Constant Penile Pain for 8 months, please help!

Hi everyone,

This all started for me back in February '15. Im a 24 year old male btw. I woke up one day with burning and extreme tenderness in my penis, quickly followed by burning upon urination and a penile discharge. I had what the Drs diagnosed as a prostate infection, as every other other test for std, uti, etc came back negative. All was well when I took Cipro and the next morning I awoke totally symptom free. 4 days later I had been sitting a while (I was on a long flight) and I awoke to the pain back right where it was in my penis. Not sure if this has anything to do with it but the day prior I had sex as my Dr told me frequent ejaculation would help the prostatitis, so I figured why not. I just assumed that the infection had returned but there was no more burning on urination, or discharge.

I've been tested for everything time and time again. Everything is negative. I have done blood tests, everything is normal.

Since I've been "diagnosed" with chronic Prostatitis/CPPS. Every urologist I've seen says my prostate feels pretty normal so they doubt it's the prostate causing my issues. I've had MRIs of the pelvis and lumbar spine only to come back normal.

I bought into the theory that perhaps the infection could have caused CPPS, but I've been doing physical therapy (trigger point release, pelvic floor stretches) with a pelvic floor therapist for 2 months now with very little relief. My muscles were really tight to begin with, but I think this is more of a product of the problem rather than the problem itself.

The pain hasn't abated at all since it returned back in February. I would describe my penis pain as burning/stinging/tingling. It is also hypersensitive to the touch. If it rubs against my underwear the pain is unbearable. I had to switch from boxers to briefs because of this. I have some urinary hesitancy as well. But these are pretty much my only symptoms.

I have noticed though that my urethra appears to be inflamed though, perhaps enlarged for whatever reason. If I have some leftover semen after ejaculation it sometimes dries over at the top and crusts over.

The closest thing I can find to my symptoms is Pudendal neuralgia. My theory is that the infection developed some scar tissue which might be trapping my dorsal nerve somewhere along its pathway (perhaps also causing the urethral inflammation?). I just pray that no permanent nerve damage has occurred.

Just looking for any advice or even better someone with a similar experience that can offer anything--any help is appreciated. Thanks everyone.

104 Replies

  • Sorry I am no expert in male issues, but it sounds unlikely that you would entrap a nerve so quickly from a one off infection ? There is a man called David Mcoid, he has a FB site Freedom From Pelvic Pain, I know he has used Restorative Excercise on himself, and helped lots of other men, If you get no other suggestions via this forum, as I noticed posting is a bit hit and miss whether you happen to catch anyone in the no, there is also a UK pudendal neuraligia , can't remember the exact name, but it was not the same as the US site. From what I recall it had "bladder issue people on " I was diagnosed with nerve entrapment via Nantes team, but had no infection prior to that, just a physio irritating nerves and charging me money to do so.

  • Thanks so much for your reply. I didn't mention that I had the infection for 14 days before it was properly treated. It was mistreated as an std in the beginning. So I think it's possible for scar tissue to develop, but of course I'm just speculating. When I was given the correct antibiotics the pain went from on to totally off. And likewise when it returned, from totally off right back to on as if someone flipped a switch.

    I will look into freedom from pelvic pain, but I'm not sure this would help me as i had no problems prior to this seemingly ordinary infection. Perhaps this would have happened to me eventually, the infection just kicked it off.

  • Look up the closed pudendal hope neuralgia Facebook group, the are men on there

  • Redraws - very similar to the trouble I had and have had no real luck in getting rid of either , be interested to know how U get on , think mine is nerve related and got sick of my gp looking at me like I was a lunatic so haven't been back in a year, just miserable n suffering .

  • Sound like an infection and also PN, but I'm not a doctor. I use xylocaine ointment 5% 35g tube every hour or two for pn pain. It isn't ideal and is expensive but it is the only way I can have any life. Had decompression surgery years ago, no change in pain. Trying pain clinics and occasionally systemic meds but have tried them all.

    Don't use Emla, as it needs to be wiped off. I have to wear pad liners to catch the moisture from ointment but at least I'm not it total agony all the time. Good luck!

  • Hi, why not go to a special treatment clinic, don't be embarrassed. You will be screened very thoroughy and see a doctor who can refer you if the pain is also neurological. Go for it.

  • I have already. Have seen a neurologist, but they're pretty much guessing with the pudendal neuralgia diagnosis. I have a nerve block in 6 weeks which will be diagnostic, and hopefully therapeutic--although it's very unlikely from what I've read.

  • Where are you getting the nerve block?

  • At URMC with a Dr Westesson in Rochester NY.

  • How did the pudendal nerve block go?  Are you feeling better?

  • Nerve blocks don't seem to help most people, and only last a short time if they do

  • *Sounds

  • Argh, phone not letting me edit. To clarify, I use about 2 grams of xylocaine ointment each time, not whole tube

  • Hi, I've had a similar but definitely not an identical problem to what you describe for what's now been over 5 1/2 years. You can read my story in this post:

    A few things to consider:

    Have you ever ridden a bicycle for long periods or do you spend a lot of time sitting? This can obviously put pressure on the urogenital nerves that run through your underside, through the pubic arch.

    Have you tried an 'alpha-blocker' for non-bacterial prostate problems? One such medication is Tamsulosin.

    Have you tried 'Cialis'? This is an impotence drug but it also used for chronic pelvic pain.

    Have you ever suffered from constipation or found yourself straining too much when going to the loo? This will put pressure on the nerves down there. Also if you've ever played sports or lift weights and had a 'groin' injury.

    Of course these are just a few ideas, as there are so many things that can cause the symptoms you're having. I think Urologists diagnose a prostate problem rather (too) frequently. Also there are many other things besides the pudendal nerve issues that can cause these pains.

    If you really have a prostate problem there are some herbs that can help, which you can find via Google. Some people recommend taking vitamins and minerals such as B-complex and magnesium.

