Help please,in pain!

[Lanloon]

Hello everyone my name is Eleni I have vulvodinia for 3 years now.Just resently I ve been diagnosed.Same story here,pain like burning on the vagina and butt.Seen thousand docs most of them they don't know and can't provide any help.I am based in Dubai...and trying to find a right treatment.Right now am using xylocaine which makes me feel a bit better only for 1 hour or less.The last doc wanted to prescribe me with antidepressants but I didn't want to become a zombie.Right now with all this pain I might consider them.I am looking for any advise on what to do next .Shall I see a neurologist?Shall go for botox...acupuncture.....?Which specialist is the right one ?I figure out Gynos they are not really aware with the condition?Any suggestions

[Lisa11]

Try amitryptline or lyrica. Don't suffer anymore. The amitryptline has calmed my pain.

[Lanloon in reply to Lisa11]

The thing is I am so afraid to take antidepressants for all the side effects.

[Jenuk32 in reply to Lanloon]

Amitriptaline on a low dose doesn’t give many side effects I take 10mg at night and it makes me fall asleep easy and still works in the day and I don’t suffer with constipation with it

[bantam12 in reply to Jenuk32]

Do you get any side effects ? I was prescribed 10mg of Ami but I don't tolerate meds very well so I haven't taken any yet.

[Jenuk32 in reply to bantam12]

It’s been fine for me just that in its own no others. Just try it on a weekend on the night so if you feel a bit groggy next day you can just have a Pjama day! The only side effect I get is dry mouth when I wake up but I just have a drink next to me ready

[bantam12 in reply to Jenuk32]

Thanks, I'm worried about the grogginess as I already have chronic fatigue and heart problems, I'll have to be brave and try it I guess.

[Mrworrymaster]

My wife hasn't started the anti-depressants (which they found actually work as a nerve-blocker of sorts-this is why the prescribe them- I know it seems a bit odd) because she's breast feeding.

She does pelvic floor training with a PT, and tries to eat a low sodium diet. She also only wears cotton underwear and sleeps without them in the evening to avoid irritants.

She doesn't used scented soap there either. The basic idea is to keep things there non-agitated and irritation free.

We still can't have sex, but she's hoping to in the future with more treatment. She's now only in pain if she tries to have sex, other than that she's good.

That may not sound great, but it's a hell of a lot better than being in pain all the time.

We're planning on trying acupuncture soon too.

Take it one day at a time, I hope you find something that helps.

[Lanloon in reply to Mrworrymaster]

Thank you so much for replying am doing the same things as well but still some times don't help.I will start acupuncture and PT.

[Lisa11]

Acupuncture has not helped me so far. It's been a month. I would say to try the antidepressant and if u have side effects then go off. I have not had any. Sending wishes for healing for all of us! Lisa