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Pelvic inflammatory disease

DM14 profile image
DM14
39 Replies

So I have not long finished my antibiotics for PID and still feeling awful. I wanted to have a chat/support forum specifically for PID to find some comfort in talking to others.

Anyone out there?

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DM14 profile image
DM14
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39 Replies
Alaine1 profile image
Alaine1Administrator

Hi DM14,

I’m sorry you’re still feeling unwell. Are you feeling generally unwell or is there any pain? Is it possible you might need to have a second course of antibiotics? I would definitely book to see your GP or if you prefer you can attend a sexual health centre as they are the experts in treating PID event if it’s not related to sexual health. Some women although very low get it if they develop an infection after a mirena insertion although this isn’t very common.

I’d also look into probiotics as antibiotics also kill the good bacteria we need in our bodies. I’ve put a link on here which will take you to the nhs page. Some of the information will apply to you some won’t so please don’t be alarmed or worried by it.

nhs.uk/conditions/pelvic-in...

I’m hoping someone on here who has also had PID can come on here and give you some additional advice.

I hope this helps but keep on posting as this is a very common question

introuble profile image
introuble

Hi DM14,

What antibiotics did your dr gave you?

Hugx

*Please refer to your older post, maybe we can continue chatting there?

Kris84 profile image
Kris84

When I had this, they admitted me to the hospital for IV antibiotics for a week.

introuble profile image
introuble in reply to Kris84

Now you feel better?

Kris84 profile image
Kris84 in reply to introuble

I did..I actually got PID from an iud that i had inserted a week or so prior to the hospital visits..also turns out i have PCS..pelvic congestion syndrome..there is no cure for that so I'm constantly in pain. Once you get PID you are more susceptible to further bouts of it too..

introuble profile image
introuble in reply to Kris84

Hi

I'm so sorry that you're having pain from PCS..

are working? Have kids? How do you cope with your everyday routine?

Hugsx

Kris84 profile image
Kris84 in reply to introuble

I haven't actually been able to work since this all started back in april. I have 2 kids and a husband..daily routine goes right out the window most days unfortunately. It has been a nightmare to be honest.

introuble profile image
introuble in reply to Kris84

I’m so sorry... i hope you will be better , i love your positive and good strength!

Yes nightmares, the only happiness only in my dreams at night..

Keep in touch ya! Hugxs

MissyLucy78 profile image
MissyLucy78

Yes, I’m currently on antibiotics for PID. I came on here looking for support forums too and there aren’t any specifically for PID.

introuble profile image
introuble in reply to MissyLucy78

Hugs

I feeling better with antibiotics but when taking antibiotics my skin reddish a bit at my chest

And I always skip Probiotic pills..

Margaritamix profile image
Margaritamix in reply to MissyLucy78

How many days were you on antibiotics for PID before you started to feel better?

Jess1712 profile image
Jess1712

Hi I have recently finished antibiotics for pid and I am really badly suffering with pain in lower abdomen and awful pain during sex I can’t cope and I want more children :(

introuble profile image
introuble in reply to Jess1712

Oh poor dear!

How long did you feeling this way?

Jess1712 profile image
Jess1712

Been back and I have more antibiotics moxifloxacin and had a swab done for microplasma? Anyone else had this struggle! How long have people had it for and then told they can’t have any children?

introuble profile image
introuble in reply to Jess1712

update us the result!

For how long did you feel the pain?

introuble profile image
introuble in reply to Jess1712

Moxi very strong drug, hope u will feel better.

I had Moxi once too

introuble profile image
introuble

Today after i stop antibiotics, i feel something lingering in my lower abdomen :(

DM14 profile image
DM14

Sooooo much pelvic pain tonight in my bum!any suggestions?? A hot water bottle is not helping x

introuble profile image
introuble in reply to DM14

Oh no.. pain killer won’t do too right?

Hang in there!

PiscesWoman profile image
PiscesWoman in reply to DM14

I’ve heard Serrapatase and Wobenzyme help with PID.

introuble profile image
introuble in reply to PiscesWoman

Did you start using it?

PiscesWoman profile image
PiscesWoman in reply to introuble

Not yet. I will in the next week or so

introuble profile image
introuble

If i in pain, i massage my abomen with castor oil together with heating pad.. it reduce the pain a bit.. and i drink green tea to calm me down

Katieeeee profile image
Katieeeee

I’m on day 4 of antibiotics for PID. Mine was triggered by a huge amount of internal intervention following a pregnancy loss. I get real pelvic pain in my bum too so was actually a bit reassured to read the above comment!

Margaritamix profile image
Margaritamix in reply to Katieeeee

Hello Katieeeee, I’m on day 4 of doxycycline and still experiencing pain. How many days were you on antibiotics before you started to feel better?

