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Sjogren's Support

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Rash after operation

I had a reverse shoulder replacement last Monday. Surgeon said the op went well, and I have a follow-up appointment in ten days. I've had a tough week but...

I had a reverse shoulder replacement last Monday. Surgeon said the op went well...

IlovePorridge

•3 days ago

1 Reply

Sore tongue

Does anyone else have a very sore tongue. I am wondering if it's connected to me taking Apixaban a blood thinner. Or connected to Sojrens.

Does anyone else have a very sore tongue. I am wondering if it's connected to me...

Myflowers2

•6 days ago

3 Replies

Painful tongue

I have sojrens and have a very painful tongue on one side it feels bruised and like someiunder the flesh even though there is no lump. Does anyone else have...

I have sojrens and have a very painful tongue on one side it feels bruised and l...

Myflowers2

•15 days ago

5 Replies

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Sore tongue

Does anyone else that has Sojrens have a sore tongue and feels like a lump when anything touches it just on one side. I have lichen planus as well.

Does anyone else that has Sojrens have a sore tongue and feels like a lump when ...

Myflowers2

•25 days ago

6 Replies

Methatrexate/hydroxychloroquine

Hi,looking for advice please.Two weeks ago I was put on 20mg Methatrexate for Sjorgens syndrome but really had a bad reaction. Spoke to the pharmacist and she...

Hi,looking for advice please.Two weeks ago I was put on 20mg Methatrexate for Sj...

Den73

•1 month ago

4 Replies

Night sweats

Does anyone with sojrens suffer with very bad night sweats. I have for a while mine have got so bad that I change my top sometimes 3 times. I am 75 so...

Does anyone with sojrens suffer with very bad night sweats. I have for a while m...

Myflowers2

•1 month ago

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Jaw pain

Does anyone else get jaw and neck pain on the left side with sojrens and sore tongue?

Does anyone else get jaw and neck pain on the left side with sojrens and sore to...

Myflowers2

•1 month ago

7 Replies

Methatrexate side effects

Good morning..looking for advice please.I was put on Methatrexate last week, took my first dose on Monday ...8 tablets=20mg and I am still on prednesolone 40mg...

Good morning..looking for advice please.I was put on Methatrexate last week, too...

Den73

•2 months ago

2 Replies

dental implants??

Hello. I have been diagnosed with sjogrens and antiphosphorlipid syndromes. Over the past few years I have had so much dental work because my teeth had lost...

Hello. I have been diagnosed with sjogrens and antiphosphorlipid syndromes. Ov...

Dicolvin

•2 months ago

7 Replies

PBC cirrhosis

Sorry I forgot to say my last fibroscan in a few weeks ago showed 25 .So 17 to 25 in 9 months seems very fast progression.

Sorry I forgot to say my last fibroscan in a few weeks ago showed 25 .So 17 to 2...

Beatrice110924

•2 months ago

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PBC, now cirrhosis

HiHad PBC diagnosed for 5 yrs but Alp up since 2012. Been on Urso for 5 yrs and great. In 2021 my ALT was slightly out of range but ignored by the specialist....

HiHad PBC diagnosed for 5 yrs but Alp up since 2012. Been on Urso for 5 yrs and ...

Beatrice110924

•2 months ago

12 Replies

Prescription Question

Does anyone have a doctor who prescribed something other than Hydroxychloroquine which helped your symptoms?

Does anyone have a doctor who prescribed something other than Hydroxychloroquine...

travel54

•2 months ago

6 Replies

which comes first?

diagnosed with PBC and after some insistence was screened then was diagnosed with sjorgrens. I’ve read up a lot and that liver problems can be an extrglandular...

diagnosed with PBC and after some insistence was screened then was diagnosed wit...

Artsy123

•2 months ago

4 Replies

lip biopsy

I had a lip biopsy 2 weeks ago , to test for Sjogren’s ,but I am regretting it so much my bottom lip is half numb and tingling and I have a huge lump where...

I had a lip biopsy 2 weeks ago , to test for Sjogren’s ,but I am regretting it s...

Bemment

•3 months ago

8 Replies

Trigeminal Neuropathy

Anyone have trouble with their trigeminal nerve? Could you please let me know your symptoms? Has it been progressive? I have a one-sided numbness and...

Anyone have trouble with their trigeminal nerve? Could you please let me know y...

Organiker

•3 months ago

1 Reply

Sore dry eyes

Morning I did rant a bit at the GP's office...my eyes look and feel really awful, told them these are the eye drops I need prescribed I am not going to go...

Morning I did rant a bit at the GP's office...my eyes look and feel really awfu...

Den73

•3 months ago

5 Replies

Sore dry eyes

Good morning all, I am very new to this group.I was diagnosed with Sjorgans syndrome in August 2023, but very obvious it has been 'hanging' around for a while...

