Chronic Pelvic Pain- Advice Urengtly Needed!!

[MichaelWilliams876]

I am a 27 year old male who has been dealing with chronic pelvic pain. About 8 months ago, I did kegals for about two weeks to improve my sexual functions. However, I started getting very sharp muscle spasms in my penis. A few days after the muscle spasms, I became extremely constipated and had very bad low back pain. I went to the hospital multiple times and did all the tests possible and everything came back negative and they mentioned nothing was wrong with me. My symptoms have included the following:

- Chronic pain around and below my testicles

- Muscle spasms in penis

- Weaker erections

- Loss of sensitivity (feels like I dont have blood flowing in that area)

- Constipation

- Low back pain

- Post dribbling

- Weaker urine stream

I have seen a Urologist as well and they recommended I see a Pelvic Floor Physiotherapist which I have been doing the last 4 months. My symptoms have slightly improved but the results have not been great. I have done various forms of stretching, deep breathing and workouts as well. My family doctor diagnosed me with "Irritable Bowel Syndrome with Constipation" and I also have a "Grade 1 Spondylolisthesis" in my back. The urologist had recommended taking "Balcofen" or "meloxicam" but I have been hesitant due to my bowel issues.

I really am hoping someone can help guide me for further help or solutions as I am beginning to run out of options!

[Tree_Tops Moderator]

Hi MichaelWilliams876 ,

I'm sorry to hear you're in pain. Have you had a scan of your pelvis and lower back?

[MichaelWilliams876 in reply to Tree_Tops]

Yes I have! Everything came back normal. I just have a "Grade 1 Spondylolisthesis" however I have had that for many years

[Tree_Tops Moderator in reply to MichaelWilliams876]

If infection and disease have been ruled out, your next step might be seeing a pain specialist who specialises in pelvic pain. If you can afford it, go private as you'll be seen a lot quicker.

What exercises has your physiotherapist suggested? I'm not a doctor, but it sounds to me that your muscles are still tense, and this will only exacerbate the pain.

I can't say how you will respond to the baclofen or meloxicam, as everyone is different, but I understand your concerns. It's best to ask your doctor to determine the best option for your specific needs.

As for your IBS with constipation, the only thing I can suggest that you probably already know is drinking plenty of water daily and eating foods high in fibre, which may help.

[MichaelWilliams876 in reply to Tree_Tops]

Sounds good I appreciate the response!! The exercises were to streghthen my core, hip flexors and glutes.

[VFR1200]

contact either the London Pain Clinic or Bristol Pain Clinic both very experienced in treating pelvic pain. Both private.

[MichaelWilliams876 in reply to VFR1200]

I live in North America sadly. Do they do virtual consultations?

[Tree_Tops Moderator in reply to MichaelWilliams876]

From personal experience, the London Pain Clinic offers telephone consultations, but I am unsure if they accept patients from other countries. You could email them to ask.

[MichaelWilliams876 in reply to Tree_Tops]

Will do thanks!!

[Kat791 in reply to MichaelWilliams876]

Hi, I know this is late, but if you are based in the US, The Pelvic Health and Rehabilitation Center has multiple locations across the US. They also offer virtual/telehealth appointments. They are supposed to be very good, and I have a friend who went to one of there locations.

This is a link to their website. pelvicpainrehab.com/

[Joan161]

Hi Michael, I’m just wondering has your GP did a blood test called PSA on you to test your prostate. Prostate issues can cause some of the symptoms you have described. Just thought I’d mention. If you haven’t had your prostate checked would definitely be really important you speak to your GP.

[MichaelWilliams876 in reply to Joan161]

Hi yes I have and the results came back normal!

[Agnessa]

Hi, MichaelWilliams876.

You should read a book written by Dr Wise and Dr Anderson “A headache in the pelvis”. You will find an exact story experienced by Dr Wise who found a method that helped him and other thousands of patients to become symptoms free.

You can check the website pelvicpainhelp.com where you’ll find a tons of information. There is a combination of external and internal trigger points releases, some stretches and the most important the relaxation that you have to do daily.

I’m having a pelvic pain for almost 3 years now. I visited so many doctors, most of them had no idea what is going on with me, often feeling abandoned. I was in so much pain, literally lost hope that my life will be normal again. Finally I was diagnosed with pelvic floor dysfunction due to muscle spasm.

The life changed after I read the book by Dr Wise and Dr Anderson “A headache in the pelvis”. This book is a “bible” for patients who suffers from pelvic floor muscle dysfunction.

I contacted Dr Wise via email and he called me back immediately. He helped so many people!

I was taught his method called Wise-Anderson protocol and I’m following this protocol at home every single day. I believe in his method now. I started feeling better in about 2-3 months of following the protocol. And now my life is almost normal again. I can travel again and enjoy some activities that could not do before. My pain is not so intense and my symptoms are improving.

Hope you will feel better very soon! Good luck!

[MichaelWilliams876 in reply to Agnessa]

Hi Agnes! Thanks so much for the response. I will check this out! Is there anyway to get in touch with you offline and chat further?

[iatrogenic-sausage]

I'm female so my symptoms aren't the same as yours. A few are, though.

There is one area which doesn't get mentioned a lot, and that's the thoracic spine. Fairly recently I found that there can be various thoracic conditions which cause issues with the nerves, either in the spine or peripheral. I suggest searching "thoracic spine pelvic spasms" or "thoracic spine " and see if any of it resonates with you.

I myself am just starting to work on this, but after I ran across the connection, I started putting the big prescription lidocaine patches on/around my T9, but not just anywhere it has to be at a certain location, and after wearing the patch for quite a while (ahem) it makes a difference in pain levels. (I think the length of time wearing the patch might have something to do with how long it takes lidocaine to transit x distance of flesh--there are some transit times here and there in some white papers, for example on ncbi.nlm.nih.gov/ or on frontiersin.org.)

So, I know there's something to it, for me. It's just a matter of tracking down what. I'm about to start dry needling that area and see if that will help, and am contemplating laser treatments, maybe PRP on those levels of the spine... I'll just have to see. Perhaps there's something there for you.

My hospital pain mgmt & neuro Drs are thus far not that interested, possibly because they don't know about the connection, possibly because they don't have a pre-existing treatment for that connection so can't justify explorations to insurance... their decisions tend to be weigh many factors besides finding out what's going on with the patient. There may be some element of not being allowed to experiment. But, there is more awareness of that sort of connection among body work practitioners, and more willingness to just try something and see, I'm finding.

[MichaelWilliams876 in reply to iatrogenic-sausage]

Thanks so much for the detailed response! I will take a look at this. I actually did PRP on my lower back a few months ago and it did help! I would recommend it!

[iatrogenic-sausage in reply to MichaelWilliams876]

Thank you! That's good to know. I'll move it up in my list of things to pursue!

[MichaelWilliams876]

Thanks so much!! I will review this