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Sickle Cell Society
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SCD apps

Hi, Anyone knows of any any apps to help SCD patients track and manage daily dat...

Diagnosed with AVN due to SCT

Hi, I have SCT and have recently been diagnosed with AVN in both hips with the ...

What drug to treat nerve damage, post sepsis - giving excruciating pain.

I have a relative who had sepsis recently, which has been treated and he has bee...
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Just Got Diagnosed

I just got diagnosed monday afternoon with Vasculitis and Autoimmune Hepatitis c...

Tummy

Hi, my tummy is big anytime I eat or take water it bulge out as if am pregnant ...

Dark spots under feet update!

Doctor has advised me that they are lesions so i was forced to stay off of them ...

Crises

What can be used in order not to have crises

Painful feet

Hey! Anyone out there getting any dark spots on the bottom of your feet and the...

Coronavirus: 38 Year-Old Cameroonian Lives To Tell Her Story

Warrior Nora Molongwe had partied after receiving an award for her SCD advocacy....

Nollywood Filmmaker/Sickle Cell Warrior Celebrates 70th Birthday

April 21, 2020: Nollywood filmmaker Wale Fanu turns 70 today. A very lonely Holy...

Have I discovered something useful?

I was summarized with sickle cell trait, I noted that I am immune to Malaria! I...

Doctor calling with regards to my thalasem alpha recently have been ill and no he’s told me iam in the shielded group I havnt any family

And if I catch this virus am scared it’s going to finish me of lf he allready ta...

Sickle cell trait and osteoarthritis

Hi, im new here. i 've just turned 43. I discovered i have the sickle cell trait...

Who have this book; "LIVING WITH SICKLE CELL ANEMIA: ONE DOCTOR'S STORY"

There's is this doctor who is SS, she wrote the above titled book. I'm in search...

Can someone with sickle cell disease travel on a plane? What are the risks and the complications.

What are the risks and the complications.

Can somone who has the Thalassemia gene start a family with someone who has the sickle cell trait?

Goid evening, I am new to the site and was after some advice please. Can somo...

Sickle cell and endometriosis

Hi, I have been recently diagnosed with endometriosis and I have been slightly w...

Meet Ebun Ekunwe, MBBS, MD, MPH

At 71, has never received blood transfusion Feels stronger in old age than when ...

Coronavirus and Sickle Cell

Does anyone know what complications Coronavirus can cause if you have Sickle Cel...

Nigerian state tackles sickle cell incidence by promulgating law against trait/carrier unions. Different folks, different opinions

The Anambra Sickle Cell Law is one of the best things to happen in Nigeria! - S...

Urgent!!! What drug is best fit for chest infection for SC patient

I am SC, and I am just getting to know there's a prevalent chest infection in SC...

Pregnancy/Labour experience in sickle cell disease

Has anyone with sickle cell disease been pregnant and gone through labour?

Sickle cell trait

I’ve been passing lately I have sickle cell trait and honestly that’s the only t...

SCT causing aches

I’m so glad people are finally talking about this. I and my daughter both have S...

(please respond) Is there implications if a SC patient use CALCIUM to strengthen their bone that feels weak?

I am SC and It's been a year now that I was saved from the claws of sepsis, it n...

Sickle Cell Trait and menstrual cycle

For years I suffered from fainting and blackouts right before or during my perio...

Are you in Nigeria? Have you been able to get the acclaimed and United States's FDA approved solution to SCD; OXBRYTA? Please let's talk!

If you have been able to lay your hands on the drug OXBRYTA, please let's talk, ...

I WISH I WAS BACK BEHIND BARS! Pas tor raising multiple children with sickle cell

Released from jail late December 2019, a Christ Apostolic Church Pastor gave ven...

How to be free from yellow eyes

My son is a sickle cell patient and has yellow eyes, how can he be free from it....

Being sickle in Nigeria is HARDER!!

I just need help!!! I need more access to treatment, and the government is nothi...
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