Pelvic nerve pain

[Furmummy2x]

Hi all.

A bit of background.

I have had 2 laps over 18months and nothing has been found but in the last surgery I was told that my nerves in my pelvis seemed 'hypersensitive'.

Tried various pain medication, antiepileptic medications, TENS machine and nothing has helped.

Has anyone else had this???

[helenlegs11 Volunteer]

I have been told this, but the doctor who diagnosed this (central sensitisation or CS) was wrong.

I'm not saying that CS doesn't exist, of course it does and pain management therapies can help significantly with this. However CS or 'hypersensitivity' is a diagnosis of exclusion and I wonder if they have looked at other differential diagnoses to exclude them.

What have they recommended for you?

Helen

[Furmummy2x]

Hi Helenlegs11.

No treatment plan or recomendations given.

The doc I saw suggested it might be all i my head and for me to see a physiatrist.

I still have endo symptoms but no endo found...

[wall in reply to Furmummy2x]

so sorry you had an answer like that Helen that is not helpful.. we do not make things up ..most folk want to feel well ..do not give up see another doctor ...then another if needed untill you get an answer and to someone to listen to you ...

Good Luck Margaret

[amma2]

What type of surgery did you have. I am going to have Pudendal Nerve Decompression and every one I talked to says it is painful but they are dancing, playing with grandchildren and climbing stairs plus they have control over bowel and bladder. Don't know if this info helps but I hope it offers something.