Symptoms
No diagnosis - Told "Neurpathic pain" from colorectal surgeon treating for fecal incontinence. Told first by GPs I had IBS for many years, even though people all the time shouting abuse at me for fecal smell in public, even though no real leaking. Finally I paid to see a private specialist for fecal incontinence because the NHS was just treating me like a piece of sh*t. Had solesta procedure twice. Mentioned at the time minor burning sensation on front of lower abdomen. Told neuropathic pain and may never get a diagnosis for FI. Had a few colorectal investigations no structural defects.
Symptoms now have got worse-
Left lower abdomen burning sensation constant, but changes in intensity
Left side of perineum feels 50% numb. Anus still contracts on both sides, not sure if L side is weaker. Wet feeling when walking around, but no liquid to wipe away 99% of the time I check. ? smell gone. Don't understand, very worried
Left side of back of scrotum same numb feeling
Muscle twitching in in perineum, anal canal and inner upper thighs. Sudden, sharp pain (like a needle stab) sometimes in feet
Twitching and numbness worse after sitting down for a long time, and perhaps also lying on left side. WHen lying flat on back, on stomach or on right side, symptoms all virtually disappear
Qs-
Does anyone know if this sounds like pudendal neuropathy?
What doctor should I go see for this in UK? I don't mind travelling across UK or if private or NHS
Thank you in advance