No diagnosis - Told "Neurpathic pain" from colorectal surgeon treating for fecal incontinence. Told first by GPs I had IBS for many years, even though people all the time shouting abuse at me for fecal smell in public, even though no real leaking. Finally I paid to see a private specialist for fecal incontinence because the NHS was just treating me like a piece of sh*t. Had solesta procedure twice. Mentioned at the time minor burning sensation on front of lower abdomen. Told neuropathic pain and may never get a diagnosis for FI. Had a few colorectal investigations no structural defects.
Symptoms now have got worse-
Left lower abdomen burning sensation constant, but changes in intensity
Left side of perineum feels 50% numb. Anus still contracts on both sides, not sure if L side is weaker. Wet feeling when walking around, but no liquid to wipe away 99% of the time I check. ? smell gone. Don't understand, very worried
Left side of back of scrotum same numb feeling
Muscle twitching in in perineum, anal canal and inner upper thighs. Sudden, sharp pain (like a needle stab) sometimes in feet
Twitching and numbness worse after sitting down for a long time, and perhaps also lying on left side. WHen lying flat on back, on stomach or on right side, symptoms all virtually disappear
Does anyone know if this sounds like pudendal neuropathy?
What doctor should I go see for this in UK? I don't mind travelling across UK or if private or NHS
Thank you in advance