After 8 rounds of chemo had Ivor Lewis op with a view to a cure....
I am due to have my second lap on Friday to excise my recto vaginal endo. I’ve had a MRI and sigmoidoscopy and been told it hasn’t perforated...
Enjoy the good times
Hello lovelies I’m writing this from my wonderful holiday in Florida with all the family. While I’m laying on my sun lounger at Typhoon Lagoo...
Decisions - huge op or not 😨
Morning ladies Had appt last Wednesday and after 2.5 hours of waiting saw a gynae onc surgeon unexpectedly instead of my consultant which is ...
Now have my plan but I'm so scared!
Hi lovely ladies saw the surgeon yesterday and went through what may need to happen and was told I may end up with a stoma and then will need...
Aged 65 . Stage three c ....
Just received a letter today and wasn't successful again no points awarded really don't know what else I can say they have the cheek to say t...
I might be heading for a bowel resection for endometriosis. Has anyone else had one? How was it?
I am quite scared of waking up with a stoma and hopefully won't be permanent as they have warned I may need one. It could only be for 3 month...
Sore stoma site
I have been experiencing a very sore stomach site, does anyone have any advice ?...
1st relapse low grade ovarian 3c - do I do LOGS trial or try letrozole?
I only finished first line chemo in Jan with a summary that I was stable with no visible disease and ca125 of 8. Now my ca 125 has risen 3x f...
The end is in sight
I think the end is now in sight. OH had to have emergency surgery, which as not gone well, and they want to operate again tomorrow if he is w...
Was at oncologist on Wed after 3 weeks in hospital for bowel surgery now have a stoma she got the report from bowel that was taking out it wa...
Temporary stoma bag and endometrioma removal
So I'm set to have a five hour excision surgery to remove my endo and save my kidney hopefully soon....
Back where I started!
A week later I was diagnosed with Crohns and had to have my Anus and Rectum removed. Had a referral to St Marks and was admitted on my first ...
Anyone had a stoma bag ?
My consultant has said I will have to have a stoma bag,wonder if anyone else has had one of these and how do you cope with it as I am very wo...
I am new to this site, may I tell you a little about us,I have M.S, hypertension and small heart problem and carpel tunnel, I have beencarein...
Living with bowel endo!
I just wanted to find out how others deal with the day to day management of bowel endo. I have had a sigmoidoscopy and biopsy done which conf...
Just arrived home after debulking surgery on Thursday. A stoma was never part of the plan 😔
Prior to surgery my CA125 went down to normal range ( in 3 chemos ) and scan showed excellent response....
Help with constipation
Good morning ladies I need help. Have been fighting this evil decease for over eight years have been taking Niraparib for 2 1/2 months with a...
Understanding the next steps for mum
They are giving her 2 more chemo and then after that check ups every 3 months....
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