    Are your symptoms always some kind of pain/irritation or do you ever get numbness or other worrying change in sensation like pins-and-needles?

    You mentioned you can have sex, is this painful or do you get any changes in sensation on erection?

    It's a miserable condition to live with. Keep persevering with trying to find a solution, but don't go into each appointment with too much hope that they'll come up with anything, as it will set you back if they don't.

    All the best.

  • Thanks pepper1977.

    And yea Rocco this is pretty brutal. I will definitely keep you updated of anything works for me.

    Sarah33- thanks for your response, and sorry for you troubles. I thought an infection for a while too but I've been tested of everything time and time again and all negative. I even went so far as to having antibiotic injections into my prostate in case that was the issue. It didn't help at all unfortunately, so at this point I'm ruling out infection. As for the ointment, I'm not sure I want to put it on my penis, I think id rather live with the pain than have a numb penis always.

    Socirul- so sorry you are dealing with this as well.

    I actually rode a bicycle a few months later and then quickly developed a broader pelvic pain, along with some leg pain. Quit doing that immediately.

    I also have been sitting a ton for my line of work, and definitely tensing my pelvic floor repeatedly as its a high dress environment. I thought this might be the problem, but the only thing that triggered this was an infection, so I think something else is going on.

    Have tried cailis as I heard it might help the pain because of increased bloodflow, but no didn't help the pain. Also tried flomax, no help.

    No problems going to the bathroom. I slight urinary hesitantcy that's all.

    Have tried a bunch of herbs intended for the prostate for months, didn't help penis pain at all. pumpkin seeds, nettle leaves, quercetin with bromelein, turmeric, you name it.

    Also taking a b complex, magnesium, alpha lipoic acid, and acetyl l carnitine currently for nerve health. Been about 45 days of that.

    My sensation always stays about the same. Just a constant burning/stinging and the skin of the penis itself at times can feel kind of raw. At other times just very sensitive that it's uncomfortable. As for sex it's the same, just very sensitive. After a while it can begin to be pretty uncomfortable.

    And yea I know, I knew about 2 weeks into having this pain that is likely I'll be dealing with it for a long time. I know it's pretty bleak but can't give up. Good luck to you as well. We need it 😊

  • Your symptoms of broader pelvic pain upon bike riding are critical. Please relate anything and all things that have had POSITIVE OR NEGATIVE EFFECTS.

    Please describe in detail the pain in your penis by regain and where it is worst. What is the most painful part, glans?, coronoa?, frenulum?, circumcision scar?

    Please look at the following publication with dermatomes for the dorsal and perineal nerves. Tell me if the pain follows any of these patterns.

    Do not think that this is because of the infection just because it coincided with the onset. Anything can set off pelvic floor dysfunction from a bad sexual experiences to a prostate infection. The process takes over and is self supporting after the initial insult.

    If you touch the tip of your penis in different locations, notice if your pelvic floor tenses up. This response is common in many men and can be anything from the bulbocavernous reflex to a hypersensitized response from too much masturbation.

    I suspect that that the pain in your penis is causing the muscles to tense up and further entrapping the nerve.

    DO NOT- TAKE ANY MORE HERBS! EXPOSURE TO AN HERBAL 5 ALPHA REDUCTASE INHIBITOR COULD MAKE THIS 10X WORSE. We don't understand the mechanism yet, but I suspect that the androgen sensitive calcium channels in the pelvic floor get permanently altered if DHT drops too low for an extended period of time.

    1. Try and get an appointment with DARIUS PADUCH AT WEILL CORNELL FIRST

    2. Do a free phone consult with IRWIN GOLDSTEIN and see what he says. Tell him KEVIN sent you and thinks you might be an interesting case for...


    Once you have seen PADUCH and found out what he says....then maybe do the procedure. I think he also does botox. I thought I developed the procedure with Goldstein, but apparently he does it as well.

  • First of all, thank you so much for your detailed response.

    There is nothing that makes it much worse, except for marijuana which makes it burn like 10x as bad. Not aggravated by sex, foods, alcohol, etc.

    However, I did ride a bike about 3 months into having this problem, and it caused an aching/burning right leg that has persisted since. This made the penis pain a little worse Id say, and has been like this for the last 5 months. I stopped riding the bike immediately.

    The penis pain is from the circumcision scar up to the very tip. That is where the hypersensitivity begins. When I have no clothes on I feel a minor burning there, but when I put on underwear it begins to burn pretty intensely.

    I looked at the publication abstract but didn't see anything on dermatones--I assume this is in the full publication, but it was $34.99 to purchase. Any way to view this for free?

    I'm not taking any more herbs, just some supplements for nerve health. b complex, alpha lipoic acid, acetyl l carnitine, magnesium.. Are these ok?

    I just googled Paduch and nothing seemed to show up about botox injections. Would this be the primary goal of seeing him? Because I've seen 2 urologists prior to this, and also a neurologist.

    I will email Dr Goldstein to set up a phone consult.

    Thanks again for you help 😊

  • The effect of Cannabis is quite weird and interesting, I will have to look into it. You should too and mention it to Goldstein.

    Where is the ache/burn in your right leg? Please look a somatosensory dermatome image and see if your pain follows any of the groups.

    Darius Paduch told me he did botox, but I can give you the contact info for his office nurse if you want to ask.

    Just call San Diego Sexual Medicine for Goldstein. Don't email him.

    I just think Paduch is pretty smart after meeting him.

    I can see the publication for free. Please look again on the left side. Send me your email and I can send it to you if you can't see it. Just look for the images of a penis showing which nerves feed what parts.

    I would actually cut all with the possible exception of the bladder. High B vits actually might have irritated my nerves in the bladder.

    The pain is on the surface of the skin, correct?

  • Yep surface of the skin on the penis.

