Pain blocks on NHS?

[Moomoosmum]

I've just spoken to the Pain clinic NHS in Stockport. Currently I have an appt to see them on 16th July, so I asked if any chance of being seen sooner. They do have a cancellation list and in fact they had phoned me about 3 weeks ago with a cancellation for the following afternoon, great I said, see you then. 2 mins later they rang back saying I couldn't have the appt. I had to complete an online questionnaire which I hadn't done as had only just been referred to them) so I said great, give me the link and i'l do it now, no she said, we have to send it to you in the post !!!!

I also said how soon after the consultation do you get to have the pain block. I was shocked when she said the consultant will advise, mostly it's within 2-3 weeks, but not everyone gets to have one. Depends on things like how long you've had the condition etc!

Anyone else come across this?

what do they expect patients to do, live like this for ever?

[Konagirl60]

Yes. They always suggest conservative treatment before doing anything like nerve blocks or surgery.

I find it utterly ridiculous that you couldn’t be emailed your questionnaire! I would complain to the upper crust of the health establishment with tact and the utmost courtesy. Good luck.

Eat pineapple...an enzyme in it helps pain. Try passionflower tincture....it calms the nervous system. Circumin helps pain to. All of these are natural choices.

[Moomoosmum in reply to Konagirl60]

Hi,. I've seen so much waste of time and resources on the NHS that its scandalous. I've been on gabapentin for a couple of months now. It hasn't done anything other than put weight on, so I'm going to wean myself off it.

Does your nerve dance around like a thing demented? Mine does. As I write, it's going so fast, side to side, that sparks are flying off.

I should have had my ganglion nerve block today but the doctor's secretary rang me yesterday saying hed hadto cancel all his list for today. Annoying and frusrating. So it will be 25th now.

[Konagirl60 in reply to Moomoosmum]

I’m so sorry that you’re living with neuralgia. I’ve had it for 11 years.

The worst thing you can do is to let it upset you....it’s not worth it.

I realize it hurts terribly.

Good for you weaning off of Gabapentin. By two weeks and at 1200/mg. day....no way! I couldn’t even think properly anymore. I wrote Health Canada and submitted my complaint form to them. It’s for seizures.....not neuralgia!

Have you tried any pain patches? Where exactly is your nerve pain?

[Moomoosmum in reply to Konagirl60]

Hi. It's interesting reading of others journeys with this. It's hard to describe it. It's mostly not the normal sort of pain. The violent side to side movement is more distressing. Sitting at my desk it is more painful. If you can imagine a circular saw slicing off your cervix is the nearest description.

I wonder if mine is a different type of PN?. I dont know what happens, but it must eventually stop at night time as I eventually sleep. If I wake in the night, the movement starts again

Occasionally a nerve in my leg twitches. Consultant says that would be right as the pudendal nerve extends down the legs.

I'm finding it very helpful reading other peoples stoties of this

[Konagirl60 in reply to Moomoosmum]

The pudendal nerve doesn’t extend down the leg. I may be wrong.

The nerve has three branches. The section that enervates the rectum, the section through the Alcock’s canal and the section that enervates the vagina, etc.

I’m curious? How can you tell it’s your cervix hurting?