months ago
Small bowel intestinal overgrowth
I have been diagnosed by my gastroenterologist with sibo after a breath test. The treatment prescribed is xifaxan. I’m waiting for approval by insurance. I’m also in treatment for CLL with Zanubrutinib which I began in May last year. I have had stomach issues, sometimes really severe, since beginning
I have been diagnosed by my gastroenterologist with sibo after a breath test. The treatment prescribed is xifaxan. I’m waiting for approval by insurance. I’m also in treatment for CLL with Zanubrutinib which I began in May last year. I have had stomach issues, sometimes really severe, since beginning
Bethsaida
in
CLL Support
3 months ago
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