    The pain in the right leg is mostly L1-3, with some 4.

  • After having a look at the innervation of the penis by the DNP and perineal nerve, I can almost certainly take from this that its both nerves at play here. My sensation even on the part of my penis that is SOLELY innervated by the perineal nerve is still hypersensitive to touch. This is somewhat decent news id say, as the problem is likely located closer to the pudendal nerve, rather than just solely to the distal DNP.

    Is there anything else you can take from this?

  • Hi, why not get a referral to a uro-neurologist who I think may be able to investigate your problem further. Look on the inter-net, google uro-neurologists uk and choose one nearest your home. Ask your GP to refer you.

  • Thanks for the advice, but I live in the US. I don't think there are many uro neurologists around, but I will search one out.

  • Good Luck. Let us know how you get on.

  • Also

    1. Start wearing a butt plug or use an inflatable one to streach and wear it as long as possible. See what effect it has. I can give you recommendations.

    2. Start walking as much as possible and stop sitting at all.

    3. Find a chair that has no support in the center so there is no pressure on your perineum.

    4. Use a hemorrhoid pillow

  • Try this butt plug.

    Start very slow, easy and careful!

    It is good for stretching because it inflates a lot at the bottom and the narrow part is short, leading to more downward stretch of the pelvic floor, which is what you want.

  • Hi All,

    Similar situation here. I attribute it to oral sex being performed on me as the symptoms started days after this encounter. All the Drs I've seen disagree as they can't find any signs of infection. I've never had any problems in this area until now. Here are the details:


    -Biggest symptom is pain at the tip of my penis

    -Penis is sensitive to friction but is constantly tender/tingling/irritated

    -Urethral meatus appears slightly inflamed at times

    -Perennial area is also very tender/sore (although not debilitating like the pain at the tip)

    -Urination is generally fine, although there is some dribble at the end and I have to wipe myself afterwards

    -Ejaculation results in tenderness in the pelvic area and redness at the tip (but also provides some relief at the time)

    Treatment to Date

    -Urologist #1 - thought it was irritation, possible yeast. Perscribe a steriod/antifungal cream. No improvement. Then perscribed an Alphablock which also did nothing.

    -Urologist #2 - saw Dr. Nickel in Kingston, ON. Diagnosed me with CPPS after an examination and perscribed Elavil and another Alphablock. No improvement. Based on my research, this CPPS diagnosis seems to be a bucket that uros toss undiagnosible pain into

    -Toronto Prostatitis Centre - this is a private clinic who combined Antibiotic Therapy and Prostate Massage. Also ordered a TRUS which came back normal. I have had weekly treatments for the last 3 months but no real improvements. We are trying a course of anti-fungals and then he will be out things to throw at it.

    -Urologist #3 - told me it was in my head, suggested a Psychiatrist with experience in "Pain" and ordered a precautionary MRI. Annoying, but on the off-chance this is something chemical going on in my brain, I am going to explore this route to cross it off the list even though I highly doubt this is the cause (I've lived a blessed life, no emotional traumas, no history of mental illness).

    I recently tried a product called "Candaclear4 by Genestra" and I did notice an improvement after a few days, but the symptoms crept back. I am about halfway through this treatment so I will let you know.

    I am a regular user of Cannabis (have been for since age 21, I am now 30). I do not drink or smoke cigarettes. I don't notice any difference when I smoke Cannabis. I did try stopping for a few months but there was no improvement. I've had joint and muscle pain for 2-3 years prior to the onset of urethral symptoms. Not sure if this is related or I just have bad luck. The pain is so bad at times that I have contemplated suicide. Its stressful to think I could be in this level of discomfort for the rest of my life. Obviously I would like to avoid that solution, so any feedback would be much appreciated. Anyone else in Toronto? Is there anyway to organize this so we have one collective voice rather than thousands of unresolved forum topics across many sites?

  • Anyone have any updates?!

  • Hey sorry, I've been away for a month and just checked in. Situation is still about the same, but I did get an improvement with a much higher dose of Lyrica (600mg daily).

    I also just had a nerve block so we ll see what happens.

    Your symptoms sound almost identical to mine so very good chance that whatever helps me helps you and vice versa.

  • any updates redraw? I started Gabapentin and have noticed a mild improvement. Also starting with a Pelvic physio early in the new year. Will update if that helps at all.

  • How are the side effects with the lyrica? My pain specialist gave me the option to increase all the way to 600mg daily if I want.

  • Nothing much I've noticed other than orgasm takes much longer to achieve.

    The 600mgs daily only takes about 30% of my pain away which is not awesome, but any improvement is good I guess

  • I also had muscle and joint pain for a few years prior to the onset of the penis pain.  My chief complaint is the burning and stinging of the penis right at and a little below the circumcision line.   Underwear rubbing against it is really painful.  Did you have any luck with Candaclear4?  Have you found anything else that has helped you? 

  • Guys,

    Stumbled across this site. Think this is a great way to organize our symptoms and suggested causes in one organized database. Hope the mods allow this!

  • has everyone solved this issue? Would love to hear what worked!!!

  • @Redraws...was going through this thread and the responses + your history, any thoughts on what may have kicked this off? Your pOV? Did it just happen to start one 'not so fine day'? I had been through this and cant claim to completely sorted this off...what tests did you get to take and presume no infection was found? Is it better now than it was months ago?

    Did anyone try this?

  • There was an infection for sure. I had penile discharge, burning in urination, itching. That went away completely after one dose of Cipro. As did my pain. The only thing that came back was the pain, and it has stayed since then for the last 11 months.

  • And is it a pain that waxes and wanes..very non specific..more of a discomfort actually? Sort of mimics what I have had..over 2 years now..but has been sporadic..comes in short bursts. Had the same cipro and doxy way back for 2 weeks plus. It is a bit bizarre that it is so difficult to indentify and treat. Most of the drs are a bit clueless on treating abacterial prostatitis. Btw, did any tests show anything positive??