DM14 profile image
DM14

An infection is back!!!!!

My urine sample got sent to the hospital to be looked at under a microscope and has shown further bacteria.

So back on antibiotics :(

introuble profile image
introuble in reply to DM14

Hugx

Did your dr concern and care about you for all this years? I hope you get better treatment :(

Did you follow any anti inflammatory diets?

I’m praying for you, may god ease your(everyone’s) pain too

Amen

DM14 profile image
DM14 in reply to introuble

I have seen various doctors... the one I have now seems to be the most understanding as she has endometriosis herself so can sympathise with pelvic pain.

Diets... I have done wheat free and gluten free but I am certain my issues is not affected by foods x

ChickenNugget45 profile image
ChickenNugget45

I have PID too I was diagnosed last month. I had always had pain during sex and everytime it feels like the first time. I thought it would just get better with time. I was treated with doxycycline and now I’m suffering with pain in my whole abdomen and pelvis, and it’s pulsing with pain. I’m not sure how I’m going to deal with this long term. I never wanted to be sick. Is this a disease or is it an infection? Because I’m scared this will happen to me again. And I don’t want to deal with it.

Kilia19 profile image
Kilia19

ChickenNugget45

I hope you are feeling ok today.

I am also feeling scared as I have not been diagnosed by the doctor.

Can I ask - What were your symptoms? What tests did the doctor do before diagnosing?

I have been to 2 different doctors in the last week. I have a dull pain on my left side of my abdomen. One doctor put me on PID med’s immediately and I have been on them for 5 days now. The pain has not gone away.

The other doctor has not ruled out PID but is more convinced I have a bladder infection because infection is only showing up in my urine.

I got tested for chlamidya last week and it came back negative but I had Chlamidya 4 years ago (and was successfully treated for it ) and it is because of this that I am now worried it’s PID.

Any info you have would be much appreciated. I am worried sick.

Thank you

Margaritamix profile image
Margaritamix in reply to Kilia19

I’m on day 4 of doxycycline and still experiencing pain. How many days were you on antibiotics before you started to feel better?

Margaritamix profile image
Margaritamix in reply to Kilia19

Hello, I know you posted quite some time ago but it seems like your situation is similar to mine. Today is day 5 of being on antibiotics (doxycycline) and I have very little or no improvement. How many days were you on your antibiotics until you started feeling better? Any detailed information is helpful. Thank you : )

rozamond profile image
rozamond

Mlpp

Southerngirl86 profile image
Southerngirl86

Hi, I’m very new here!

My gyno appt is in 3 days & im freaking out. I’ve had a history of bacterial vaginosis & I’ve treated it on my own (with boric acid suppositories) but over the last week, I’ve started having awful pain in my lower abdomen. I’ve also (over the last several months) started having bleeding during & after sex. But no pain with sex, no fever, no painful urination. So I’m not really sure what it is. What’s the exam like for PID?

I also had a cervival & uterine biopsy done 8 months ago due to an irregular pap so idk if that’s a cause or what

Kellbell9 profile image
Kellbell9 in reply to Southerngirl86

How did your doctor appointment go?

Alaine1 profile image
Alaine1Administrator

There is no evidence to back the use of these herbal pills for pelvic inflammatory disease so unfortunately we can’t recommend their use as general inflammation is very different as pelvic inflammatory disease is a very different process and needs aggressive treatment with antibiotics

Kkaryaw profile image
Kkaryaw

Hello how does that feel pelvic inflammatory I think I might have that is the pain like dull and constantly ...

Margaritamix profile image
Margaritamix

Hello, I know you posted quite some time ago but it seems like your situation is similar to mine. Today is day 5 of being on antibiotics (doxycycline) and I have very little or no improvement. How many days were you on your antibiotics until you started feeling better? Any detailed information is helpful. Thank you : )

Tarragon83 profile image
Tarragon83

I have been convinced that I have a PID for the past 2 years. Doctors in Ontario dismissed the presence of free fluid, regardless of the cycle phase, combined with the horrendous pelvic pain. Abs that worked at least to some extent include amoxicillin, clavulin and maybe cipro. Doxy and azithromycin (which did not do anything), from my understanding are better suited for things like chlamydia and mycoplasmas, since they don't have cell wall. My current GP, whom I switched to after frustration, confirmed my suspicions that my bacteria are likely opportunists like e coli, enterobacter etc, rather than STIs. These things usually appear up there in combinations and it's much easier to treat chlamydia and syphilis than these bacteria.

In Russia, they sometimes inject women with certain toxins like one from typhus bacteria to cause fever and strong activation of immune system. People say it works! Has anyone had a real fever, like 38-39 C for a few days after their PID began???

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