Posts - Sjogren's Support | HealthUnlocked

Sjogren's Support

796 members•209 posts

Sort posts by:

Medication review

Does anyone know of an independent expert who can review my wife’s medication (UK)? She is on various tablets for blood pressure, cholesterol, thyroid and now...

Does anyone know of an independent expert who can review my wife’s medication (U...

•8 days ago

Xylimelts for dry mouth

how have xylimelts worked for extreme dry mouth

how have xylimelts worked for extreme dry mouth

•17 days ago

Muscles and joints affected with Sjogrens

wondering , have read sjogrens can affect musckes along with the dry mouth, eyes etc , but how would this be determined , when have fibromyalgia, pmr and...

wondering , have read sjogrens can affect musckes along with the dry mouth, eyes...

•18 days ago

Want to take advantage of all our features? Just log in!

or

Is your jaw hurting sympton of sjogrens

Ive had dry eyes and dry mouth for couple mos now, getting extremely dry eyes and mouth now especially on waking, parched, but last few days my left jaw hurts...

Ive had dry eyes and dry mouth for couple mos now, getting extremely dry eyes an...

•18 days ago

congestion

does anybody suffer with post nasal drip and congestion? im constantly clearing my throat from mucus also my throat dries out and l find it difficult to talk

does anybody suffer with post nasal drip and congestion? im constantly clearing ...

•22 days ago

extreme dry mouth and eyes on waking

well havent been diagnosed but researching this disease and symptons, what I am experiencing last few mos seems much like this disease. Would like to know how...

well havent been diagnosed but researching this disease and symptons, what I am ...

•23 days ago

Sjogrens and Thyroiditis

hey. Any one with Sjogrens had thyroiditis. I had a scan in January which radiologist reported that it was in keeping with with autoimmune thyroiditis, there...

hey. Any one with Sjogrens had thyroiditis. I had a scan in January which radi...

•26 days ago

Cracking, splitting, bleeding fingers

The splitting bleeding thumbs and fingers has got a lot worse and is preventing me from doing everyday things like food prep and art without pain. I use...

The splitting bleeding thumbs and fingers has got a lot worse and is preventing ...

•2 months ago

Suffering right now with dry eyes and dry nasal passages

Hi all, I'm 52. And been suffering with what I believe to be sjogren's. I've had issues on and off with dry eyes and nose for years. Alongside this I also...

Hi all, I'm 52. And been suffering with what I believe to be sjogren's. I've ha...

•3 months ago

cataract surgery

I’ve had Sjogren’s 16 yrs. I had cataract surgery 8 yrs ago. I’m fine. Your eyes do become even drier after for a few weeks but then settle down. I can...

I’ve had Sjogren’s 16 yrs. I had cataract surgery 8 yrs ago. I’m fine. Your eyes...

•3 months ago

Be the first to reply

sjogrens

Finally after 14years+ of symptoms and me being fobbed off by doctors.I have had a positive blood test for Sjogrens and in combination with Lupus.My GP will...

Finally after 14years+ of symptoms and me being fobbed off by doctors.I have had...

•3 months ago

Sjogrens, does anyone know private help for this in N Ireland

My friend has just been diagnosed with Sjogrens. I was wondering if there was anyone on here with this from N Ireland who knows of a Consultant or other...

My friend has just been diagnosed with Sjogrens. I was wondering if there was an...

•4 months ago

throat infections and colds with sjorgens

ENT diagnosed my sjorgens and advised my GP to have me referred and treated quickly , 15 months later still waiting for rhumatology what a joke .Have had it...

ENT diagnosed my sjorgens and advised my GP to have me referred and treated quic...

•6 months ago

at my wits end

following on from seeing a rheumatologist yesterday, I am struggling to now know what to do for the best as I am in a lot of daily pain and I seem to be...

following on from seeing a rheumatologist yesterday, I am struggling to now know...

•6 months ago

Symptoms of Sjorgens

Good morning all.I was diagnosed with Sjorgens a year and a half ago. Been u and down since some good days some bad days. I also have PMR and GCA My...

Good morning all.I was diagnosed with Sjorgens a year and a half ago. Been u and...

•7 months ago

Pain in jaw

Does anyone get a pain in there jaw on the bone and just under it going down the neck. With sjogrens

Does anyone get a pain in there jaw on the bone and just under it going down the...

