I will put a TMI warning here, but I really need to vent this out somewhere. I also hope that maybe someone might be able to offer advice or suggestions. I have been dealing with increasingly worsening pelvic pain for the past two years. I have always had horrible periods, ovulation, and migraines, but a little over two years ago I was going thru a very stressful internship and ended up having a large amount of blood in my urine. Thus starts my adventure into despair without a seeming end to it.
I went to my PCP and he ran the usual tests, everything turned up normal and no blood was present in my urinalysis. I was referred to my GYN. My GYN referred me out to a Uro-GYN and she checked my bladder for IC. My bladder was healthy and endometriosis was suspected. After he telling me that I would just have to live with it and get hormone injections I asked if we could check to make sure and remove any adhesions that were found in order to reduce the pain I was feeling.
*A note on the pain: it is an almost constant burning, with pressure and intermittent cramping and stabbing. It radiates to low back and down my leg. My joints ache and are stiff. I suffer from allergies and GERD. I have Migraines multiple times a week and one of my main triggers is hormone flux.
She reluctantly did a laparoscopy and found nothing. I asked if I could try the mini pill before injections as I am sensitive to hormones and she said they did not exist. I then returned and received my mini pills from my regular GYN. The mini pills helped and I did not have periods for a year (a blessing as my periods are AWFUL, severe bleeding and cramping that leave me toilet or bed ridden with 24/7 heat pad use for 7 - 10 days). Unfortunately, after a year my periods returned and I started spotting. Periods every 3 to 6 weeks, periods lasting 3 days or a month long. I was being checked for anemia but hemoglobin was always in the middle range.
I've been checked from RA, I've seen an Endocrinologist who has checked me for a wide variety of hormone related issues. Everything always turns up fine. My GYN said that I had her blessing if I decided to get a hysterectomy and referred me to the specialist at her clinic. Unfortunately he has seemed to brush me off as having IBS with there being no cure and I just have to live with it. I do not have symptoms consistent with IBS, I get diarrhea/constipation when I have hormone flux and diarrhea associated with my migraines. The pressure I have has never resulted in excess gas. BM and urination have never relieved symptoms, but often have the opposite effect. Some foods do upset my stomach, but I have GERD and allergies. Since cutting out gluten 7 months ago the pain I used to have in my stomach (above and around belly button) is gone, the only pelvic pain is much lower.
I am severely depressed and frustrated that no one is listening to me or thinks that I am lying. My family sympathizes, but I can tell they are starting to have doubts that this pain is real and that it is all in my head.
I am seeing a Pain Management Doctor and they are recommending Injections. The pain pills I am on help, but I think they might be making my depression worse. I am taking Norco 7.5/325 3x a day (I cannot take NSAIDs as they cause severe abdominal pain, the max I can take is 250 in an Excedrin for my migraines).
I see the curmudgeon GYN in two weeks to let him know how the increased norethindrone is working (I am no longer bleeding or spotting, but pain level is still the same and I have even worse daily headaches and have developed leg cramps).
I see my Pain Management Dr two days after the previous appointment. At which time they will want to try injections. I am very terrified of getting injections as I am fairly sensitive to medications and when I had the laparoscopy I found the resulting nausea to be worse than the pain.
Thank you for taking the time to read this. If anyone has additional questions about symptoms or history please ask.