CattieAnnea month ago
Hi has anyone had any experince with this drug?
CT / PET Scans
JeannineMarie2 months ago
This may be a dumb question but it is one I cannot locate an answer to.
How many scans in a year would be too many? If I do the CT scan sched...
Feeling anxious in the mornings
deveritt2 months ago
I just completed my needs report and discovered that other people also share this. It has been a theme in my life for many years before bein...
Not feeling very confident with the Dr that I have been referred to. Problem is where I live it is the only clinic. All the hematology drs a...
When to start treatment ?
venk_462 months ago
diagnosed CLL in Feb 2013 . Watch and wait , no treatment started, mutated ,no 17 p deletion
Enlarged lymph nodes in neck and stomache, Spl...
Corbins2 months ago
Had to stop for side effects after 9 months, serious joint/bone pain. !0 days later broke out in a serious case of hives. Dr put me on pred...
Ninagram2 months ago
Are patients with Cll more likely to be diagnosed with another cancer. Been on Ibrutinib and venetoclax for 4 months and doing very well. ...
nikolle4 months ago
Hello everyone!Hasvanyone heard of Gerson therapy?
2 Replies3 Likes
New York City CLL Support Group May 20 @ 3:00 pm - 6:00 pm
lankisterguy4 months ago
New York City CLL Support Group
May 20 @ 3:00 pm - 6:00 pm
This “Special Session with Dr. Richard Furman” will replace our regularly schedu...
Early stage and few symptoms
Stairbuilder5 months ago
I am posting this introductory note about myself, even though I have been a member of the community for over 3 months. I am early stage 0, ...
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Treatmant for cll
nikolle5 months agoPOPULAR
Hello!My name is Lidia.My husband has cll from 2012 and now his wbc is 140000 and the platelets are 101000.The doctor said that is time for ...
MartiP20095 months ago
Yesterday I saw my oncologist my blood work is out of wack I’ve been on Imbruvica for 4 yrs this month, he ordered a CT scan and researching...
9 Replies1 Like
N of 1
Hidden6 months ago
I am reading glenn sabin's book right now he is published his bone marrow biopsy results cancer was gone is that possible? So many people ea...
5 Replies1 Like
I m in w&w how long you have been w&w who was the longest what is the reason for you, what do you think
Treatment for unmutated ighv
My husband is preparing to begin FCR treatment. His WBC is 200k, all other numbers below normal. Anyone experienced this treatment who has t...
4 Replies1 Like
Lymphedema in right leg with CLL
Gisygirl7 months ago
Has anyone had the chronic leg swelling problem? I have been on Imbruvica 3 years but for the past year or so, my right leg is just bigger...
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Beginning my clinical trial
Ninagram8 months ago
I have been on watch and wait since 2008 and the last 6 months my wbc is increasing at each appointment. I have been accepted into a trial ...
5 Replies4 Likes
I’m unclear what to think of my diagnosis
Blondielocks658 months ago
I’m new here and not clear about the diagnosis given on my Flow Cytometry, which classified me with atypical CLL, Mantle Cell Lymphoma, and ...
10 Replies1 Like
Imbruvica and Anxiety
Lana478 months ago
Does anyone take Imbruvica have anxiety issues? Does lowering the dosage help?
Need to talk & advice, WBC
grace20178 months ago
Hi I just wanted to read your posts they have helped me over the past year cope with my Dad having CLL. I feel for everyone that faces cance...
StasiaURos9 months ago
I am on Imbruvica for 3 years 12 trisomy doing well but I read that some of you are resistent and need additional Biologics after 3 years wi...
Ninagram9 months ago
I am waiting to be accepted into a clinical trial for my cll. just had a bone marrow biopsy and see my doctor Jan 16, hopefully I will be ac...
1 Reply1 Like
Falling Platelets with Venetoclax
prbild9 months ago
I started Venetoclax in October when Ibrutinib became ineffective after three years with the white blood cell count rising and the platelets...
Side effects with Imbruvica
Gisygirl9 months ago
I have been on Imbruvica for 3 years now and it appears to be working as my lab numbers are all in the normal range now. Even my platelets w...
Venetoclax and spleen enlarging
Barbshow9 months ago
My husband is on an ibrutinib venetoclax combo trial. His spleen reduced after initial few months on ibrutinib but after 4 doses of Ven, it ...
11 Replies2 Likes
Stevediam10 months ago
My father started venetoclax 1 week ago. He is a 71y/o, 17p CLL patient. He must be an inpatient at UPENN for fear of TLS for each ramp ...
Good News from the Doctor Venetoclax is working!
ReneeSusana year ago
I started my Venetoclax journey September 7th. A few bumps on the way up from 20mgs. to 400 mgs. And a few more bumps at 400mgs with lots of...
18 Replies7 Likes
CAR-T for CLL
calibellaa year ago
Has anyone gone through CAR-T therapy for CLL? I am looking at a trial in the US. I'm on my 4th treatment and have all the stinky stuff: ...
Anyone Know of or had Quadrant Testing?
Spaceea year ago
Hubby's has CLL. His sister stage 4 lung cancer which is now in all her bones. WDAnderson just recently did the Quandrant Testing which sho...
Venetoclax and Fatigue
I finished my 5 week ramp up on Venetoclax and the biggest issue is fatigue. I went shopping today for about an hour and had to leave the ma...
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