Pelvic issues: I have been diagnosed... - Pelvic Pain Suppo...

Pelvic Pain Support Network

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Pelvic issues

Sunlife
Sunlife

I have been diagnosed with pelvic pain along with abdominal pain. I have other issues as well but just had a few questions. I don't hear much about male pelvic pain and cannot find alot of providers/ therapists who deal in female pelvic issues but not males. I was finally referred to a therapist who did male pelvic issues (only one in area within 50 miles). When I first saw her she did a series of tests and proceeded to show me exercises to do. Everything was going well until the insurance decided they werent going to pay for the visits( it was okayed by them before I started). I got in four visits before I explained the situation of my insurance to her. She said she would like to have more visits but was understanding of me paying for the whole bill. My question is can anyone tell me what kind of exercises they do or if they recommend surgery to fix this ( they did remmend this if therapy didn't work). I am kind of lost with only having two or three exercises to do and not advancing any better. TIA.

12 Replies
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Hi Sunlife. Sorry to hear of your pelvic pain, I have it too. Where is your pain located? Mine is in left butt cheek. It's hard to recommend exercises to do because everyone's pain and its cause are different. My therapist has given me some yoga stretches to do which include happy baby pose and pulling knees to chest. I hope you get some relief from your pain!

Sunlife
Sunlife in reply to AuntieH

The perineum area. It seems tight and painful. The scrotum and the anus also causes problems too. My therapist had me started out. She thot she could do it in 3 sessions. I had three sessions and twice she did the electrodes to see how it was doing. In also had rib and side pain in which she was doing the dry needling sessions. I wanted more if the dry needling done because I thot the side was responding to it. Thank you for the wishes. I hope you can get better also. Not a fun thing to have.

AuntieH
AuntieH in reply to Sunlife

No, not fun at all. The worst part for me is the pain when sitting. I use cushions, but still can only sit a limited amount of time. You mentioned surgery, do you mean pudendal decompression surgery?

Sunlife
Sunlife in reply to AuntieH

Cushions last so long with me too. When I watch games on Sundays I bet I turn 100 different times to be comfortable. Not sure on surgery. They really didn't say and were hoping the physical therapy worked. Insurance stated they were going to pay then said no after I had 3 sessions. Not sure why. That's when I had to stop going.

AuntieH
AuntieH in reply to Sunlife

That's not right that insurance doesn't pay after only 3 visits. 🙁 Do you live in the states?

Sunlife
Sunlife in reply to AuntieH

Yes I do live in the U.S. I had met my deductible. Apparently they didn't think a therapist should be involved? I had asked the therapist why she (a therapist) and not an urologist would be involved with this kind of session. She said the urologists there needed more time for other things (surgeries and such). She said usually therapist deal with women pelvic pain and not men. She had seen that and decided she would learn about the male pelvic and do therapy for men also. She said it's mostly muscles anyways and therapists are more in tune to muscles than urology is.

AuntieH
AuntieH in reply to Sunlife

I live in the state of WI and my pelvic floor physical therapist is very good and sees males. If you live in SE Wisconsin I can give you her name.

Sunlife
Sunlife in reply to AuntieH

Sent you a message

After prostate surgery, I’ve been suffering from pudendal nerve entrapment. Sometimes it’s a searing pain from my rectum through my penis. There are so many nerves in the pelvic floor it’s difficult to find the cause.

I’ve been seeing a physical therapist for 2 months now. She’s one of 2 in my state handling male patients.

Things are starting to look better. I’ve learned how to drop my pelvic floor and loosen my muscles. Reverse kegel exercises help.

I now have a 20 minute stretching routine I do every morning. And throughout the day, I have another set.

She loaned me an interferential machine. It’s different than a TENS. Last night was my first night using it on a walk. It masked the pain really well. I did have pain after the walk when I turned off the machine. But I was at home so I did my go to yoga pose - the happy baby.

I’ve altered how I do things - bend slowly, don’t twist, don’t pickup heavy things, don’t rush small steps. Lots of stretches.

It took a long time to find the right stretches for me. What worked on others, made me worse.

Sunlife
Sunlife in reply to TTDD

I'm glad things are getting better for you. Yes I have pain in the penis also to above that to the belly button also. Like I said it goes up my left side into my rib cage. I work in a warehouse so hard not to be lifting things. I really wanted to been able to finish therapy and gotten more education on exercises. Yogabhadnt been mentioned yet but I had been wondering if it would help.

check out this book: A Headache in the Pelvis" when I began reading I realized there were lots of us out there. Its a type of issue where you suffer in silence - it can be a terrible thing. There are exercises in the book and instructions for self pt. Also - here is a list of PT's that specialize in this: pudendalhope.info/node/63 - you can get better - just takes time - good luck!

Sunlife
Sunlife in reply to RobertVerde

Thank you for your input. I'll check it out.

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