Please help. My partner was admitted to hospital 9 days ago with an extremely painful bladder/urination problem accompanied by unquenchable thirst. A sudden and desperate need to urinate without actually urinating anything much at all, and then having to constantly retry. It also seems to have a neuropathic connection to her legs and through her back and up to her head. Pains intensify and travel up and down her body when she tries the toilet. She ends up in agonizing pain with almost complete loss of mobility through exhaustion and weakness from the episode.
She has been prescribed amitryptyline nightly and is in a hospital ward but the episodes seem to be getting worse.
She needs to go to the toilet- she physically struggles to get to the bathroom and tries to urinate. When its very bad the nurses have to carry her. Pain spreads to her legs and back and up to her head. She then feels her face and speech become affected by the sensation. Almost like a fit. Shaking and in terrible pain. Then nothing but a dribble of urine after all this exertion.
She has no infection, scans all come back with no visible sign of a problem. Pelvic ultrasound and xray and ct brain. They told her she was medically fit to go home. We had to battle to keep her in hospital because these episodes are horrific for her.
This all happened suddenly last wednesday/thursday when i took her to a&e. Nothing seemed to trigger it and we have no idea whats happening to her.
She is confused and scared. When the episodes die down and her body calms, she comes back to herself a bit. Then she can recognise the signs when it starts up again with the need to urinate feeling and pressure. Then she has to start this process again. Sometimes less severe, but sometimes very severe. It has been referred to neurology for next week sometime.
The thirst hasnt gone away and she uses a dry mouth spray as they put her on fluid restrictions. She oversaturated her sodium levels initially with the thirst.
Please help with some knowledge or recognition or advice because she is so lost in all of this. She was ok 10 days ago.