  • Is your pain sporadic too or is it almost daily?

  • It is constant

  • Tests have shown nothing. MRIs totally normal. Every other test normal

  • Have you been checked for a UTI?

  • Yes 10 times. negative to everything

  • do you have hip/back/leg issuse? I have been dealing with the same BS and decided to give pelvic physiotherapy a try because i had some issues with my hip/legs leading up to this (but also got a BJ from a tinder girl which is what I automatically thought was the cause). Its only been 10 days since I started PT but i have noticed a minor difference. I'll update if I see any real results with this approach

  • Yea my leg and hip pain began months after this did. It was just the penile pain to begin with. Have tried 4 months of pelvic physio which didn't help much at all. However, I have been doing a new hamstring stretch lately where I sit down on the floor, make sure my back is well postured with absolutely no hunching over. From there I lean my torso forward to stretch my hamstrings which are abnormally and I mean extrodinarily tight (I can't come within 6 inches of touching my toes). This has seemed to help me a lot the last week since I've started doing that. I will keep you updated.

  • And lol Tinder girls-- coincidentally things started when they were around as well

  • What do you speculate is the cause in your case?

  • I had an infection. Uti I think but it was untreated for 2 weeks. I was given Cipro which helped immediately. My penile tenderness went away completely. Burning and itching in urethra also gone.

    My idiot Dr said that ejaculation would help (without clarifying masturabtion or sex) so I had sex again 3 or 4 days after. Learned since she meant masturnation only, and that imo was a mistake as my body should have rested.

    The pain came back 36 hours later and hasn't gone away at all for a year.

    So I believe something happened with the infection (which was 100% there, no doubt at all) and the antibiotic maybe. Hard to say.

  • do you think it was an STD originally? Our symptoms sounds the same, but I have never had any discharge or tested positive for anything. Just pain and irritation. I've seen 5 urologist and all have said it has nothing to do with bacteria or something transmittable but I find that improbable considering the timing. I think its one of the following:

    1.) An atypical version of HPV or HSV

    2.) Myoplasma or some other bacteria that aren't covered on an STD panel

    3.) Something muscular/nerve related?? This is a weird theory to me but most doctors seem to be convinced this is the most probable cause

  • It wasn't an STD. I was treated for clamydia and gonnorhea promptly and that didn't help at all. I was traveling and when I got back home I was given Cipro which worked immediately. Then 4 days later the pain came back, with no other symptoms.

    Do you have a urinary hesitancy?

    That and the pain are my only symptoms.

    I would say in your case that it is probably muscular, if I had to venture a guess.

  • my urinary issues are very minor. Its mainly constant pain/discomfort at tip of penis unrelated to urination.

  • hey wbeaman, new to this forum. I noticed on your past post that you were put on Gabapentin. Ive actually just started Gabapentin myself & will be trying pelvic physio shortly as well. How's that working for you? Are you still on the Gabapentin? Im starting with 1 capsule/day & seeing how that goes. Not crazy about pain killers but dont have much of a choice at this point.

    I've been fighting prostatitis (bacterial) for about 4 months now, its completely ruining my life. I've gone thru about 6-7 different antibiotics o far & nothing has provided any permanent results. If anything my symptoms have got worse over the last 2 weeks, hard to get a good night's sleep. I get (somewhat) regular shooting/stinging into the tip of my penis which makes you feel like you're gonna pee yourself plus constant pressure on my bladder. Ejaculating seems to aggravate my symptoms even more so I'm at the point where Im afraid to even do so anymore. Anyone else have this problem? I'm hoping the pelvic physio will help. Any feedback on that?

  • Hi Oligio,

    Answers to your question:

    1.) I have discontinued Gabapentin because I didn't notice any difference in my symptoms after 6 weeks and it made me dopey

    2.) I just started Pelvic PT so hard to pass judgement either way so far. I'll be sure to update after I give it a fair chance (probably 4-6 months from now)

    3.) I had a cysto performed. Not nearly as bad as it sounds. Might as well go for it.

    You mentioned that you have bacterial, what specific bacteria did you test positive for?

  • Thanks wbeaman. Did the Cysto give you any further insights into what's going on in there? Was it helpful in steering you towards a specific treatment?

    In regards to specific bacteria, I don't know, that's the problem. The first 2 doctors I saw when this first started did lots of tests (std, blood, urine, etc.) and everything was negative but put me on cipro anyways. I got some immediate improvements with that but after a while other symptoms started emerging. I go to a private clinic now to get the prostate massages/drainage & the doc can see pus (bacteria) in my prostate fluid but he said its not possible to determine exactly what kind of bacteria it is. Hence the multiple different antibiotics. He says you have to cover all possibilities and hope that one of them does the trick. I did do a semen & urine analysis to see if it was a Candida (yeast) infection but that came back negative. I'm now wondering if it's possible to kill off all bacteria but still have symptoms. (ie. goes from chronic bacterial prostatitis to chronic non-bacterial prostatits). So many questions, so few answers out there.

    I actually just booked my first physio session for tomorrow as well. I'm hoping this helps. The shooting/stinging pains at the tip of my penis are becoming unbearable. I'm assuming these are nerve issues that are causing this which I hope they can relieve asap. Doing normal activities are becoming harder & harder. I'll update my progress

  • Just a guess - but are you in Toronto seeing Kaploun? If so, what physio are you seeing? The cysto was unremarkable - everything looked normal. Same with the TRUS.

    Do you attribute the symptoms to anything specific (ie. muscle issues, sexual encounter ect)?

  • Ya Im see Kaploun. Are you in T.O as well? I'm going to a place called Proactive Pelvic Heath Centre. How about you? First session was interesting, I think there's definitely some muscular (and nerve) issues going on at this point which is why ejaculating is flaring up my symptoms. I can actually feel the muscles spasming like crazy sometimes.

