Experiences with

Accidents

hello, i’m still feeling very upset about my brain injury (undiagnosed), after taking roaccutane all that time ago. i feel like ibe lost a part of myself. life’s been such a struggle since experiencing the nasty long term side effects, and i just don’t feel like myself since then, more than half a

I had suggested this was a possible option for pts losing access to PEG. Thanks to member zvinkovic who has direct knowledge and posted: "I thought Roferon is discontinued? Because I was on Roferon and only got Pegasys because Roferon was discontinued" Here is the summary I wrote in that thread.

this is a trivial question but are there any issues using insect repellent like DEET with PMR or pred ? currently on 9mg and going to Spain for a week. And should I take extra prednisolone with me in case of problems? Its a light walking holiday but i'll be alert to not overdoing it 🙂

I guess I should have mentioned we are in the US in state of Oklahoma and getting appointment for neurologist is next to impossible as the few we have say they are not accepting any new patients. Only one we found is in Dallas, TX for next June. I’ve now placed her on hospice care and will try to give

Having spent time working with Dr Jose Thomas in Cardiff, I obtained a referral letter to my gp surgery recommending low dose opioids. I had a very good consultation with my gp who appeared to understand the desperation I was experiencing and said that she was going to look at a range of options including

Hi everyone, I'm back from 3 weeks in Canada with my son, and wanted to share a few tips. I always find the lead up to a holiday stressful, and can expect more stomach issues. What I didn't expect was trouble with urine, I've never had cystitus, then suddenly had burning/soreness on passing urine,

I don't post much because my RLS isn't too bad most nights.I tried adding that both my kidneys have failed because of catching Covid for the second time and already I have a number of health issues. I am on Peritoneal Dialysis and I am diabetic. I treat my RLS with 75mg Pregabalin, I know it's nothing

Good evening all, I would just first like to introduce myself to you all, as I have only just joined this group and I am very lucky to have a space like this to come and speak my mind. Also, apologies for the long message, if you'd rather skip to the point I'll leave a bold asterisk next to it

Has anyone tried this for their ibs. I don't usually take medication but as an ibs-d sufferer normally, suddenly I have started with ibs-c and ibs-d alternately. Sometimes my gut feels as if it's rushing everything through, and other times it seems to come to a full stop. In addition, I have started

Hi, I am 7 months post critical illness. I spent 12 days in an induced coma following severe pneumonia. I was mechanically ventilated. I suffered with very traumatic coma dreams and would like to speak to anyone that has been through the same. I am struggling 7 months later luckily with no physical effects

Hi, I witnessed my mum having a seizure yesterday eve which is the most scary experience I have had. Mum was in bed, I had just administered her meds and went into the kitchen and heard the most awful screaming (mum’s speech is limited so hearing a noise like this was alarming). I ran into the bedroom

Hello! Does anyone here have Cogan's syndrome? I was diagnosed last year. My symptoms started straight after my second COVID vaccine and worsened after my 3rd. I'm on Mycophenolate but think I'm becoming less tolerant to it. I feel sedated weak and nauseous. Has anyone else had this?

Hello!! I’m back after not posting for years (I got too disheartened and gave up on a diagnosis until it just got too bad to ignore) with potentially some news. I was called in for an ultrasound and for the first time, the technician held my hands and told me she believes she can clearly see evidence

Has anyone had breakthrough bleeding when taking Synarel (Nafarelin)? After starting the spray, I had a period 22-26/08 then I started bleeding again 29/08 but it’s very light/spotting. Trying to work out if this is normal??

hello just wondering if anyone has heard of or received this treatment for CRPS..or any other type of pain…this would be for the lower extremities..

So a week after my Endo diagnosis following emergency surgery last Monday, I received my appointment for my pelvic MRI but the letter states it needs to be done on day 3 or 4 of my cycle. Does this mean I should be bleeding when they do it? Sorry for the stupid question but it threw me and I have actually

following months of waiting I eventually paid to see a private bowel surgeon. Worth every penny. She organised tests through NHS. Won’t bore with details- but I have a dysfunctional opioid bowel ( due to severe back problems). A large rectocele & possibly a cystocele I’m having a transit study…

A drug used to induce labor in pregnant women has been shown to reactivate tiny waste-clearing pumps in the brains of old mice. The finding could hold promise as a new way to fight Alzheimer's and Parkinson's diseases and overall cognitive decline. https://newatlas.com/health-wellbeing/pregnancy-drug-brain

Hi to everyone who reads this, Just thought I’d let you know that am finally in Addenbrookes hospital having chemo as we speak. Had a Hickman line fitted last week. Am on Day 6, had dose of fludara and campath. Been just on fludara until today and was coping well, no side effects. Campath is slightly

Hello forum friends, I have had PMR for 2 and a half years, I am now 53 years old and am moderately active. I have been on the journey of ‘dead slow’ tapering from 2.5mg to 2mg over the last 4 weeks. I currently feel like I have a torn muscle in the top of my right arm. I don’t think I did anything