The end

[Glutscone]

Just to say that my husband died yesterday morning from PSP. It's been a hard road but it's over now. He had been hospitalised with pneumonia and only able to swallow teaspoons of liquid and liquidised foods. He refused feeding tube and wanted to come home. We did manage that and he arrived at 2.0pm but died at 5.50 am the following day.PSP had taken so much from him since 2017. He had no mobility or balance. His eyes were only just functioning. He could not use his hands only a slight bit of one and could do nothing for himself. It's a terrible disease. He could not speak only say yes or no.I take comfort in that I managed to look after him at home until the pneumonia set in and that he got his wish to die at home. Cathy

[Bergenser]

Dear Glutscone, I am truly sorry to hear of your loss. It sounds like your experience was quite similar to mine a few months back, I hope it gives you much comfort that you were able to respect your husband's wishes and get him home. In my case that has definitely helped me come to terms with what happened. Please be kind to yourself, it could take many weeks to realise how exhausted you are - on top of all the other aspects of bereavement and grief. My thoughts are with you 🫂🧡💜

[123tirre]

Sending you my sincere condolences. My Dad died in very similar circumstances in April 2023. It is a terrible disease but you are both free of it now. I would also suggest that you are now kind to yourself.

[AliBee1]

My thoughts and prayers are with you as you face this new period of your life in which you need to be kind to yourself as he would have wanted. Love AliBee xx

[Barbie0108]

Dear Cathy

So very sorry to hear of your loss, I felt like I was reading about my husband Paul he passed away at home 1st June last year, it is a terrible illness and so unknown, I am still at a loss but feel our husbands are peacefully sleeping now, it’s been a long road take care of yourself. Barbara xx

[messier]

My deepest condolences. Be kind to yourself. You may feel relieved or angry or thankful or traumatised.

[Harshacceptance]

🙏 May your husband now rest in peace. Please be kind to yourself, I can understand how hard it is, it’s a horrible disease. You ensured his wishes were respected. 🙏

[Kelmisty]

Sorry for your loss, he is no longer suffering, take care of yourself now x

[KaffeeundKuchen]

Dear Glutscone,

I am so very sorry to hear this. It’s a truly dreadful disease. Sending you a massive hug xxx

[Marazion]

So sorry for your loss. His journey sounds very similar to Mums who we lost on 4th March although in a care home. This next period is tough so many practical formalities to sort out as well as needing time for yourself. I have been very grateful for support from friends and family and also from work allowing me time to process this stage (we also lost Dad only 15 months ago to vascular Denton and Alzheimer’s). Take care of yourself

[Troubleandstrife]

I’m sorry.I’ve been there. It’s devastating and it’s freeing to know they don’t suffer any more.

[Foxy25]

Peace at last . After the pain & suffering .

For you both I hope x

[Pspuser]

My sincere condolences., your husband is at peace now.

[Karen1981]

my thoughts are with you x sending a big hug and hope your okay. It’s a horrible disease and you have done an amazing job looking after him and loving him and should feel proud of that x all the best and may he now rest in peace x

[Bertieandpiper]

Dear Cathy

I’m so sorry for your loss. Sending condolences and a big hug. He is now at peace from this awful disease 💜x

[SunriseLegend]

my heart goes out to you

[Licquoricelover]

so sorry for your loss. You gave your all to your husband like so many of us on this forum. He was very lucky to have your care and love throughout this terrible journey. Take time for yourself to grieve and try to remember the happy times you shared. Kind regards

[Diggerandsam]

So sad I feel for you but as a fellow PSP sufferer I’m sure he would have welcomed the passing! I only hope they pass the Assisted Dying Bill before I get to that stage. I try to keep happy, but in truth I’m petrified

[Glutscone in reply to Diggerandsam]

Thank you. I do agree about the Bill we were both in favour and I wrote to my MP in support which was the only time I have bothered with politicians. Please do all the nice things that you can think of and create happy memories to think about and discuss when things get harder. Cathyx

[LuisRodicioRodicio]

Cathy you have done a great job and, in my opinion, you have made the best decisions. A big hug.

Luis

[Leosta]

Dear Glutscone, My sincere condolences for your loss. Do take comfort in the knowledge that you did all you could for your husband and that he passed away at home where he wanted to be, with you.I console myself that I was able to do likewise for my husband. It helps.

The road ahead will be tough. I sincerely hope that you have family and friends to support you in your grief. 🙏💟

[Golden63]

So sorry for your loss but your husband is now at peace and may the good memories bring you comfort ❤️

[daddyt]

So very sorry for your loss, Kathy xx🙏🙏

Tim

[Soltmany]

RIP

[salamandaX]

Condolences to you at this time. As you say peace at last for your husband. My mum has recently entered the final stage of this awful disease. Be kind to yourself and take all the time you need to both grieve and heal.

[LostinHeadSpace]

So sorry for your loss, Cathy!

[Jazzyjames]

Very sorry for your loss. Grieve your loss, be kind and gentle with yourself, and remember the good times, the love and laughter. A new chapter ahead of you. Sending all my love. Thank you for sharing.

[Girvangal]

I am so sorry for your loss. Sounds like you did absolutely everything you could do to honour and care for your husband right to the end. I hope you take comfort from that and the fact that your husband is free of the awful PSP

Take care of yourself🩷🩷🩷

[OperaLove]

blessings to you and your family

[Milocorn1]

Sending you love and hugs. So sorry. x

[Richard33]

Cathy,

I am so sorry to hear about your husband. This is a horrible disease and it is so hard on the carer. You did so well to look after him at home until the end. That is a huge achievement and doubtlessly improved the quality of his last years of life in a really important way. It is my only wish to be able to do the same for my wife Ruth.

Richard x

[Zerachiel]

So sorry for your loss, take care of yourself now 🫂