    I'm 99.999% sure that the original infection started from sex. I believe (and most of the docs seem to agree) that it started as a UTI which I left untreated for almost a month & ended up spreading into my prostate. The symptoms were very minor for the first month so I thought it was nothing & would go away on it's own (just some twitching in the muscles when I would urinate & also a strange increase in the amount of urine I was producing). Then one day, after about a month, it started becoming extreme & unbearable pain/burning in my penis & I went to see a doctor right away. All the std tests were negative but he found traces of blood in my urine so he put me on Cipro. I felt relief almost instantly and that lasted for about 4-5 days but after about a week, I started noticing more the typical prostatitis symptoms starting to emerge (rectal & testical pain, urinary difficulties, etc.). Went downhill from there & been fighting this ever since....

  • check in your messages - just sent you one

  • Has anyone ever had a cystoscopy done? Even thou i have prostatits, my doc is suggesting it as a way to see if there's anything else going on in my urethra and/or bladder. The thought of having someone shove a tube with a camera into my penis sounds like a nightmare. Any experiences out there? Is it as painful as it sounds? Ive read about people having it and it didn't even find anything which is making me wonder if there's any point

  • If you have chronic bacterial prostatitis (proven infection that doesn't go away) you may want to consider intra prostatic antibiotic injections with Dr Toth or Dr Bahn. Google it.

    Also you mentioned you've been on numerous antibiotics. What about Fosfomycin? Have a read.

    If you haven't been given this yet Id definitely try this before you consider the injections.

    Good luck and let me know how you get on.

  • Thanks redraws17. I've heard about the injections. Have you tried them? I've read mixed reviews and that they should only be used as an absolute last resort after all else fails. Ya, I was on Fosfomycin along with Doxy together just last month. I saw a huge improvement after a few days of being on it, I actually thought this was the cure. Then unfortunately after about a week or so I started re-developing symptoms. Weird thing is that they were different from my previous symptoms so not sure what's happening inside me exactly. I'm having more urinary symptoms lately and the stinging pains at the tip of my penis. Prior to that it was a lot of rectal, perineal & testical pains, with minor urinary symptoms. I'm on an antibiotic call Macrobid right now which is primarily for uti's (not really for prostate) but doc thinks it may help regardless. Ill update my progress......

  • I did try them actually. Didnt work but it seems my problem is not prostate related. I had no side effects though so I'd say it was relatively safe.

  • for how long did you take cipro before it went away and then returned? can u please give out the details?

  • It was 4 days of ZERO symptoms at all. I went from a pain of 8 or 9 in the penis to a 0 overnight. 4 days later the pain returned almost jsut as bad, probably a 6 or 7 though and that has been constant, and i mean constant ever since.

  • did you take any medication for treating a possible cause of trichomoniasis. It causes similar symptoms like burning, slight discharge without any fevers and chills (something the other stds cause) but with the addition incentive of coming and then disappearing.. The treatment is pretty cheap and convenient too i.e. single dose of Flagyl(metronidazole) 2g.

  • please reply quick because iam in a similar situationa nd have decided to go for a trich treatment i.e. falgyl for a week, if that works then it might have been trich the whole time for you as well as me.

  • i was tested and came back neg, but i was never treated for trichs

  • well, according to doctors it is somewhat difficult for trichs to be diagnosed in men and if left untreated can lead to prostatitis as well, ask your doctor regarding flagyl i mean what is there to lose at this moment?

  • had same symptoms for past two years although i also had penile numbess and thick chunky semen. at one stage for about a month my symptoms got 80% better but i think i hurt my back and they came back alot worse, anyone else here think itcould be back related?

  • how did they get 80 percent better? what were you taking?

  • i honestly wish i knew, i was drinking alot of water mixed with lemon and laying down alot

  • have you tried any antibiotics like doxy or different varieties to rule out resistant bacteria causing the uti? and btw how long did the burning develop into pain before you started cipro.

  • btw is it pain like pain pain (if it makes sense) or solely burning? please do respond, in a similar situation.

  • Infection caused the burning and allodynia of the penis along with burning and itching upon urination . Cipro took away the infection along with ALL of these symptoms. Then 4 days later the burning unrelated to urination came back along with the penile allodynia.

    Yes I've tried doxy, didn't work.

    The burning itself is pain, yes it's not horrible horrible pain but it's so uncomfortable.

  • tried any medications for a possible yeast infection?

  • Great, hopefully we can gain further understanding of this brutal ailment. 

  • How is everyone doing?  Did the PN Block help? Found Doxy and Amitriptyline help a little.  2.5 years now with this!  Are you guys aware there is a MRI for the Pudendal Nerve that can be done at Hospital for Special Surgery.  This MRI will reveal any PN entrapment.  

  • Didn't help me at all. Was numb for a day and then the pain was right back. I had the MRI done actually with Dr Potter. It came back totally normal for me. 

  • I hope this doesn't post twice.  I started writing before and something "happened" etc.

    Anyway, I've had the Dr. Potter MRI, and it came back normal also.

    After rereading the thread of posts, I'm convinced we have the same problem. Here are a few comments and questions in hopes we can help one another out:

    Have you tried silk (or polyester) big sized boxers?  They've been a God send to me!  When this thing started I used cotton briefs, but I can't stand the tightness of briefs and the cotton still irritated the penis.

    Is there one particular area of the penis which is the most painful in general and with respect to underwear rubbing against it. You menitoned in an earlier post it was from the circumcision line and up. Has that changed?  My worst area is the left dorsal side at the circumcision scar and down a little bit of the shaft (like 2cm).

    I also gave up the bicycle as well, however I don't have the pain down my leg. I have had hip pain and hip bursitis. Been through PT for that as well as PT for Pelvic Floor Pain so bad at times I can't sit without a cushion.

