Hi, firstly it was great to find this forum, so thanks for all your efforts. I've read quite a few of the previous posts and a couple seem to reflect similar things to what I'm experiencing, but unfortunately the posters didn't follow up on how things progressed for them.
My problem started around 5 years ago, when I was convinced that a circumcision for a minor foreskin problem would be in my interests. I had no other medical problems. Sadly for me the circumciser removed so much skin that there was initially not even enough skin left to accommodate nocturnal erections and in the weeks following the surgery, when everything was still swollen, this caused internal damage. The skin did stretch a bit and pull forward from the pubic region after about 6 months but by then the damage was evidently done.
I started getting pins-and-needles in the penis and when I tried to enjoy sexual activity again, the glans actually felt so numb I would sense almost nothing... An intense pressure in the perineum area began (like sitting on a bike seat) as well as unwanted feelings of pressure and stimulation in the pelvis. This has all been going on since then and now the lower back is damaged due to walking so badly with the pelvic pains.
I have felt very panicky and gloomy a lot of the past few years - to be expected I guess. And of course, I've not even gone into the emotional effects of all this...and how depressed I am.
Seen GP, Urologists and Neurologists but no real breakthrough yet. I've had MRI pelvis and lumbar, plus prostate ultrasound. I have a referral to the urogenital pain specialist in London on the NHS, which I will have to wait many months for. In the meantime, I take Pregabalin when I feel I should and need to, Citalopram daily, and Cialis - all of which I think help somewhat.
So, I would be very grateful if there is anyone else with similar symptoms who could give me some advice on what to do. Are there any specific scans or tests I should try and have? Is there an ultrasound or MRI that could really focus in on the area I feel there is a problem?
I would also be grateful if anyone could tell me of any physical therapists who specialise in this kind of thing, whether it be external or internal manipulation they offer, I don't really care.
Every single movement has become a torture, for so long, and I'm not really dealing with it well, because I never get a break from it. Having unwanted stimulation to these regions when you are trying to concentrate on a task or have a conversation with someone is really not fun. I'm sure many people have it worse than me (not that I find that thought particularly comforting) but the duration of these symptoms has left me feeling very hopeless and totally exhausted.