Came here to share my experience and maybe get some support and advice. Anyway, I just ended my first year with pain in my anal sphincter, constipation, urinary and sexual problems.
In June 2015 I had laser surgery to reduce the size of my prostate. I was also having, at the same time, my third flareup in 4 years of what was diagnosed by a urologist in 2013 as Chronic Pelvic Pain Syndrome. Symptoms were mostly urinary which were waking me from sleep about every 30 minutes (strong urgency and frequency). I also had pain in my perineum and weird sensations in my penis.
After the laser surgery on my prostate things changed. The urinary symptoms improved and the perineal pain disappeared. They were replaced with a constant pain (4-7) in my anal sphincter muscle along with severe constipation. I also completely lost the sensation of orgasm. My doctor later told me he probably shouldn't have operated (he was new, just out of residency). Since then the anal pain has decreased maybe 10-20% and my sensations during orgasm have come back to about 50% of where they were. I continue to experience urinary urgency and frequency but that really doesn't bother me.
3 months after the surgery I saw a GE and was eventually diagnosed with Pelvic Floor Dysfunction. Did biofeedback which helped me pass stools but did nothing at all for the pain. So now I am seeing a Colo-Rectal surgeon. First he gave me a numbing cream which did nothing (sometimes made it worse) then valium (10mg x 3) which also did nothing. According to him my next step is a Pudendal Nerve Block.
I am trying to get into physical therapy before that but am having insurance issues since my hospital's coding doesn't recognize Pelvic Floor Dysfunction as something a male can get. I am also not completely convinced of the diagnosis.
I am not particularly optimistic about the nerve block resolving the issue but have been told that if it works then my treatment might change. I am managing the pain mostly with cushions and meditation. Cold packs work while I'm using them but later the pain comes back worse. Hot baths sometimes help a little. Marijuana makes the pain allot worse. The hydrocodone I've been taking for years for arthritis in my right knee barely makes a dent in the pain and I don't want to increase my useage of opiates.
If anybody has any insights or suggestions I would love to hear them. Like many others here this problem has turned my life upside down. The only good thing about this particular pain is that it seems to go dormant during sleep so I am able to keep it together during the day.
Bye for now.