    Did this pain start days or weeks after a high friction sexual encounter and/or after sex or masterbation that resulted in tiny cut or tear on the penis skin?  

    Do you find that a few Alcoholic drinks help a heck of a lot in getting rid of the pain temporarily?  A few drinks works wonders for me.

    Can you recommend any Doctors or tests you think might help me?  I live near NYC, but I haven't found a doctor yet who really knows how to help me.

    Thank you!  Let's try and help one another! Please!


  • I switched from boxers and cotton boxer briefs to strictly boxer briefs with VERY soft fabric. Calvin Klein is nice. I prefer tighter because it keeps everything in place. Friction hurts the most. 

    Yes very interesting you mention which side hurts the most. For me it's the right side. Don't get me wrong the left hurts too but the right is much more sensitive. 

    The pain started 1 day after a pretty high friction sexual encounter. 

    I can't really recommend anyone, everything I tried didn't work. 

    What drinks help you? 

    And how long have you had this go on for? Would like to hear the specifics about it as well. 

  • Friction is what hurts the most for me too. I try to stay away from tight underwear because it can aggravate pundendal nerve symptoms when I sit down. However, some days I wear the tight briefs because I absolutely can't take anything bouncing around because of increased friction sensitivity that day. 

    Both sides hurt me too. It's just that the left side is much worse than the right. I'm not sure if it's because my penis tends to hang just slightly to the right naturally .  Since it hangs to the right, it's the left side that hits the underwear constantly.  I'm not sure if this is just coincidence, but I think not. I'd be curious to know if this theory holds true for you as well.

    My pain started the day after a high friction sexual encounter as well. I also had a TINY cut on my penis from that experience as well.

    Any strong drink helps such as vodka, tequila, rum, etc.  Two STRONG drinks and I'm 75%-100% friction pain free for a few hours. 

    I've had this for 2.5 years.  I've been to 3 dermatologists who say there is nothing wrong with my penis skin.  All three gave me a script for steroid cream, but I only filled the first script which I used for a week (and it helped a lot), but then I stopped using it because I feared thinning of the skin. The internet is full of guys saying overuse of steroid cream on the penis is an irreversible disaster so I'm scared to try again.   Also, I've tried Doxycyline from the Dermatologist, but it got me nowhere. Have you tried steroid creams?

    I've gone to 4 Urologists and 2 Neurologists as well.  I've had Cervical and Lumbar MRIs and the Potter MRI.  The Urologists were utterly useless. Only one of the four said my prostate was swollen and put me on Cipro for a few months - no improvement.  The one Neurologist said it could be the Epstein Barr Virus left my nerves damaged and that could cause this (but it was just a theory of his). The other Neurologist put me on Amitriptyline. I'm not sure Amitriptyline works much or at all sometimes.  Aside from the desensitizing I mentioned in the other post to you, I'm not sure it's doing anything.

    Have you gone for a Western Blot Herpes test? It's supposed to be 99% accurate picking up what other herpes tests don't. I have not gone for Western Blot, and I am unsure of my herpes status.

    Okay, I've hit you with a lot of info and a lot of questions so I'll stop here and wait for your reply.



  • I was tested for Herpes (I don't think the western blot way however), but i dont believe i have herpes, never any outer symptoms. However, right around the time I had a suspected UTI I had molluscum contagium which has since eradicated itself. This is a similar viral infection which has been known to cause nerve damage Ive heard, albeit never in this area, but i don't see why the genital area would remain immune to it. 

    The alcohol negates the allodynia you're saying? Thats quite remarkable. Doesn't have the same effect for me unfortunately. 

    Yea Ill never use steroid anything, they're really bad for the body. I had a nerve block with corticosteroids and they gave me bad side effects for a month or so. 

    I assume you have this pain 24/7? I do. This leads me to believe that it is in fact nerve damage. I think the best shot for us is the advancements in stem cell therapy. I check on it regularly and it is moving forward promisingly it seems. 

  • I have never had any outer symptoms of herpes either, that's why I doubt I have it. Just bringing it up as a thought since it can apparently exist without being visible. 

    Very interesting you had the molluscum contagium. Was it on the penis and if so was it near your most painful spot?

    Yes, I have this pain 24/7 and it's killed my social and sex life.  I don't know anything about stem cell or how it would help. I'll have to look into that.

    Have you tried amitriptyline compounded cream and put it on your penis?  Also, does your right side hurt more because you hang to the right and it brushes against the underwear?

    Any other tricks you've found to cope with this that I might try? My #1 complaint is the friction from underwear when walking. It keeps me from going out and enjoying life. I used to be non stop on the go, now I just stay at home.

  • I first had spots on my pubic area, then this pain started on the penis because of the infection. Later the spots appeared on my penis, around 2-4 at any given time, but then 2 months later they were gone. 

    Yea I can relate to that. It just takes the life right out of you sometimes. 

    I haven't tried any creams though. I have an active sex life so juggling the times where i have it on and don't because of preeminent sex would just annoy me too much i think.

    I do have one trick that has helped me some, and go out much more as of late (last 6 months or so). I use these underwear:

    The fabric is amazing, and they are reasonably tight so i have very little movement which doesn't affect me too much. Don't get me wrong I still feel a mild burning, more so when sitting down. But the friction pain is almost nonexistent. They're really expensive online or in any retail location EXCEPT outlet stores. Think I got them for around $16 a piece. 

    Now when I sleep, I use a different underwear:

    It says silk but the purple/black ones are not. They are a VERY soft cotton and have a ton of stretchability so you don't feel trapped when sleeping, especially in the morning if you know what i mean. 

    I know you said the tighter ones are more difficult to handle but I say give them a try regardless. 

    I know its not much but its the best Ive got so far lol

  • any updates on your end Redraw?

