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Hysterectomy for Adenomyosis and endometriosis
Hi all, I have been advised now that I have no other option apart from having a hysterectomy. I have have had several procedures and opps since being diagnosed with endometriosis back in 2017. Ongoing long battle with bad symptoms associated with it all. I have adenomyosis and signs of endometriosis
Hi all, I have been advised now that I have no other option apart from having a hysterectomy. I have have had several procedures and opps since being diagnosed with endometriosis back in 2017. Ongoing long battle with bad symptoms associated with it all. I have adenomyosis and signs of endometriosis
FazzyB
in
Adenomyosis Advice Association
3 years ago
Should I have my ovaries removed?
Hi, anyone out there had subtotal hysterectomy and then had ovaries removed at a later date? Are you pain free now? How has having a surgical menopause effected you? I am on a waiting list to have ovaries removed but I’m really unsure if it’s what I want. Thank you Bunnyrunning xxx
Hi, anyone out there had subtotal hysterectomy and then had ovaries removed at a later date? Are you pain free now? How has having a surgical menopause effected you? I am on a waiting list to have ovaries removed but I’m really unsure if it’s what I want. Thank you Bunnyrunning xxx
Bunnyrunning
in
Endometriosis UK
3 years ago
CA125
In May 2018 I was dx OC - Stage 3 - had hysterectomy and 18 weeks taxol & Carbo. Had first recurrence 18 months later. Then completed 9 months doxil & carbo Feb 2021. After pet scan which showed NED, I had 2 Pfizer vaccines in April and then started Lynparza. My CA 125 has increased monthly from 8
In May 2018 I was dx OC - Stage 3 - had hysterectomy and 18 weeks taxol & Carbo. Had first recurrence 18 months later. Then completed 9 months doxil & carbo Feb 2021. After pet scan which showed NED, I had 2 Pfizer vaccines in April and then started Lynparza. My CA 125 has increased monthly from 8
ElayneZ
in
My Ovacome
3 years ago
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How do I know what stage of endo I had when I wasn’t told?
Hi, I’ve found it really interesting reading about the experiences of others on here. One thing I notice about women who have been diagnosed more recently is that they seem to be told what stage their endo is. I was diagnosed 12 years ago after years of pain and bowel problems. I assume my experience
Hi, I’ve found it really interesting reading about the experiences of others on here. One thing I notice about women who have been diagnosed more recently is that they seem to be told what stage their endo is. I was diagnosed 12 years ago after years of pain and bowel problems. I assume my experience
Nikkky
in
Endometriosis UK
3 years ago
Just now discovering things I really never wanted to know.
Hello, I just joined to see what everyone is talking about. I have been diagnosed with serous cell uterine Stage III by one doc and Stage IV by another doc. I've had 6 rounds of chemotherapy of paclitaxal and carboplatin. In addition I am HER2+. So I received transtuzamab along with chemo. Had surgery
Hello, I just joined to see what everyone is talking about. I have been diagnosed with serous cell uterine Stage III by one doc and Stage IV by another doc. I've had 6 rounds of chemotherapy of paclitaxal and carboplatin. In addition I am HER2+. So I received transtuzamab along with chemo. Had surgery
14523ok
in
SHARE Uterine Cancer Support
3 years ago
Visanne(dienogest)
Hello. I had my dreaded mirena coil removed yesterday, bit of a procedure as the strings were inside uterus etc but pleased it is out. I’ve been advised I will always need to take something for stage 4 endo and adeno as I’m only allowed one more surgery which is hysterectomy and likely colostomy bag.
Hello. I had my dreaded mirena coil removed yesterday, bit of a procedure as the strings were inside uterus etc but pleased it is out. I’ve been advised I will always need to take something for stage 4 endo and adeno as I’m only allowed one more surgery which is hysterectomy and likely colostomy bag.
Lily1986
in
Endometriosis UK
3 years ago
Anyone experienced perimenopause with endometriosis?
