Getting older with ss

[SociallyUrban]

I'm in my 40's now and I have fewer pain crisis then I had when I was younger. You'd think things would get easier because of this but it isn't. Now I'm dealing with a lot of health problems that sickle cell caused or exacerbated. Like heart problems (which I take meds for), a bad hip (which I had replaced), fluctuating eye sight, necrosis in my left shoulder which limits movement and causes pain, a few mini strokes, respiratory problems that make exercise almost impossible, and those are just the physical problems.

Getting older with sickle cell sucks. Having fewer pain crisis is great but when I do have them they are very intense, which means higher doses of pain meds which makes me look like a drug seeker when I have to go to the emergency room (2 or 3 times a year). Race plays a huge part in that so I have to make sure I call my doctor first so he can explain my condition and what treatments work to the docs and nurses in the emergency room. If I don't do that the er staff seems indifferent to my pain and totally unreceptive to my suggestions of what treatments work.

I wonder how common are my issues among other people with ss in their mid to late 40's.

I don't want to make my life seem awful because it's not. I have a large family who are very supportive. I run my own business and I was able to earn a bachelor's degree in business administration. I've been able to travel the world and although I'm single right now, I still have hope that I'll find the right guy someday who is willing to put up with me.

[Olax]

Hello SU, I'm in my mid 30s with SS, I manage my SS with holistic treatments like Tumeric and Goosberry powder, I try to drink these two powders in some warm water three times a day which helps my blood not to thicken and also helps with my respiratory. Try them along with others like Moringa seeds or tea, Milk thistle, Barley and Chicory (NATURAL TREATMENTS) that help better than penicillin or/and folic acid in my opinion.

Stay strong and healthy, the more the better.