Feeling excited about finding a cure ... - Restless Legs Syn...

Restless Legs Syndrome
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Feeling excited about finding a cure for my RLS without meds!!

Good day to all!! I have amazing news. For the first time in forever, if not ever, I have had complete relief of my RLS symptoms when going to bed. Last night, was night number 12. Prior to bed, I did have a few flair ups a couple times, but I just got up and did something, it was day time..

Now my RLS is not the painful type, and I remember being around 8 years old when it started. I was 25 when I was diagnosed and was prescribed Sinemet. I took it for maybe a month, learned about augmentation so I stopped. That is it. I have researched the piriformis and sciatic nerve causes. Have had many blood tests done and drs have said everything is good. Ferritin levels are fine, blah blah blah. I tried magnesium lotion, made from the crystals, and water. Didn't help. Tried magnesium, calcium, D3. Didn't help.

I also suffer from sleep apnea, and a spine that is very twisted so sleeping is not my forte, lol. Three weeks ago, for some reason I stopped at the vitamin area of walmart and grabbed a bottle of 500 mg magnesium tablets. Looked around for any other sleep things. I found Valerian. Thought, why not. I also grabbed a bottle of Stresstabs, a b complex with copper, zinc, selenium, lyposene as well. No help. But I figured I would continue. Then, 12 days ago, I went to Superstore, (I never go to Superstore), and ended up in the organic section, which has homeopathic supplements. I looked around and found a box called Rest well. I looked at the ingredients....... Valerian, Passion flower, and something else but I stopped at Passion flower. Looked around and found a tincture. I bought it and came home, tried it and IT WORKED!!! 12 Days Straight!!!!

Because of my spine being the way it is, I take Celebrex for Osteoarthritis. So....in the morning I take the Celebrex and Stresstabs, and and hour before bed I take the magnesium and Valerian. Then 20 min before bed I take the passion flower tincture. I will try to update after a month with what I hope is promising.

35 Replies
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So you take this Passionflower by itself and it works?

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If you re read the last paragraph you will find your answer....I combine all of it

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Oops skipped that paragraph by accident.

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That’s awesome news Birdman!! I look forward to your month update!

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Fantastic news. Please keep us all informed.

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That's great! I really hope your relief continues. Unfortunately I recently read in NICE Clinical Knowledge articles that Valerian particularly is identifed as not being recommended for RLS. I can't recall why.

Please carry on but beware of placebo effect.

Having said that, even if it just placebo effect, it's still working!

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How much passion flower do you take each evening?

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It is a tinture, so 25 drops. It's says that equals 279-308mg of fresh herb

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Hmn, wonder if it wd work for tremor too, at least the herbs.

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I have two suggestions..... Have your neck x-rayed, and just google the "benefits of Passion flower". I suggest the neck x-ray because there have been links between tremors and the Atlas vertabrae being in the wrong angle. Our spinal cord exits the skull at a 31 degree angle so the Atlas should be sitting at 31 degrees as well. Any deviation from that angle, puts pressure on the spinal cord and causes dis-ease of the nerve that is in the pressure area.

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Very informative, thanks, but unfortunately I have almost every PD symptom...Just gleaned Passion Flower, will look at it further later, it sounds like it's worth trying.

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Sorry but I'm not sure what PD stands for. ☺️

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Hi ! It stands for Parkinson's Disease.

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Omg. I'm should have got that. Thank you

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Ha ! Been there :)

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Hi, valerian worked ok for although I was a

little reluctant to use it. I have sleep apnea

too, so I didn’t want to use to much of it.

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Why did you not want to take too much Valerian? How does it affect sleep apnea?

I think the passion flower is the key, so after a month with relief, I will try dropping the Valerian and see what happens.

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Wow...how wonderful for you to have found "the answer".

I know it's quite a tailored , personal thing..but..it might work for me.

So... today.. going to health store to see if I can purchase similar.

Had yet another night of very restless sleep....jerky moving legs that won't allow sleep.

I thought I had cracked the problem recently.. taking prescription iron..and other things I had bought such as magnesium.

It did go away for several months..but recently back again...no idea why.

Only thing I can think of is that I do drink coffee..2 cups usually in morning that isn't decaffeinated..but not every day.

Could it be that.?

I am Soooo pleased for you.. please update me with progress.