Good morning all, I am very new to this group.I was diagnosed with Sjorgans synd...

Den73

•3 months ago

25 Replies

Salivix

Anyone else having trouble obtaining these ?

Dottie11

•5 months ago

12 Replies

Sjogren's query

Hi everyone,I've had dry eyes and mouth etc for about 10 years. About 8 years ago, a rheumatologist tested my bloods, which were negative, so he said I don't...

Hi everyone,I've had dry eyes and mouth etc for about 10 years. About 8 years ag...

Fibreartist

•6 months ago

9 Replies

Dentist diagnosis

Hi all, I have suffered with Rheumatoid Arthritis and Lupus for over 40 years. I started having a really dry mouth when I was put on OxyCodone for pain relief....

Hi all, I have suffered with Rheumatoid Arthritis and Lupus for over 40 years. I...

NanaFifi

•6 months ago

7 Replies

Marginal zone lymphoma

Hi all, I wondered if anyone has hone through what I have been going through, sorry for long post. Last october I stopped using Methotreaxte injections as they...

Hi all, I wondered if anyone has hone through what I have been going through, so...

ush1401

•6 months ago

2 Replies

Period exhaustion

Hiya, I get completely shattered like a flare and emotional just after a period. Is there anything that has helped anyone and is this normal with sjogrens type...

Hiya, I get completely shattered like a flare and emotional just after a period....

DogsMakeLifeGood

•6 months ago

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testing for Sjogrens

hi I’ve just been told I need a blood test to confirm if I have Sjogrens as I have a lot of symptoms and have been ill for such a long time. Can you still have...

hi I’ve just been told I need a blood test to confirm if I have Sjogrens as I ha...

TheRedOnes

•8 months ago

6 Replies

sjrogrens and complications

Hi allHave had sjogrens for neck knows how long ,with lung involvement and gastric issues foo. Also have fibromyalgia. Asthhma,osteoarthritis, CKD, For a...

Hi allHave had sjogrens for neck knows how long ,with lung involvement and gastr...

Gingerninjas

•8 months ago

6 Replies

Head pain / pressure

Hello, does anyone get head stinging and feeling like clogged head with pain and tightness around the head ? I even feel what I call tremors / little ticking...

Hello, does anyone get head stinging and feeling like clogged head with pain and...

Simonebirds

•10 months ago

1 Reply

Uterine polyps

Hello has anyone had this issue of a polyp and have sjogren although the two may be seemingly unrelated ?

Hello has anyone had this issue of a polyp and have sjogren although the two ...

Simonebirds

•1 year ago

2 Replies

pregnancy + sjogren: tips?

Hi everyone, How are we all? I thought I'd share how life has been lately. 😀 I was recently introduced to a fellow Sjogren's sufferer (not sure if they...

Hi everyone, How are we all? I thought I'd share how life has been lately. ...

rokis

•1 year ago

1 Reply

Sjogrens and Eyes

Hi, I have Sjogrens and Lupus. On Rituximab Infusions. I was wondering if anyone has had little dots floating across their eye. ( just my right eye at the...

Hi, I have Sjogrens and Lupus. On Rituximab Infusions. I was wondering if anyo...

Haired

•1 year ago

24 Replies

Awful taste in mouth - is this a Sjogren's thing?

Hello - I'm new here! I'm not diagnosed with Sjogren's though I'm fairly sure I have it. I've had symptoms for around 15 years, and I have a family history of...

Hello - I'm new here! I'm not diagnosed with Sjogren's though I'm fairly sure I ...

CarolineC57

•1 year ago

3 Replies

Problems with generic Plaquenil

Hi everyone, I’ve been taking Plaquenil for 14 years . Two years ago I was on Plaquenil generic by the manufacturer Prasco Labs. They stopped making the...

Hi everyone, I’ve been taking Plaquenil for 14 years . Two years ago I was on ...

Jances13

•1 year ago

9 Replies

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Posts - Sjogren's Support | HealthUnlocked

Sjogren's Support

Rash after operation

Sore tongue

Painful tongue

Sore tongue

Methatrexate/hydroxychloroquine

Night sweats

Jaw pain

Methatrexate side effects

dental implants??

PBC cirrhosis

PBC, now cirrhosis

Prescription Question

which comes first?

lip biopsy

Trigeminal Neuropathy

Sore dry eyes

Sore dry eyes

Salivix

Sjogren's query

Dentist diagnosis

Marginal zone lymphoma

Period exhaustion

testing for Sjogrens

sjrogrens and complications

Head pain / pressure

Uterine polyps

pregnancy + sjogren: tips?

Sjogrens and Eyes

Awful taste in mouth - is this a Sjogren's thing?

Problems with generic Plaquenil

Search posts

Latest poll

How did you first hear about Sjogren's?

Archive