Nerve pain

[Sammy2005]

Hi I had hysterectomy fallopian tubes and cervix removed vaginally also sacrospinous ligament fixation done and posterior repair in September 22 I was supposed to have Anterior repair done Surgeon advised wasn't needed So I then had to have anterior repair done December 22 I've be suffering suprapubic/ Vagina/pain urine retention lower back pain since Anterior repair.

Surgeon advised he thinks nerve damage from sacrospinous ligament fixation yet I had no suprapubic pain urine retention after 1st surgery .Urogynecologist wants to do botox on pelvic floor muscles. If that doesnt work he then wants to remove stitchs from Sacrospinous Ligament fixation.

Anybody Suffer Nerve pain like this from pelvic surgery please advise its the pain I'm experiencing after urination and urine retention I'm worried about.

Thanks for reading

[Meze]

Hi SammyI had very similar experiences to you.

The pain is difficult to cope with and I totally understand.

Best way to deal with it I've found is gentle exercise. I have retrained myself to walk and restorative yoga helps.I do short physical activities ( 30 mins) then rest.Sitting is uncomfortable for me so I stand up.Swaying and dancing around the kitchen are good too.

I have a stand up desk at home.I regularly treat myself to a massage or chiropractor treatment. Warm baths in the evening help.

If all else fails I lie down on setee or floor and read!

I try to eat a healthy diet.Magnesium is recommended too.Swimming eases the pain if warm water.

Try to only do essential household tasks.No heavy lifting of anything. Get help to do those things.

Take life easy and be very gentle on yourself.

Sending love and a hug

Sarah xx

[Sammy2005 in reply to Meze]

Hi Sarah Thanks so much for reply

I'm currently taking Magnesium/ Malate I'm at wita end with all this waiting on urogynecologist to get back with a way forward I'm not interested in taking benzo medication

And a proper diagnosis what type of nerve damage happened with my surgery.

Best regards

Samantha

[Eagleflying1]

Hi Meze,

I occasionally have nerve pain in my groin.. Homeopathic Mag Phos 6x works for me.

Hope it helps.

Clive

[Sammy2005 in reply to Eagleflying1]

Thank you were do you purchase can I ask I don't get any rectal symptoms its mainly pain urine retention coccyx pain

[Eagleflying1 in reply to Sammy2005]

I'm in Uk, so Helios, They do send overseas.

[Sammy2005 in reply to Eagleflying1]

Thank you

[endoTHENmesh]

I have had a different nerve pain issue after surgery in the area. I found botox numbed the pain for about 6 to 8 weeks. During that time I worked with a myofascial release massager who worked to restore mobility to the myofascial tidsue through biweeekly work. The botox is now worn off. I am pain-free, as long as I weekly maintain the myofascial stretch (I do this myself). Scar tissue and adhesions can certainly cause nerve pain, and no amount of surgery will resolve that. I would try this first (with the assistance of the botox).Wishing upu well and hoping more surgery is not required!

[Sammy2005 in reply to endoTHENmesh]

Thank you so much Did you have back coccyx pain

[endoTHENmesh]

Yes, I had coccyx pain as well. An xray showed no break or displacement, so I guess the scar tissue was just pulling that as well. That is now just a nuisance, not pain feeling.

Btw the myofascial massager is a trained professional. Mine followed the pull of my scar tissue and gently stretched it, until I was pain free for short periods. She then taught me to do it and I was able to make those pain free periods last for days 🤷‍♀️

It is weird that one gets PT for ankle surgery, knee surgery, shoulder surgery... to avoid pain and disability from scar tissue. But gyno procedures have no PT follow on? Actually, in the EU pelvic surgery and childbirth do result in pelvic floor PT! Finally...

[Cookie24 in reply to endoTHENmesh]

Will you explain how to do the self myofascial massage?

[Sammy2005 in reply to Cookie24]

Thankyou Cookie Thankyou for your replyI'm currently under care of physiotherapy I started 10 weeks post surgery

Regards

Sammy

[endoTHENmesh in reply to Cookie24]

I think it is best learned by being a patient at a good facility, but...

Essentially, I have learned the to gently and slowly pull the skin and underlying tissue in the opposite direction. It tends to gather to one side when scarred or injured by surgery. For me that is up and out of my pelvic area towards my belly button. It is kind of like there is a netting under the skin that is holding everything in place. It is slow, gentle and a patient practice. I devote 30 minutes a day to this.

Try find a professional for at least a few sessions ... it is much cheaper than a surgical copay and a skill for a lifetime.

Best of luck!!

[Konagirl60]

I hope your pudendal nerve has not been injured by the second surgery.

Amytriptyline might calm the nerve down. Have you been offered a nerve pain modulator ?

[Sammy2005 in reply to Konagirl60]

I'm praying 🙏

[Sammy2005 in reply to Konagirl60]

Offered nothing

[Konagirl60 in reply to Sammy2005]

If the pain gets worse you’ll likely need something. Nerve pain is usually a sense of burning, tingling, feeling electrocuted and it doesn’t stop. Do you have that?

Can you sit pain free?

[Sammy2005 in reply to Konagirl60]

Booked for to see pain specialist next week gynecologist said it will he doesn't know were pain coming from .

[Konagirl60]

I hope you get answers. Good luck.

[Sammy2005 in reply to Konagirl60]

Feel so so low 😞 how do drs sleep at night

[Konagirl60 in reply to Sammy2005]

I ask myself this every day. First do no harm…has gone out of the equation.