Hi everyone. I’m 44 and I’ve already mentioned in previous posts that I had a hysterectomy 4 years ago (everything removed apart from 1 ovary). As well as having adhesions I’m pretty sure my endo has returned as my pain has got worse and my bowel symptoms have returned. I also think I’m going through
Hi everyone. I’m 44 and I’ve already mentioned in previous posts that I had a hysterectomy 4 years ago (everything removed apart from 1 ovary). As well as having adhesions I’m pretty sure my endo has returned as my pain has got worse and my bowel symptoms have returned. I also think I’m going through
Nikkky
in
Endometriosis UK
3 years ago
Not sure what's happening??
Morning ladies, been told on Friday via a MRI it's likely I have stage 4 endo kissing ovaries two large cysts bowel issues also just wondering what my options are? I don't want to retain anything I want a hysterectomy has anyone gone down this route? I feel a bit lost as this is all a surprise to me
Morning ladies, been told on Friday via a MRI it's likely I have stage 4 endo kissing ovaries two large cysts bowel issues also just wondering what my options are? I don't want to retain anything I want a hysterectomy has anyone gone down this route? I feel a bit lost as this is all a surprise to me
Buddysmum124
in
Endometriosis UK
3 years ago
Mirena for heavy periods
Hello, I had the Mirena coil fitted 4 months ago for heavy periods, with fibroids and adenomyosis. I had to wait a year to get a gynecology appointment, and had a hysteroscopy, and the Mirena fitted at the same time. I have not had a follow up appointment, and have been finding it hard to even get through
Hello, I had the Mirena coil fitted 4 months ago for heavy periods, with fibroids and adenomyosis. I had to wait a year to get a gynecology appointment, and had a hysteroscopy, and the Mirena fitted at the same time. I have not had a follow up appointment, and have been finding it hard to even get through
Mithomp
in
Women's Health
3 years ago
Advice on open surgery
Hi ladies, I have had an MRI scan that showed extensive endometriosis… without going into too much detail, basically everything is stuck together; ovaries, fallopian tubes, uterus with adhesions to the bowels… ☹️ I’ve been told at 45 it’s best to just have a full hysterectomy (I’m lucky enough to have
Hi ladies, I have had an MRI scan that showed extensive endometriosis… without going into too much detail, basically everything is stuck together; ovaries, fallopian tubes, uterus with adhesions to the bowels… ☹️ I’ve been told at 45 it’s best to just have a full hysterectomy (I’m lucky enough to have
Dustydoggo
in
Endometriosis UK
3 years ago
Mirena coil moved, strings missing, possible surgery needed to remove.
I suffer with stage 4 endo which continues to return despite a number of surgeries including two excision with endo specialist. My last major surgery I was told they’d be inserting mirena coil, I didn’t want it and told them that but they insisted it was pretty much the “only way to keep it under control
I suffer with stage 4 endo which continues to return despite a number of surgeries including two excision with endo specialist. My last major surgery I was told they’d be inserting mirena coil, I didn’t want it and told them that but they insisted it was pretty much the “only way to keep it under control
Lily1986
in
Endometriosis UK
3 years ago
Fibroids: Non-Surgical Treatment
After being told that I had 10 fibroids just before the pandemic, it became a perilous and slow journey figuring out what would be the best method to remove them (I had a prior operation that prevented me from directly going into surgery). I found a video that instructed I use Bladderwrack, Irish Moss
After being told that I had 10 fibroids just before the pandemic, it became a perilous and slow journey figuring out what would be the best method to remove them (I had a prior operation that prevented me from directly going into surgery). I found a video that instructed I use Bladderwrack, Irish Moss
Lily0
in
Healthy Happy Woman
3 years ago
Fibroids: Non-Surgical Treatment
After being told that I had 10 fibroids just before the pandemic, it became a perilous and slow journey figuring out what would be the best method to remove them (I had a prior operation that prevented me from directly going into surgery). I found a video that instructed I use Bladderwrack, Irish Moss
After being told that I had 10 fibroids just before the pandemic, it became a perilous and slow journey figuring out what would be the best method to remove them (I had a prior operation that prevented me from directly going into surgery). I found a video that instructed I use Bladderwrack, Irish Moss
Lily0
in
Women's Health
3 years ago
Fibroids: Non-Surgical Treatment
After being told that I had 10 fibroids just before the pandemic, it became a perilous and slow journey figuring out what would be the best method to remove them (I had a prior operation that prevented me from directly going into surgery). I found a video that instructed I use Bladderwrack, Irish Moss
After being told that I had 10 fibroids just before the pandemic, it became a perilous and slow journey figuring out what would be the best method to remove them (I had a prior operation that prevented me from directly going into surgery). I found a video that instructed I use Bladderwrack, Irish Moss
Lily0
in
Pelvic Pain Support Network
3 years ago
Having a Bad Day
Hi Guys, I’m really sorry this is my first post and it’s not exact positive. I’m having a mare of a day. I can’t have kids, just not happening. I have a miracoil? Something like that! Because it’s supposed to help with the symptoms and my gynaecologist said kids aren’t an option so might as well get
Hi Guys, I’m really sorry this is my first post and it’s not exact positive. I’m having a mare of a day. I can’t have kids, just not happening. I have a miracoil? Something like that! Because it’s supposed to help with the symptoms and my gynaecologist said kids aren’t an option so might as well get
Sookiepookie
in
Endometriosis UK
3 years ago
laparoscopy findings-what’s your thoughts?
