Pelvic Inflammatory Disease/Hydrosalpinx

[SophieR123]

Hi. My names sophie & I was wondering if anyone has any advice or any tips with suffering with these two conditions.

January 2019 I was taken really poorly being sick all the time fever in pain with my stomach my GP referred me to ACU at the hospital I was then in hospital for 1 week following. I had a laparoscopy that found a right hydrosalpinx and I got the diagnosis of PID. I’ve had my antibiotic treatment and done everything to help myself and I’m struggling to control my pain. I’ve had cocodomals all different strengths, Buscopan. I’m very limited to pain releif(tablets) due to me being on a medication Venlafaxine for Post Traumatic Stress Disorder.. I’m only 21 and I’m too young for all this problems with my women’s health. With the hydrosalpinx with having problems being infirtile is just something I don’t want to hear at my age. It’s been really hard and it’s been making me really struggle with my mental health. I’m awaiting a Salpingectomy(Fallopian tube removal).

Doctors have now diagnosed me with Chronic Pelvic Inflammatory Disease

If anyone has any tips or anything that’s helped them with pain or just any advise would be great.

Thanks in advance

[introuble]

Hi Dear,

I’m sorry for you pain!

I haven’t been diagnosed with PID but my symptoms more to PID

How bad is your pain dear?

Your pain got worse before laparoscopy or after?

X

Have you follow Facebook group for

Search : Pelvic inflammatory disease support group

[SophieR123 in reply to introuble]

Pain is really bad sometimes find it hard to walk and things that’s when I have a really bad episode and always just has been bad before I had the laparoscopy and is just the same severity

[introuble in reply to SophieR123]

Mmmm hugx

Did you on antibiotics still?

[introuble]

Before the laps, did they found anything during ultrasound?

[SophieR123 in reply to introuble]

Found nothing on the ultrasound at all

[Melissaidago]

Hi Sophie, I also suffered PID for a long time, heres what helped me, biofilm defense, take that together with the antibiotix prescribed to u, also have your partner treated.

[introuble in reply to Melissaidago]

Hi Melissaidago,

My i know what is your symptoms? You do have constant pain?

[Melissaidago in reply to introuble]

Actually, I had a lot of symptoms, breast ache, left side ache, neck ache, back aches, lethargy, leg aches. Had Been looking for a solution for 5 years til I discovered what suits my pid. I also used caya diaphragm to prevent bacteria from entering my cervix during intercourse.

[introuble in reply to Melissaidago]

Hi Melissa, do you have laparoscopy before?

[Melissaidago in reply to introuble]

No i didnt, one of my friends said, there is a possibility that infection would spread so i just satisfied myself looking for what medications would suit my pid. Its like im a guinea pig of myself. Labtests showed several bacteria including staph epidermidis, e.choli, enterobacter and a lot more. No abx cured my pid, i think they become resistant. I kept on researching the internet til i stumbled on the one that suits me. Doctors arent so helpful and very unsympathetic. I tried, herbals, which helped me, i decided not to take abx for a year or so and decided i will try biofilm defense together with abx after. Then after that the pain is gone.

[introuble in reply to Melissaidago]

What brand of biofilm defense are you using?

What herbal are you using?

Now you’re symptoms free?

[Melissaidago in reply to introuble]

Yes, symptoms free but i have to be very careful of not getting infected again or else i will go back to the same agony as before. The brand is kirkman biofilm defense. Its quite pricey but it helps. Im just not sure if it will work for u. It might if ur pain comes from the bacteria.

[AnonNeedingAnswers in reply to Melissaidago]

Did your period get lighter after treatment for PID? Please let me know

[Dipper1]

First, my thoughts and prayers.

I would strongly suggest with several comorbid conditions going on and with you being so young to go to Mayo Clinic Rochester for a complete workup to try to find what exactly might be wrong. If you cant go there, your local research hospital so that all the specialists can work together. Your doctors are treating symptoms, but you want to see if something is the underlying "cause" and get that treated. Next, see a respected Naturopath as they often can find the underlying issue and treat it.

Plz share this advice with others you meet in your life, it will be a game changer. Feel better!!

[Cutiepye60]

Unfortunately chronic pid causes adhesions scar tissue. I had to have full hysterectomy due to PID and to date still suffering with pain. I found butrans pain patch some relief. Make sure to go to dr if you get any fever .....a relapse of pid to catch it early

Sorry to hear your going through so much.

[introuble]

Hi Sophie,

How are you now? Hope you’re feeling better

[SophieR123]

Hi everyone I’ve a few updates. While awaiting to go to women’s health to talk about getting my tubes removed I was admitted to hospital on Thursday and stayed one night! I had a ultrasound scan then and a transvaginal scan showing a cyst.. also they didn’t see the hydrosalpinx which I had.. the antibiotics I had for PID infection must have cleared that up? Does that mean my tube is still damaged? Does that mean I’m still going to experience problems when trying for a baby? I’m confused I don’t have a clue anymore? I’m in agony absolute severe pain like I’ve never felt also got to go for further tests they think it’s not my kidneys... they say everything ok with my pelvis area even though I still have chronic pid and I probably have a damaged tube and the cyst on the ovary which she discussed could grow ha. And still apparently all investigations have been done for that area so they don’t think the pain is coming from there and in fact think it’s coming from my bladder or from my kidneys? Who knows? I had a blood test about 2 years back that did show abnormalities in my kidneys did the hospital go ahead to investigate why? No? I’m bored of being in agony. I want to go back to work I’m not eating drinking or sleeping my mental health is at it’s worse and even considering suicide cause I can’t cope. At the doctors again today because I need some closure I need some help what’s going on cause one minute I had some answers and the next I’m back to square one and not know what the hell is going on. Anyone got any advice that would be greats. Thanks

[introuble in reply to SophieR123]

Hey sophie! I’m sorry that you have to go through pain

Hope you feeling better today

Hugs

[AnonNeedingAnswers]

Did your period get lighter after treatment for PID?

[introuble in reply to AnonNeedingAnswers]

Yes lighter period for me, i ask my Dr and he said don’t worry about it