Finally an update! Also advice pls

[SaskiClaws]

Hello!!

I’m back after not posting for years (I got too disheartened and gave up on a diagnosis until it just got too bad to ignore) with potentially some news.

I was called in for an ultrasound and for the first time, the technician held my hands and told me she believes she can clearly see evidence of endo and adeno. I’ll be getting a follow up on that this month but god, what a relief just to have someone look me in the eyes and say “you’re not crazy. It’s there”.

On a slightly unrelated note -

I have a new symptom that I cannot get under control at all - I’ve developed chronic diarrhoea, that won’t go away unless I religiously take Imodium (which I would prefer not to do). My doctor suspects it’s due to endo near my bowel, but nothing concrete on that yet.

Has anyone ever had this before? And do you have any advice on management?

Thank u very much!

[Joonaspryte]

So glad it's been seen by someone at last, I'm so glad for you I've been diagnosed with extra pelvic endo.

I get constipation for days, followed by diarrhea. I think it's because it's spread to it near the bowels, it's horrible and is a frequent symptom of endometriosis. I also have been using imodian .

[Cocoacupid]

yes hunni I get severe diarrhea and chronic constipation I had surgery as it was found on my bowel am

Three months post op and have started getting severe pain In my bottoM and the constipation and diarrhea is back again . Hun the immodone doesn’t help me as I would take it far to much and to be honest would never stop the diarrhea all together. I have changed my diet too to no avail still get it

[Moon_maiden]

That’s great news that you’ve got answers, wish it was something simpler to deal with. It’s not the diagnosis we want but do want one.

Not sure re diarrhoea, mines more constipation. Just be careful not to get caught up in the Endo diagnosis and miss anything else. Ask GP to do a stool check for blood and bugs.

[SaskiClaws in reply to Moon_maiden]

thank you sm!!