Hi endo warriors. I had a laparoscopy last week and my results/follow up chat today with my consultant. Basically the background has been chronic pain and bowel issues for over 2 1/2 years and was referred to a gynaecologist in summer 2019. Scans etc showed fibroids and one pedunculated (4cm) of which
Hi endo warriors. I had a laparoscopy last week and my results/follow up chat today with my consultant. Basically the background has been chronic pain and bowel issues for over 2 1/2 years and was referred to a gynaecologist in summer 2019. Scans etc showed fibroids and one pedunculated (4cm) of which
Astro_kat
in
Endometriosis UK
3 years ago
Pre-op update
Hi folks just an update - went for pre op today saw a lovely nurse who said wow for someone with Lupus & RA you look amazing 🤣 this cheered me up no end - I’m a very colourful person who always coordinates colours - if I dress nice, do my hair nice and wear make up then I feel much better about myself
Hi folks just an update - went for pre op today saw a lovely nurse who said wow for someone with Lupus & RA you look amazing 🤣 this cheered me up no end - I’m a very colourful person who always coordinates colours - if I dress nice, do my hair nice and wear make up then I feel much better about myself
svfarmer
in
LUPUS UK
3 years ago
Is a hysterectomy inevitable?
I had my follow up consultation yesterday following extensive surgery (endo removed throughout the abdomen 'everywhere', a 10cm endometrioma, appendix, scar tissue, both tubes). Only diagnosed at 35 due to infertility investigations. Stage IV. I guess I was 'lucky; in that I didn't realize before and
I had my follow up consultation yesterday following extensive surgery (endo removed throughout the abdomen 'everywhere', a 10cm endometrioma, appendix, scar tissue, both tubes). Only diagnosed at 35 due to infertility investigations. Stage IV. I guess I was 'lucky; in that I didn't realize before and
Chicken1001
in
Endometriosis UK
3 years ago
1 year Post Hysterectomy
I am just over 1 year post hysterectomy (everything removed) due to cysts, fibroids and stage 4 endometriosis. I had a good 6 month run of feeling better, only issue being exhausted all the time. From around January the old symptoms started making their way back which I found a little surprising
I am just over 1 year post hysterectomy (everything removed) due to cysts, fibroids and stage 4 endometriosis. I had a good 6 month run of feeling better, only issue being exhausted all the time. From around January the old symptoms started making their way back which I found a little surprising
Random_Brunette
in
Endometriosis UK
3 years ago
Anyone veen diagnosed with endo on diaphragm? If so what are the symptoms?
So ive had a hysterectomy but suffered beforehand with coughing up blood sickness and a catching feeling by right rib alongside the other symptoms. When I had my hysterectomy I had endo all over pelvis, bowel and masses in my stomach wall. But they couldn't check inside bowel or any further time wise
So ive had a hysterectomy but suffered beforehand with coughing up blood sickness and a catching feeling by right rib alongside the other symptoms. When I had my hysterectomy I had endo all over pelvis, bowel and masses in my stomach wall. But they couldn't check inside bowel or any further time wise
Thecrazypugglelady
in
Endometriosis UK
3 years ago
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