Pelvic floor dysfuction : I have been... - Pelvic Pain Suppo...

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Pelvic floor dysfuction

Alyssa5
Alyssa5

I have been having rectal pain for the past year; I've tried Botox, monthly visits to pt and my muscles are still tight! How long does it take to heal this pelvic pain?

17 Replies
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Look up the Pudendal hope closed Facebook group online. Have you tried any nerve blocks?

Alyssa5
Alyssa5 in reply to Pepper1977

Yes.. I had two ganglion nerve blocks but there was no pain relief. If I just have tight muscles why are they not relaxing!!! So frustrating

Hidden
Hidden in reply to Alyssa5

Hi Alyssa,

What sort of pain do you have? Did you have a particular test done to confirm tight muscles?

Regards

Pepper1977
Pepper1977 in reply to Alyssa5

Try compounded suppositories with valium and baclofen

trishj46
trishj46 in reply to Pepper1977

Can they be used rectally? Thanks!

trishj46

Pepper1977
Pepper1977 in reply to trishj46

Vaginally or rectal yes. They will help relax pelvic floor muscles

trishj46
trishj46 in reply to Pepper1977

Thank You Pepper 1977!!!! Your in my prayers!!!

trishj46

I have pain rectally; painful bm, burning sitting pain. I don't have PN.. But the tight muscles irritate the nerves..

Alyssa, I have made some good progress by taking the Baclofen for the spasms. My PT examined me today, upon palpitation of my muscles everything was much less painful and she said my pelvic floor was more relaxed.

She was pressing quite hard according to her, and my reaction was not the usual response of intense pain. Especially my left obturator internus muscle.

Negatives so far I have noticed with the medication is its quite sedating, but will hopefully wear off with time. Taking 5mg 3 times a day.

I have also been referred to a new pain specialist as recommended by my physiotherapist. She has recommended perhaps some anaesthetic injections or something to soften my scar tissue. We have worked out I have one area of scar tissue in particular which could be causing the majority of my symptoms.

Pafen,

Good for you that you are making some improvements; I have some good and bad days which is quite frustrating! I had a phone consultation with my doctor on monday and she basically said that I had neuropathic pain (nerves are sensitive and sending the wrong signals) so she has suggested medication. I am afraid of the side effects but can't live with this burning sitting pain anymore.

I know you mentioned that your doctor is not keen on the idea of Botox but I would suggest that you find someone that can do it too see if it helps with the spasms. My bm are less painful 1-3 after Botox...

I don't have PN/Pne... Still working on some muscles since some have improved and others still need to worked on. I have pelvic pain where pressure is applied (butt checks and sacral area). If I am sitting its on my buns, if I am laying down its on the sacral area. The nerves are just irritated and not matter how pt I am doing it seems that they are not calming down.

If its not one thing, it's another... now I am dealing with central sensitization.

Hidden
Hidden in reply to Alyssa5

Any update? You symptoms sound similar to mine. I have had Botox injected and it helped for a few weeks but now I'm back to severe pain following a bowel movement. So frustrating! Have tried Valium suppository once but it seemed to irritate further. My physio is convinced it's too tight pelvic floor and I've been doing internal vaginal stretching as she suggested but I can't feel the difference yet ...

Did your pain go away after Botox (when the pelvic floor was relaxed)?.. My pain did not so it was determined (in my case) that it was not the tight pelvic floor causing my pain, instead it is my brain sending the wrong pain signals (central sensitization). My central nervous system I'd stuck in fight or flight mode and I need to calm it down.

Hidden
Hidden in reply to Alyssa5

No I seemed to get worse following the Botox procedure but was told it would take 2 weeks to really kick in. The trauma of having it injected, I don't do well with anasethic etc seemed to cause more pain than the original diagnosis! After 2 and a bit weeks I noticed some relief but not total pain coverage. I can't seem to locate any trigger points, internally or externally, nothing is extremely painful to touch which makes me wonder if I'm not getting diagnosed properly. whilst I do notice some random tightness when stressed or anxious nothing compares with the pain following a BM! am seeing Natropath as well and chiropractor but nothing specific seems to be working. I thought it was worse at certain times during the month around my period and ovulation but then other months the pain seems unrelated to my cycle. I had a flexiscope to rule out bowel issues but it revealed no abnormalities. Also transvaginal scan but nothing out of the ordinary there either. Have tried tramadol and endone but no relief. Also tried a month on endep but this seems to be constipating so went off it. Any suggestions for pain relief? Have you tried balcoflen? Have you noticed any links with food? Thanks for responding!!!

Alyssa5
Alyssa5 in reply to Hidden

In the beginnning i felt more sensitive close to my period as well but then I realized that it didn't matter if I was on my period or not. The pain was the same. My pain does not seem to increase like others it is just steady. The pain only increases when pressure is applied to the painful areas (sacrum, butt cheeks and now front and back of thighs). so sitting/ laying down is painful for me to do.

Alyssa5
Alyssa5 in reply to Hidden

I had Botox under sedation, after I woke up I felt just a little sore around the butt cheek area (since the Botox was placed in the levator ani muscles).. I did not feel any worse though.. I felt a difference within two weeks. Pain with bm's decreased dramatically.. I now don't have issues with pain during after bm's. it's the sitting/ pressure pain that I need to heal.

Have you tried vitamin D and magnesium? Both are great to help with muscle relaxation.

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