Hi everyone, this is very long winded but I am desperate so please read and tell me what you think.
I have had problems with periods for around 13 years and bowel probs. Had bowel checked at the time & all OK.
Saw gynae after passing a huge clot, told could be endo, decided to see what happens and managed to get pregnant.Lucky to have beautiful little girl.
Then had worsening monthly pain and really bad right sided pain along with pain in front of thigh (like being in labour, doc thought caused by back so given ibuprofen, tramadol and co codamol) went off after 3 days but still left with some pain and back pain on and off. Went on pill.
Had 1st lap,removed a twisted dermoid cyst on right ovary 2 years ago, the ovary was left in place. Also had very bad adhesions, womb stuck to bowel, in surgery for 2.5 hours! Told dont have endo.
Recovered from that but still had pain on right side and down thigh.Asked for second opinion.
Had 2nd lap 1 year ago. Removed adhesions, cleared tubes etc.
Still have same pain. Gynae said i PROBABLY have endo but he doesnt think that is causing my pain and I am a mystery!! (thats a big help). Then talked about pain management.
I was desperate, went for private MRI which showed another dermoid on same ovary which is stuck to bowel. Also said some "signal changes" that would suggest likely endo. On list to have 3rd lap to remove cyst and right ovary.
This has now been 3 years in total, cant work, cant get pregnant cos taking tramadol daily (have been since last op in June 2011). No-one seems to know whats causing my pain!!!
When endo becomes advanced with dense adhesions is it possible it's there deep inside and he cant see it? I have read this may be possible, the adhesions must have been caused by something!
I have all symptoms of endo, even down to feeling cold all the time, low immune system. I just had 6 months on prostap with hrt, stopped monthly pains, pmt etc but not this other pain that never goes away.
Have also had physio, seen chiropractor, had nerve tests,all private with no income, running out of things to try - the pain cant be anything else. Have tried amatriptaline in case nerve pain - didnt help.Could the pain be down to adhesions?
Any ideas anyone, please help!!! Cant take much more and considering hysterectomy, 39 now, but would like another child, running out of time.
Sorry its a long post but it's been going on for a long time!!