•8 months ago

Be the first to reply

Painful jaw

Does anyone have a painful jaw not the salvia gland but jaw with sjogrens ?

Does anyone have a painful jaw not the salvia gland but jaw with sjogrens ?

•8 months ago

Hi Do i have Sjogrens?

Hi, i'd appreciate any feedback please. I started do have a dry mouth 2017, it went to another level 2023. I had salivary glands swelling up, earache in both...

Hi, i'd appreciate any feedback please. I started do have a dry mouth 2017, it ...

•8 months ago

Cataracts

Has anyone had their cataracts done . Was told it's not so good to have them done if you have Sjogrens as it can cause cornea problems.

Has anyone had their cataracts done . Was told it's not so good to have them don...

•9 months ago

Constipation

Does any one suffer with terrible trouble trying to go to the toilet with sjogrens .

Does any one suffer with terrible trouble trying to go to the toilet with sjogre...

•9 months ago

Can Oral Lichen Planus cause loss of smell and taste if left untreated?

My wife is currently being assessed for possible Sjögrens as she has most, if not all of the symptoms. Before she was sent down the Sjögrens rabbit hole,...

My wife is currently being assessed for possible Sjögrens as she has most, if no...

•9 months ago

When it’s someone you love!

My wife is currently on the long and winding road that will hopefully lead to us finding out whether she has Sjögrens or not. She’s ticked almost all of the...

My wife is currently on the long and winding road that will hopefully lead to us...

•10 months ago

Bruising under skin

Good morning all....I have managed to reduce to 15mg Pred, was prescribed MTX but it proved toxic for me so had to stop after 1st dose of 20mg then was...

Good morning all....I have managed to reduce to 15mg Pred, was prescribed MTX b...

•10 months ago

Heightened sense of smell

Hi, I have Sjogrens and Lupus my sense of smell has increased so much lately. I’m finding it is impacting food I am eating. It’s really bad at the moment....

Hi, I have Sjogrens and Lupus my sense of smell has increased so much lately. ...

•10 months ago

How do you deal with a very dry mouth?

Hi I’ve been on the PMR sight for a year , after Gp said I had it . Put on steroids & have had appointments with rheumatologist. After blood tests, scans &...

Hi I’ve been on the PMR sight for a year , after Gp said I had it . Put on ste...

TedTheMaineCoon

•11 months ago

Med suggestion?

hi all- I got diagnosed with a couple other autoimmune diseases recently and in addition to that, my early sjogrens panel just came back positive. They...

hi all- I got diagnosed with a couple other autoimmune diseases recently and i...

•1 year ago

Bladder

Hi I have recently been diagnosed with Sjorgens , I have suffered bladder problems such as pain and frequency of urine for over 15 years .Does anyone else have...

Hi I have recently been diagnosed with Sjorgens , I have suffered bladder proble...

•1 year ago

Sjogren’s without dryness?

Hi! I’m wondering if anyone else has Sjogrens without dryness? I have mild dry eyes but not to the point that I need drops. I do experience fatigue and...

Hi! I’m wondering if anyone else has Sjogrens without dryness? I have mild dry...

•1 year ago

Be the first to reply

Rheumatologist change

Good morning, having major issues with my present rheumatologist, he seems very disinterested in me as a patient. Was diagnosed with Sjorgens, PMS and GCA in...

Good morning, having major issues with my present rheumatologist, he seems very ...

•1 year ago

Are you a disabled mother who uses LA services?

I am a disabled mother and I am currently do my MSC and looking for participants. I hope this is allowed, if not, please delete. Thanks in advance, Jenny...

I am a disabled mother and I am currently do my MSC and looking for participants...

•1 year ago

Be the first to reply

Write a post or ask a question

Search posts

Latest poll

How did you first hear about Sjogren's?

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Archive

2025

Jan Feb Mar Apr

May

Jun

Jul

Aug

Sep

Oct

Nov

Dec

2024

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2023

Jan Feb Mar Apr May

Jun

Jul Aug Sep Oct Nov

Dec

2022

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov

Dec

2021

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2020

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2019

Jan

Feb

Mar

Jun

Jul

Aug

Oct

Dec

2018

Jan

Feb

Mar

Apr

Jul

Aug

Sep

Oct

Nov

Dec