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Sjogren's Support

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throat infections and colds with sjorgens

ENT diagnosed my sjorgens and advised my GP to have me referred and treated quickly , 15 months later still waiting for rhumatology what a joke .Have had it...

ENT diagnosed my sjorgens and advised my GP to have me referred and treated quic...

•25 days ago

at my wits end

following on from seeing a rheumatologist yesterday, I am struggling to now know what to do for the best as I am in a lot of daily pain and I seem to be...

following on from seeing a rheumatologist yesterday, I am struggling to now know...

•1 month ago

Symptoms of Sjorgens

Good morning all.I was diagnosed with Sjorgens a year and a half ago. Been u and down since some good days some bad days. I also have PMR and GCA My...

Good morning all.I was diagnosed with Sjorgens a year and a half ago. Been u and...

•3 months ago

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Pain in jaw

Does anyone get a pain in there jaw on the bone and just under it going down the neck. With sjogrens

Does anyone get a pain in there jaw on the bone and just under it going down the...

•3 months ago

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Painful jaw

Does anyone have a painful jaw not the salvia gland but jaw with sjogrens ?

Does anyone have a painful jaw not the salvia gland but jaw with sjogrens ?

•3 months ago

Hi Do i have Sjogrens?

Hi, i'd appreciate any feedback please. I started do have a dry mouth 2017, it went to another level 2023. I had salivary glands swelling up, earache in both...

Hi, i'd appreciate any feedback please. I started do have a dry mouth 2017, it ...

•4 months ago

Cataracts

Has anyone had their cataracts done . Was told it's not so good to have them done if you have Sjogrens as it can cause cornea problems.

Has anyone had their cataracts done . Was told it's not so good to have them don...

•4 months ago

Constipation

Does any one suffer with terrible trouble trying to go to the toilet with sjogrens .

Does any one suffer with terrible trouble trying to go to the toilet with sjogre...

•5 months ago

Can Oral Lichen Planus cause loss of smell and taste if left untreated?

My wife is currently being assessed for possible Sjögrens as she has most, if not all of the symptoms. Before she was sent down the Sjögrens rabbit hole,...

My wife is currently being assessed for possible Sjögrens as she has most, if no...

•5 months ago

When it’s someone you love!

My wife is currently on the long and winding road that will hopefully lead to us finding out whether she has Sjögrens or not. She’s ticked almost all of the...

My wife is currently on the long and winding road that will hopefully lead to us...

•5 months ago

Bruising under skin

Good morning all....I have managed to reduce to 15mg Pred, was prescribed MTX but it proved toxic for me so had to stop after 1st dose of 20mg then was...

Good morning all....I have managed to reduce to 15mg Pred, was prescribed MTX b...

•5 months ago

Heightened sense of smell

Hi, I have Sjogrens and Lupus my sense of smell has increased so much lately. I’m finding it is impacting food I am eating. It’s really bad at the moment....

Hi, I have Sjogrens and Lupus my sense of smell has increased so much lately. ...

•6 months ago

How do you deal with a very dry mouth?

Hi I’ve been on the PMR sight for a year , after Gp said I had it . Put on steroids & have had appointments with rheumatologist. After blood tests, scans &...

Hi I’ve been on the PMR sight for a year , after Gp said I had it . Put on ste...

TedTheMaineCoon

•7 months ago

Med suggestion?

hi all- I got diagnosed with a couple other autoimmune diseases recently and in addition to that, my early sjogrens panel just came back positive. They...

hi all- I got diagnosed with a couple other autoimmune diseases recently and i...

•7 months ago

Bladder

Hi I have recently been diagnosed with Sjorgens , I have suffered bladder problems such as pain and frequency of urine for over 15 years .Does anyone else have...

Hi I have recently been diagnosed with Sjorgens , I have suffered bladder proble...

•7 months ago

Sjogren’s without dryness?

Hi! I’m wondering if anyone else has Sjogrens without dryness? I have mild dry eyes but not to the point that I need drops. I do experience fatigue and...

Hi! I’m wondering if anyone else has Sjogrens without dryness? I have mild dry...

•7 months ago

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Rheumatologist change

Good morning, having major issues with my present rheumatologist, he seems very disinterested in me as a patient. Was diagnosed with Sjorgens, PMS and GCA in...

Good morning, having major issues with my present rheumatologist, he seems very ...

•7 months ago

Are you a disabled mother who uses LA services?

I am a disabled mother and I am currently do my MSC and looking for participants. I hope this is allowed, if not, please delete. Thanks in advance, Jenny...

I am a disabled mother and I am currently do my MSC and looking for participants...

•7 months ago

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Rash after operation

I had a reverse shoulder replacement last Monday. Surgeon said the op went well, and I have a follow-up appointment in ten days. I've had a tough week but...

I had a reverse shoulder replacement last Monday. Surgeon said the op went well...

•7 months ago

Sore tongue

Does anyone else have a very sore tongue. I am wondering if it's connected to me taking Apixaban a blood thinner. Or connected to Sojrens.

Does anyone else have a very sore tongue. I am wondering if it's connected to me...

•7 months ago

Painful tongue

I have sojrens and have a very painful tongue on one side it feels bruised and like someiunder the flesh even though there is no lump. Does anyone else have...

I have sojrens and have a very painful tongue on one side it feels bruised and l...

•8 months ago

Sore tongue

Does anyone else that has Sojrens have a sore tongue and feels like a lump when anything touches it just on one side. I have lichen planus as well.

Does anyone else that has Sojrens have a sore tongue and feels like a lump when ...

•8 months ago

Methatrexate/hydroxychloroquine

Hi,looking for advice please.Two weeks ago I was put on 20mg Methatrexate for Sjorgens syndrome but really had a bad reaction. Spoke to the pharmacist and she...

Hi,looking for advice please.Two weeks ago I was put on 20mg Methatrexate for Sj...

•8 months ago

Night sweats

Does anyone with sojrens suffer with very bad night sweats. I have for a while mine have got so bad that I change my top sometimes 3 times. I am 75 so...

Does anyone with sojrens suffer with very bad night sweats. I have for a while m...

•8 months ago

Jaw pain

Does anyone else get jaw and neck pain on the left side with sojrens and sore tongue?

Does anyone else get jaw and neck pain on the left side with sojrens and sore to...

•8 months ago

Methatrexate side effects

Good morning..looking for advice please.I was put on Methatrexate last week, took my first dose on Monday ...8 tablets=20mg and I am still on prednesolone 40mg...

Good morning..looking for advice please.I was put on Methatrexate last week, too...

•9 months ago

dental implants??

Hello. I have been diagnosed with sjogrens and antiphosphorlipid syndromes. Over the past few years I have had so much dental work because my teeth had lost...

Hello. I have been diagnosed with sjogrens and antiphosphorlipid syndromes. Ov...

•9 months ago

PBC cirrhosis

Sorry I forgot to say my last fibroscan in a few weeks ago showed 25 .So 17 to 25 in 9 months seems very fast progression.

Sorry I forgot to say my last fibroscan in a few weeks ago showed 25 .So 17 to 2...

•9 months ago

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PBC, now cirrhosis

HiHad PBC diagnosed for 5 yrs but Alp up since 2012. Been on Urso for 5 yrs and great. In 2021 my ALT was slightly out of range but ignored by the specialist....

HiHad PBC diagnosed for 5 yrs but Alp up since 2012. Been on Urso for 5 yrs and ...

•9 months ago

Prescription Question

Does anyone have a doctor who prescribed something other than Hydroxychloroquine which helped your symptoms?

Does anyone have a doctor who prescribed something other than Hydroxychloroquine...

•9 months ago

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