About to have surgery finally...

[Iris08]

Hello,

I'm new here after being redirected here by the NHS site. Here's a basic back story on me...

I had 2 children very young and very close together (18+19 both in August in 2008 and 2009) the second was a very traumatic birth that left me very badly affected. I was diagnosed with a prolapse after the birth of my second but told to do exercises to improve it, it has never improved and just got worse. I was diagnosed with endometriosis in 2018 via lapriscopse. I now have a very severe prolapse of the vaginal walls that includes the bladder, bowels, cervix and womb. I am finally having surgery to reconstruct and have a hysterectomy on the 10th August 2024.

I was called and told this morning, I think because my gp put an expidite letter in after i got yet another infection. I'm a bit in shock about it and not really sure what to expect, I don't know anyone who has had anything like this and on here from the little bit of reading I have done it is all from an older ladies perspective (which is perfectly fine by the way) but I am just putting the feelers out are there any younger people here? I'm 33 by the way.

And part of the reason it's been left so long with nothing done is the doctors didn't want to operate on a younger person, part was me burying my head in the sand (lady problems are so embarrassing when you are young) and then covid played a big part. But it is at the point where it can not be left now, I have never felt pain like it and i literally can not live life or do anything.

So if anyone has any tips, tricks, advice or just calming words I would really appreciate them!

Thankyou for reading.

[CecilyParsley]

Hi Iris, I am so very sorry to hear what you have been through. I cannot imagine how scared and anxious you are. I had an emergency hysterectomy at 39 after years of surgeries for endometriosis and to try and get pregnant. Sadly it never happened for me so my fear at the hysterectomy was taken over by grief at not being able to have a child. I did not have the additional issues that you have but I can tell you that I could not have had better care physically and emotionally. It is a big op but you will get through it lovely. Tell the doctors and nurses about any fears you have, ask questions, do anything you can to make yourself comfortable. Please let us know how you are and I wish you the very best for your op and a life without pain after it xx

[NiamhP]

Go for as soon as possible. I am just about to turn 70 but living with prolapse, especially to the extent you have it is not fun. I had hysterectomy, bladder and anterior rectocele repair and it’s been a game changer. It had impacted on my ability to do many things. I had urine incontinence and sun poo leaks, all now gone, no more embarrassing toilet issues I had a ring pessary for years and all the exercise in the world was never going to sort my prolapse problem. I went to a pelvic floor special physiotherapist, my pelvic floor scored 5 out of 5, so it was not weakness in that area though the anus was only 3 out of 5.

I believe you will find it life changing. Wishing you success and a full recovery.

[MissStar]

If you are interested in exploring alternatives to surgery you might be interested in Christine Kent's wholewoman.com approach. She has programmes for pelvic organ prolapse, non-kegel, instead its about breathing and posture to support pelvic organs. Best wishes for healing and a good life

[Konagirl60]

Passionflower pills are a natural anti anxiety. They might calm you down.

Make sure you will get pain relief post op.

I pray the surgeon does a great job and you heal fully. Keep us posted. Best of luck.

[NiamhP]

The emsella chair is great to restore muscle tone but given the severity of your condition it’s more likely to benefit you post op.