extreme dry mouth and eyes on waking

[arvine]

well havent been diagnosed but researching this disease and symptons, what I am experiencing last few mos seems much like this disease. Would like to know how this is diagnosed, and dryness so bad through night and on waking, not so much through day when up and moving?

[Stillrunningaround]

Hi Arvine

I am sorry to hear! Symptoms for Sjogrens are definitely worse at night. A blood test can confirm an Autoimmune disorder (Ro52 positive) and a positive saliva test (as well as your symptoms described) can confirm Sjogrens. There are saliva stimulating mints, containing Xylitol online (good for teeth and gums) to use during the night. Worth drinking lots of water with electrolytes. A good Dr and/or Rheumatologist can help with treating symptoms (dry eyes etc) Hope that helps, all the best!

[arvine in reply to Stillrunningaround]

Thank you

[arvine]

Well Im windering if thiese symptons are sjogrens, mine seem worse as well, and was diagnosed with pmr in 2016, and read when you have one autoimmune disease it s more likely to experience another, just haf hip replacement but when Im able to see rheumy will ask him about these symptons

[Alexia01]

I have sjogrens and it’s definitely worse at night!

For eyes I would recommend a gel called ‘Theoloz Gel’, you just put a drop in each eye before bed and that helps (you can get this on prescription). You can also get ‘Theoloz drops’ to use throughout the day. Even if your eyes aren’t too dry in the day, I would recommend using drops every now and then because my ophthalmologist says it’s much easier to prevent dry eye disease than it is to reverse it!

For mouth there are many saliva sprays you can use, but one thing I always try and do is sleep with mouth closed (this can take practise if you’re not used to it!). I sometimes have to use a nose spray if nose is stuffy to make sure I can easily breath through my nose (otherwise you will just mouth breath when you fall asleep).

It can also be useful to have a humidifier by your bed to help keep the air moist.

Hope that helps

Xoxo

[arvine in reply to Alexia01]

Ok thank you