Chronic Pelvic Pain (on Depo)

Hi, asking for some help, advice... I suffer from what I have self diagnosed as chronic pelvic pain... I get pain bouts approx every 2-3 months (so not monthly, but at the same time each month when they occur), the doctor asks about on a scale of 1-10 where is the pain, honestly sometimes its a 12 or 13 so off the charts. I've been on depo for years so dont actually get periods, although when this pain flares up my nipples get extremely sore which leads me to believe its hormonal. I've tried most pain meds, anti-inflammatory, anti-spazmotics, amitriptiline etc, I've had scans, xrays, ultrasounds and a laparoscopy to look for endometriosis, nothing found or conclusive.... yet I still suffer with debilitating pain. Right now I'm in day 4 of continuous 24 hour cycles of pain episodes with no more than 1-2 hours between pain attacks (including right through the night!). My mother suffered the same as me and had a hysterectomy which worked for her, this is something I really want and am trying to get a referral to gyno for the 3rd time in as many years, any help, advice or suggestions would be welcome, thank in advance.

[KaseyKat]

K,

I recently received a stem cell paste injection into my damaged pudendal nerve area. I suffered with chronic neuropathic pelvic pain for 20 years. I developed pudendal neuropathy after a vaginal hysterectomy due to a vaginal cuff abscess. This stem cell paste injection contains a very high concentration of stem cells. The stem cells will be healing and combating inflammation. The stem cells stay at the injection site for 2years. My stem cell physician is the first physician to treat pudendal neuralgia in the U.S & Europe. If you would like more information about the stem cell paste injection, please send me a message.

[Daniella4 in reply to KaseyKat]

Hi Kasey, I live in the U.K. and have been suffering fr0m pudendal neuralgia f0r 6 years, I w0uld be very interested t0 have m0re inf0rmati0n regarding y0ur Physician and the stem cell paste injecti0n. If y0u c0uld please let me kn0w his name and h0w t0 c0ntact him. I am s0 very happy f0r y0u that the injecti0n w0rked f0r y0u. It s0unds very pr0mising. I thank y0u in advance f0r any inf0rmati0n 0n this pr0ceedure. Many thanks D4.

[Chinam in reply to Daniella4]

Hi Daniella4.

Have you made any progress regarding your inquiry about a stem cell clinic in the uk for pudendal neuropathy. I live in London and have been held down in the last six months by this terrible affliction.

Chinam

[Ali_rivers in reply to KaseyKat]

Hello Kasey,

I also suffer from pudendal nerve damage and I e been receiving nerve blocks every 6-8 weeks. Not only is this pricey but I fear the nerve blocks will stop working. Is love to receive more info on the stem cell paste. I'm in AZ and I've asked my Dr & he said they didn't find the stem cell paste to be successful for those that tried it. I hope you have better news as I'm a single mom with 3 kids looking for a break finally.

Thanks,

Ali

[painistoomuch in reply to KaseyKat]

I'm about to get stem cell injection after suffering with PN for 4 years and trying everything else. How quickly do you feel pain relief. How long does the relief last. My PNE also is affecting my left leg causing pain down the entire leg and atrophy. Did you or any one reading this have these symptoms. I am in the Boston, MA area and getting my injection on the 31st of this month. I am hopeful. Please tell me more. Thank you

[anne77 in reply to painistoomuch]

FYI--"kaseykat" has been kicked off of this site b/c she has given out misinformation several times and has tried to refer doctors ( by name) for stem cell injections, which is not allowed on this forum. I learned the hard way by wasting a HUGE amount of money on a stem cell injection about 1 1/2 years ago. It was supposedly for a study, but it was not covered by insurance, and after it not working for me after about 6 months, their office never contacted me again. I hope that your situation is totally different, and that you are covered by insurance and have a legitimate doctor doing the injection!

[anne77 in reply to anne77]

AND, btw, I am very surprised that the administrators have not removed this post which was written 2 years ago by "kaseycat" like they have all of the others--they must have missed this one!