Hi, I want to share my experience with this, I hope it helps. It is going to be a bit long, sorry about that.
In March 2011, the month I got married, I remember getting a bit sore down below, it felt like the onset of thrush. During the following months the burning sensation kept coming and going, each time it came was worse than the time before. The pain spread, to my bladder (I felt the need to pee constantly), my urethra, my reproductive organs (felt like a constant period ache) and then my legs. I also had this awful burning sensation when I pee'd. It was horrific. I had many trips to the dr and was prescribed allsorts of drugs, gabapentin amongst others and nothing helped and the side effects were not pleasant. I was referred to the vulval pain clinic in August and in typical NHS style I had to wait 3 months for the appointment. This was not an option for me, I was very depressed, I was not coping well with this pain at all, it was all too much. We decided to pay for a private consultation and went to the JR in Oxford. The appointment was disappointing, she went through all my notes and basically said that I was doing everything right and to carry on doing what I was doing. I had no history of pain like this, no infections, no medical condition that could explain it. At the end of the appointment she handed me a business card and said 'give this chiropractor a call, some people find it helps'. I was devastated. I left a very tearful message on this chiropractor's voicemail, I had absolutely no idea how this could possibly help me and was very sceptical. The chiro called me back before I had even got on the A34. We had a long chat on the phone, she made no promises, she said she does get 'referrals' from the JR, some women she can cure, some she can help and some, sadly she cannot. I explained my situation, she said she often finds that women with this problem have experienced a trauma to the lower spine, is this something I can relate to? I could not think of anything, then my husband recalled that I had fallen down the stairs about a month before we got married. We were getting ready to go out, I was walking down the stairs, I had tights on and slipped, my legs came out from under me and I landed full on my tailbone. Jesus it hurt at the time but I didn't think anything of it, I spent 24 hours in bed, hobbled around for a week or so and carried on.
So, I made an appointment to see this chiropractor, I was relieved that I may have finally found a diagnosis of sorts and a possible cure, finally I felt a bit more hopeful.
The outcome of the initial consultation was that when I fell I had badly twisted my pelvis, this had a knock-on effect to my lower spine and my pubic bone. In our tailbone area are millions of nerve endings that travel to our vulval area, bladder and reproductive organs, I had badly twisted mine and this was putting pressure on the nerves and causing the pain. The rotation in my pelvis had caused my spine to compensate and bend at the bottom, this was causing the pain down my legs. I also had a bad neck that was causing my headaches and sickness (this I had put down to stress).
So she did what she did, she uses the McTimmoney method so thankfully no bone crunching. As soon as we left I knew instantly that I was heading in the right direction with her, it was like a weight had been lifted. That period ache went straight away, the rest of the pain unfortunately got worse in the early weeks and months. But after a while I started to have less pain, then days that were pain free and that is when things really started to turn around for me. She was adamant that if you can have one pain free day you can have another and another and so on. After about 2/3 months I stopped the drugs, I don't think they were doing anything anyway. Very gradually things started to turn around for me, my sex life returned (not quite the same as it was before but just happy to be doing it again tbh), then I got pregnant and had a natural birth in November 2013 with minimum pain relief. I am still seeing this chiropractor every 6 to 8 weeks mostly for maintenance and on going problems with my neck. I experienced some vulval pain in the last couple of weeks for the first time in I don't know how long, I don't think I will ever be free but it no longer feels like a curse.
If anyone wants to talk or ask questions please do. I am not sure if I can help but I do understand and I will try.