How did you first hear about Sjogren's? - Sjogren's Support
Please select one:
When I was researching symptoms.
When I was misdiagnosed with RA and looked up tingling and burning symptoms affecting me so badly - already had been told I had Sicca.
Diagnosed with RA in 1987 followed by Secondary SS shortly afterwards.
When I was reading other posters comments about their symptoms and researched further.thanks to HU ive now arranged blood tests privately because I’m convinced after many consultants and gps lack of help ,ive found my problem.
I researched symptoms probably 10 years ago. By 2013 I was fairly certain I have Sjogrens. However, two rheumatology departments have dismissed me having found nothing to confirm, despite acknowledging sicca symptoms. I was referred by last dept to eye clinic for managing symptoms, and a months ago I was told there, that they are seeing definite connective tissue disorder in my eyes. They can’t tell me which but are now treating.
My neurologist mentioned it and prescribed eye drops but I have never pursued this condition but the last few months my eyes in waking have been almost impossible to open them but maybe I didn’t give the eye drops a chance
When I was diagnosed with antiphospholipid syndrome. My rheumatologist started checking me for Sjögren’s at that time.
When misdiagnosed with RA and I got very dry eyes soon afterwards - then onset of small fibre neuropathy everywhere led to me researching further.
Besides Dr Google where I learned the symptoms of dry eyes and mouth, I learned about it from you.
Rheumy didn’t run So and Lo tests, or whatever they are for this. My ANA was negative so don’t think this is causing my issues.
A Maxillofacial Consultant diagnosed Secondary Sjrogrens although I had seen a Rheumatologist in 2013. Still not fully diagnosed but have all the symptoms and being referred by My Dentist.