Thank you

Jan

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I also drink coffee. I drink decaf in the afternoon, but I should stop. I know it doesn't help

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It seems the passion flower has a short window of relief time. If I am too wired still from my day, back is aching and can't sleep, It does wear off and I have had to take again, after a couple hrs I'd say.

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Hello RLS world. As promised, I'm updating my success with ridding myself of my symptoms using Passion flower. I have for the month of Feb, been RLS free, other than a couple nights I needed to retake. 😁

I have also put more pieces together to explain my RLS. As I have mentioned in the past, mine started around 8 yrs old. 40 yrs ago. I had had periods during those 40 yrs where my symptoms weren't as bad or were gone, but the last 15 yrs it's slowly gotten worse.

My RLS is caused by a leaky gut. Which I have probably had, off and on, all my life. STRESS!!! I grew up in a very traumatic environment. When stress is experienced, the brain releases a chemical called CRF (corticotropin releasing factor). CRF triggers a cascade of other chemicals which cause the release of cortisol, from the adrenal glands, but, CRF receptors are also found in the gut, meaning CRF directly impacts the gut.

Through the effects of CRF on the gut, stress can result in changes in intestinal motility, sensitivity, inflammation and alter intestinal impermeability allowing various substances to pass through the gut wall. Leaky gut, can contribute to a state of chronic low grade inflammation. Low grade inflammation also makes the Blood Brain Barrier leaky, and it loses control over what enters the brain.

According to The latest John Hopkins university study I read, RLS suffers have elevated levels of Glutamate in their motor cortex area. Glutamate is the excitatory neurotransmitter. GABA is the Inhibitory neurotransmitter. They need to be balanced. Leaky BBB can allow to much glutamate to enter our brains, causing more nerve activity and muscles that feel like the want to move. GABA is given to suffers to help balance the extra Glutamate.

So with all that, the combination of Magnesium, Valerian and Passion flower are aiding in GABA production. So next, I will now work on healing my Candida overgrowth, and see if Symptoms change again.

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Hi birdman..

It's all very interesting that you write..and I also believe the gut is connected to brain so to speak..and if not healthy causes leaky gut and inflammation.

I've just posted a letter (Sunday 10 morning)

And have found out a few things lately.

It must be so different for each person in varying degrees.

I think getting to root cause of rls is far better than dishing out all these different chemical tablets first.

Stress plays a big part..so now I'm drinking lemon balm tea..and ashwaghanda tablets..both worth looking up.

Best wishes

Jan

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Hi Jan. I have added ashwaghanda to my list. It's mixed into a tinture that is called adrenal tonic. I also added bee pollen into the mix too.

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Hi that's wonderful news what make is the passionflower tincture please

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A Vogel is the brand

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What is the story on how long you can take Celebrex? They say 1 week but I see it used sometimes for chronic conditions. Does age matter? It helps my foot neuropathy a lot.

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I've been taking it for months now, no issues and you can stop any time...there is no "rebound affect".

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Birdman, so glad to hear you've found the cause of your RLS. Seriously, I think you're one of the first people to have learned that it can come as a result of intestinal permeability, i.e. leaky gut. Yes people, leaky gut is REAL, and there are hundreds of studies documenting the many effects of it and how it relates to MANY diseases.

Having said that, I'm kind of surprised your doctor hasn't mentioned how celebrex can cause or worsen leaky gut. And it can actually worse bone and joint problems because it inhibits new bone formation.

But having said THAT, I'm not in your place, so I'm not sure how you would go about tapering off the celebrex and try to strengthen your spine so that you can get off of it for good. But at least you're on the right track! Again, congrats!

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I have actually stopped the celebrex now, because inflammation is not so bad since I changed my diet to the low FODMAP diet.

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Hi! Kudos to you for finding the cure.

Have read extensively about Passion Flower. It is a renowned method and with minimal side effects ( or so I've read). How do you take the tincture ? Like in terms of drops and when ?

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Good day!

I take 25-30 drops Ina glass of water usually before I get into the shower. Showers take about 20 minutes or so, then straight to bed. If I'm not taking my shower I usually try to aim for 15-20mins before I get into bed. :-)

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As in the you drink it ? I'm just curious

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Yes...it comes in tinture form...or the one I use is anyways

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Okay thanks ! Good luck

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Same to you!!!

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