  • Have you tried desensitizing techniques such as deliberately rubbing soft cotton back and forth over the sensitive parts to desensitize them.  I've had some luck with that.  It hurts a little more at first and then calms down and is better a few hours or a sometimes a few days later.

  • Yes I have, but it's so painful and I haven't gotten much out of it so I stopped. 

  • I've tried the desensitizing when taking amitriptyline (pills not compounded cream/ointment) and not taking amitriptyline. When on the medication, I found the desensitizing technique to work somewhat better than when not on the medication. Just something to think about if you want to try but don't expect miracles. 

  • any updates guys?

  • Hey guys, i hope you guys are doing better. I thought i'd help... I have a similar problem (still unresolved but had made progress). I hurt myself masturbating too much when I wss going out with a girl but was in another country and couldn't have sex. Damn. If only hadn't been so stupid. Anyways I thought i'd help a bit: There's this book that deals with body alignment. It's called Pain Free by Pete Egoscue, I realized my pain diminished whenever I did the hip and groin exercises. And being aligned feels pretty good. I'd have to say the pain in my penis almost went away completely, but then before it cured i had sex and the condom somehow made my foreskin get stuck, and I had a terrible painful ejaculation because of it. So back to square one Ha! Sucks. But the alignment execises worked nevertheless. Another thing that helped a lot was realizing that I was placing too much focus in my penis area. If you read freud you'll realize we're having similar mindsets that a hypochondriac has. It's not the same, but what you have to realize is that your focusing too much on your penis. And this causes more pain. I'm not saying not to take care of it, what I'm saying to try to put your full focus on other things so that you don't weigh in more inlammation than what your penis already has. Too much focus is like placing too much energy on one thing. And too much energy can heat things up. You get me? ;) Let it heal by itself. Be aligned, i think that's a major cause, and let it heal. Focus on other things keeping in mind the fact of caring for yourself, but without obsessing over the problem too much, after all if the problem is chronic inflammation, realize that inflammation cures itself when the muscles are functionibg properly in the site of pain, that's why having your hips and spine aligned could target this problem indirectly. Inflammation usually appears because there's a muscle doing more work than the others (it took me over 5 months to have my body better aligned so be patient with your alignment). However this is easier said than done. However it worked for me, along with the pain free book. It's tough, but you'll get out of this a much stronger person. Good luck people. I wish you wellness and pain free! Luv you all :)

  • Alexdude, thanks for telling us about the book and how it helped you. Based upon your review of it, I've just ordered the book! I believe that alignment is extremely important, and I look forward to the book arriving so I can start to do some of the exercises. I try and do my best not to focus on the pain as I'm aware that focusing on pain intensifies it and reinforces the negative effects it has on the feedback loop between pain site and the brain. It's not easy to ignore the pain, but I get where you're coming from. Thanks again for your post.

    How are you doing? Still improving?

  • Dont discount this. I know it sounds nuts, but try first, checking for mold, mold can cause similar symptoms over a long period of time, as fibromyalgia. Fibro, can be confused with spiritual attack. 32 years of laughing at it till I was in so much pain, especially , of course, Sacral area pain in that endocrine center. Biblical Lore, all religious texts refrence seals, 7 , pathways, emotion.. get it? Chakras attacked by incubus. Burns in hips, waves, like, a force that presses against you. cold spots, in the air around you.. not like cold air, but like .. cold enrgy man.. idk. look into it, if a little prayer can fix it, a little awakening the eye of the mind.. you'll be happy.

  • I'm too having issues with left perineum, base of the penis and left testicles since past 1 year. It may have started with masturbation and than continued with prolonged sitting.

    I'm having following symptoms.

    - Can't sit on hard surface at all. Have to use cut out cushion.

    - Have pain at the base of penis and increases with direct pressure on it or rapid movements.

    - Longer time erections.

    - Ejaculation

    As all, I have been to several urologist, neurologist and pelvic therapist. Still fighting to overcome it.

    The thing that helps me is

    - wearing loose clothes, underwear. RALPH Lauren briefs with 1 size bigger works.

    - As someone mentioned having 2 drinks does help, not sure how though I am in my complete consciousness.

    - Cut out cushion

    - Always modifying my position from sitting, walking and sleeping. Won't recommend standing.

    - Bucket kind of seat helps over the seat that slopes down but with softer base.

    There are many more things..

    I have kind of found ways to stop the pain but still working on getting improvement in mobility and get back to activities.

    If anyone have overcome this please do share the steps taken to see progress..

    I think body alignment sounds good. Can someone share 2-3 alignment correction that must have helped during sleeping, standing, exercising.

  • Jason,

    I've been suffering with sitting down pain for almost 7 years and with penis pain for 3 years. I carry around a cushion and must be really careful where I sit and for how long. Based on all you wrote, I'd say you have Chronic Pelvic Pain Syndrome for sure, Pudendal Neuralgia or Pudendal Neuropathy possibly, and/or Chronic Prostatitis. I wish i had more answers for you, but I don't.

    Do you have pain when your penis rubs against your underwear as you walk?

  • ChronicPain,

    No, I don't have notable penis pain on walking. But do have at the base of penis while sitting little longer even on cut out cushion. This is because when you sit your underwear gets pulled towards the penis. And you can't sit anywhere without underwear. While walking/standing the only time it hurts when I get erection with underwear.

    Hope people paste some success stories here.

  • This is why I wear over sized silky boxer shorts so that the underwear will not pull upwards on my goods or be too tight. Honestly Jason, I haven't heard of many success stories. I do, however, think the way to getting better is to ask questions on sites like this and to offer our own bits of advice. The things we can learn from each other will help most likely to make things less painful. Doctors don't care or understand. It's up to us to help each other.

  • Yes. True. We need to guide each other.

    Oversized boxer sounds good for sitting but for me it doesn't work while walking/stairs as my testicles hurt when they bounce, may be pulling a nerve.

    So I wear oversized briefs.

