pudendal nerve

[Dem74]

Hello again,

I am in the process of scheduling Botox to my pelvic floor, for 24/7 spasms that appears to be mainly in my rectum. I am waiting to see my surgeon because it will be done in the OR. On the paperwork it says

Anesthetic agent to pudendal nerve

Does anybody know if this is standard when getting Botox? I’m afraid to have the pudendal nerve messed with. I cannot speak to the doctor about this until a month from now. Wondering if anybody here had or knows something about this. Thank you in advance!!!

[feisty-girl]

Is it the paradoxical sphincter they are injecting botox into!!if you are worried I would get in touch with the secretary specialist and find exactly you are having if she can send you relevant information about procedure. Good luck

[Dem74 in reply to feisty-girl]

No they are injecting 200 units of Botox into the pelvic floor through the vagina

[feisty-girl]

Can you get a telephone conversation so you can be made exactly aware of the procedure.

[KH509]

I don’t know about your exact procedure, however I have had steroid injections into my pudendal nerve due to nerve damage. I have to say that it was not at all painful and did actually help with my particular issue.

[Muffinman22 in reply to KH509]

I have had pudendal neuralgia for about 3 1/2 years. The pain was exclusively in the perineum until October of last year. I have had botox and other treatments but I was wondering about the steroid injections you had done. Who performed this and how was it done?

[KH509 in reply to Muffinman22]

This was done on the nhs and was carried out transvaginally.

[Dem74 in reply to KH509]

I’m sorry what is NHS

[Pelviccrusader]

It is very uncommon, but I have had botox injected into my sphincter on several occasions. You seem to have two issues; are they in injecting the sphincter or the pelvic floor as well as are they injecting anesthetic or Botox? you have to insist absolutely ahead of time what will be done because they rarely have Botox on hand ahead of time and order it as needed. Botox only works when it is injected exactly where the problem is. It does not migrate very far. I am skeptical that injecting into the pelvic floor will work because it always seemed to me to be the lazy man’s approach – and other words they do not want to do the work to find out exactly which muscle needs to be injected. I have had this done once and it provided absolutely no benefit. However, the doctor that did it did say that he does get results with it sometimes and I do trust him. But it still just does not make sense to me. Good luck and insist upon knowing what they are going to do to you.

[Skye22 in reply to Pelviccrusader]

Confused by your statement about doctor not knowing which muscle to have botox injected in. I live in the UK and have been seeing a specialist physio for 4yrs as I have levator ani syndrome (amongst other things) which causes severe spasm in vagina and rectom. Physio treatment consists of physio identifying trigger points within the vagina and manipulating these points which can help relieve some of the painful spasms. This treatment is in conjunction with my consultant locating the very same trigger points whereby botox is injected into the pubirectalis muscle just inside the vagina. A local anesthetic is applied into your urethra to limit the discomfort. While this treatment is not a cure it allowed me to sit on my bottom for a short period like a normal person ( about 2wks) instead of being confined to bed. For someone who has debilitating chronic pain it is worth considering this treatment even if it is short lasting as In combination with meds it can help. In response to dem74 ,I think you should contact doctor/treatment centre for advice on your upcoming treatment as soon as possible it will put your mind at rest and you will be able to make an informed decision on whether you think this is the right thing for you. Good luck with your treatments and I hope we all get relieve however big or small. Apologies for the long post.

[Pelviccrusader in reply to Skye22]

I would have loved a treatment like this. So you had specific muscles injected for a specific reason . That was not the case with me as the doctor injected nonspecifically into the pelvic floor and never really did an internal examination. Thanks for explaining

[Skye22 in reply to Pelviccrusader]

That just sounds awful where are you located? I have suffered chronic pain for more than 20years and modern practices to health has certainly come a long way. I'm left with chronic I'll health due to ill advised surgeries that were promised to help my conditions. Surgery is no longer an option due to risks involved so with a fabulous team of 3 consultants, 1 physio and gp, all working together to put a care plan of treatment that will help me to manage my pain. I have tried lots of different treatments and it's good to share ideas and support on this forum. I am realistic in the knowledge that there is no cure but it makes such as difference to have a team of specialists who consult and support me. It's sad that you didn't get a positive outcome with your treatment I would be thinking maybe you should see a more experienced doctor. I wish you well and hope you get help with your pain.

[Muffinman22]

Hi Dem74,

I have been suffering with high tone pelvic floor issues myself with pudendal neuralgia that started in October of last year. I had botox injections done vaginally in March of this year. I am also on lots of meds but I feel like the combination of these things has helped a lot. We can talk more if you want.

[Dem74]

Hello,

Yes this is exactly what my diagnosis is. May I ask what doctor you went to, state? Also, will you need more than one Botox injection? Did you do Botox under anesthesia or in office? Any info is greatly appreciated. Did they inject into the pudendal nerve? Thank you

[Dem74]

Thank you everyone for sharing your thoughts!!

I wanted to ask if this was possible, I never had pelvic floor spasms until I went for a pelvic floor exam. I went for the exam for a small amount of pain, and pelvic veins issues. She did a pelvic floor exam and about 5 days later I went into full rectum spasms.

Could the doctor have pressed on or ignited some of the nerves. Did she damage something? I am devastated!!