Pelvic Pain Support Network
9,439 members3,016 posts

Best pelvic floor clinic in UK?

Hello!

I wonder if anyone of you have a suggestion of a good pelvic floor specialist/surgeon in UK? I have problem with obstructed defecation and have had two surgeries already.  I now considering a stoma operation but what to investigate any other options first.  I would be very thankful for positive (or negative) ecperience of colorectal surgerons anywhere in UK!  Is someone  have a experience of London Colorectal Grop for exampel?

12 Replies
oldestnewest

Hi Junet

What's the cause of your obstructive defecation? I have this too and have recently had an op in Bristol. I'm only three weeks in, but not having good results as of yet. I've been told to be patient. I had LVMR.  What have you had done already and where? I know there is a team at Oxford. I've not heard good things with St Marks in London.

Reply

Hi, horrible results in Bristol. Check my posts and replies to see what I went through. I believe in Oxford they do the same.

Reply

Thanks for your answers! I have done one suture rectopexy and one LVMR, the last one in Bristol. Would prefer to have a second opinion somewhere else. I thought St Marks was a bowel specialist hospital, i was thinking of maybe going there, what have you heard about them ethome? Hope you will get better with time! 

So sorry about your story failedsurgery.

Reply

If you had LVMR in Bristol then most likely you have rectal kinking from the mesh. The LVMR caused the same for me - could go only a few pellets at a time. Don't do stoma since the kink could be released.

Reply

They used biological mesh and glued the posterior part of rectum to one lady. It failed within 5 weeks and she now has nerve damage. She says she was a guinea pig. They may have reviewed this technique but worth noting. 

Reply

Can I ask what Bristol has responded with in regards to your failed surgery Junet. Thanks

Reply

 My first surgery was unsuccessful and the on I Bristol was suppose to fix that one, so the first one was really the problem. 

Reply

I had clorecta surgery at UCH not successful

Reply

What is ICH?

Reply

I read on another post that you were told it was all in your head about your pain. I have been told the same. I know my body I have lived with it long enough to know things are not right. 

Reply

I feel a victim of a scam. My Bristol surgeon told me that other surgeons don't believe him because nobody can replicate his published results, but this is only because nobody is doing it right and only a grand surgeon like him can achieve such outstanding results. And now that I  incontinent, in pain and mutilated for life the dismal results are attributed to be in my head.

Reply

I really feel for you. I am going to pm you.

Reply

You may also like...