  • Yeah, I had to buy a ton of different kinds of underwear: boxers, boxer briefs, briefs, etc. until I found what worked best for me. I spent a lot of money on underwear to try out, and nothing solved my problem. I had to choose what had the least downside. We both have the sitting pain so I know you can appreciate how having loose underwear is critical for that. But then we differ with me having penis rub against underwear pain, and you have ball pain from bouncing and need support. I'll send you a private message with ideas to help you as I don't think it would help anyone else here.

  • I found this forum while searching for information on symptoms for the problem I have been having for the last six months. Rather than start a new thread, I thought I would just reply here since your situation sounds very similar to mine, to some extent.

    I am 33 years old and for the last six month, I've had a mystery pain/sensation in the tip of my penis that alternates between a sting, a tingle, and a wet/dull feeling. It doesn't hurt when I urinate, but I do have discomfort in varying degrees throughout the day. Sometimes it's difficult to urinate. Sometimes very little comes out. Sometimes a lot (and I mean a lot) comes out. I have post-void dribbling nearly every time I go to the bathroom, and I also have a split stream some of the time.

    The problem has also really dulled my ‘urgency’ to use the bathroom. Very rarely am I aware that I ‘need’ to go. Now I just assume I always have to go, and try every half hour or hour to see if any urine needs to come out.

    Because the internet is an endless hole of misinformation, everything you search for these kind of symptoms tries its best to convince you that you've contracted an STD. I tested myself for gonorrhea and chlamydia and the tests were both negative. I also have had two urine screenings—one done by my general practitioner, and one done by a urologist. Both screenings showed no abnormalities.

    I also occasionally have a discharge that comes along with my urine while I’m having a bowel movement—it usually looks like a glob of semen along with a clear, very sticky substance.

    My GP diagnosed me as having something wrong with my prostate and I tried a 20 prescription of Cipro and saw no improvement. Following that, I went to the urologist, who told me it sounded like I was doing something that was irritating the walls of my bladder—some kind of food sensitivity, he said—and that I should cut back on the amount of coffee I am drinking (I am down to 2 cups in the morning only now rather than drinking it all day) and he gave me a month prescription for doxycycline. Again, no real positive results.

    The urologist also examined my prostate and told me it felt ‘small.’

    The next step was to have a cystoscopy, which sounds like literally the worst thing to possibly happen and I am afraid of going down this road.

    I’m at a loss on what to do next.

    I don’t know if I should see a second urologist for another opinion, or what I should do. I am frustrated and losing my patience, and despite the countless forums and message boards I have seen with people having similar symptoms/problems, I have never felt more alone in my entire life.

    For a while I thought it was stress related. I had a very stressful job that was taking its toll on my mental health. I recently left that job for a less stressful one and was hoping that I’d see some improvement but I haven’t really.

    There are moments where it is less bothersome than others, but then there are times when I just want to cry.

    The weird thing is is that in the beginning, when this all started, I felt symptoms for a week, then it went away for a month, then it came back, then went away again before being a constant problem since the beginning of May.

    If anyone has any similar stories or experiences to mine, I’d like to hear them to understand more of what may be happening to me.

  • Hey man i am having the same issues but it's been on going for years.

    Ever since a football hit me in the testicles when I was around 17 may be (23 now) it's not been the same. Well it's really on and off but it's going on a bit now.

    I'm too worried to get it checked, I do have a bad habit of holding my piss so it could be something to do with that. It feels uncomfortable.

    I worry about it all the time. I don't think it's an STD (well hope not) but I just haven't had it checked yet. I had the same thing few years back and I got tested which came our negative on two occasions but I haven't checked recently. I'm scared it's an STD but I just need to push myself in getting it checked. But what I find strange is that It has been like this since that football incident and I didn't have sex till about 18.

    I hate reading and checking but it's just uncomfortable. Although it's a slight consolation knowing I'm not the only one that has this unusual feeling. I feel embarrassed.

  • Elcapitan,

    I thought I replied yesterday to you, but something must have gone wrong with the post. Anyway, my question is that football that hit you in the testicles, was it a really bad hit in the nuts or just an average hit? Because if it was a bad hit, I could see it leading to some of these problems. Also, I wanted to encourage you to seek help from a Doctor because you are so young. Don't be scared, don't put it off, you could stand a good chance of getting better because of your age. People in their 20s heal much quicker and better than older people.

  • Sorry to hear you're going through all this. I don't know enough about urinary urgency or infrequency problems. Something to keep in mind is that Cipro is now being widely criticized for causing all kinds of side effects and doctors are thinking twice about prescribing it. Another thing is that stress could have been the needle that broke the hay stack, but removing the stress does not remove the problem. Stress reduction or elimination will help, but I've found it doesn't solve the problem. I know how you feel when you say sometimes you want to cry. In fact, just the other night I lost it and cried. I've been having sitting down pain for 7 years and pain in my penis when it rubs against underwear for 3 years. It's enough to drive a person crazy. Also, there's no problem going for a 2nd or even a 3rd opinion with Urologist, but I would caution to keep your expectations low. Doctors know very little to help us. They might help you more because urinary problems are more common than penis pain problems.

    Have you looked into going to a pelvic floor physical therapist who will do internal massage work on you? Your muscles around the prostate and bladder sound tight or in spasm.

  • to my knowledge there is no pelvic floor physical therapist in the area and i don't really feel like commuting somewhere to look into that as an option.

    i do have an appointment next month w/ a local urologist to see what he thinks and maybe get an additional opinion. currently my symptoms have changed yet again and overall i guess i am feeling better than i had been, but still not 100%. i guess all i can do is take it one day at a time.

  • Pelvic floor physical therapists are difficult to find, but honestly it's worth the effort to go to one for at least a few sessions even if they're not in your area. If you're in the NY or NJ area, let me know. I can recommend some people.

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