nikollea month ago
Hello everyone!Hasvanyone heard of Gerson therapy?
2 Replies3 Likes
New York City CLL Support Group May 20 @ 3:00 pm - 6:00 pm
lankisterguya month ago
New York City CLL Support Group
May 20 @ 3:00 pm - 6:00 pm
This “Special Session with Dr. Richard Furman” will replace our regularly schedu...
Early stage and few symptoms
Stairbuilder2 months ago
I am posting this introductory note about myself, even though I have been a member of the community for over 3 months. I am early stage 0, ...
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Treatmant for cll
nikolle2 months agoPOPULAR
Hello!My name is Lidia.My husband has cll from 2012 and now his wbc is 140000 and the platelets are 101000.The doctor said that is time for ...
MartiP20092 months ago
Yesterday I saw my oncologist my blood work is out of wack I’ve been on Imbruvica for 4 yrs this month, he ordered a CT scan and researching...
9 Replies1 Like
N of 1
Hidden3 months ago
I am reading glenn sabin's book right now he is published his bone marrow biopsy results cancer was gone is that possible? So many people ea...
5 Replies1 Like
I m in w&w how long you have been w&w who was the longest what is the reason for you, what do you think
Treatment for unmutated ighv
My husband is preparing to begin FCR treatment. His WBC is 200k, all other numbers below normal. Anyone experienced this treatment who has t...
4 Replies1 Like
Lymphedema in right leg with CLL
Gisygirl4 months ago
Has anyone had the chronic leg swelling problem? I have been on Imbruvica 3 years but for the past year or so, my right leg is just bigger...
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Beginning my clinical trial
Ninagram5 months ago
I have been on watch and wait since 2008 and the last 6 months my wbc is increasing at each appointment. I have been accepted into a trial ...
5 Replies4 Likes
I’m unclear what to think of my diagnosis
Blondielocks655 months ago
I’m new here and not clear about the diagnosis given on my Flow Cytometry, which classified me with atypical CLL, Mantle Cell Lymphoma, and ...
10 Replies1 Like
Imbruvica and Anxiety
Lana475 months ago
Does anyone take Imbruvica have anxiety issues? Does lowering the dosage help?
Need to talk & advice, WBC
grace20175 months ago
Hi I just wanted to read your posts they have helped me over the past year cope with my Dad having CLL. I feel for everyone that faces cance...
StasiaURos6 months ago
I am on Imbruvica for 3 years 12 trisomy doing well but I read that some of you are resistent and need additional Biologics after 3 years wi...
Ninagram6 months ago
I am waiting to be accepted into a clinical trial for my cll. just had a bone marrow biopsy and see my doctor Jan 16, hopefully I will be ac...
1 Reply1 Like
Falling Platelets with Venetoclax
prbild6 months ago
I started Venetoclax in October when Ibrutinib became ineffective after three years with the white blood cell count rising and the platelets...
Side effects with Imbruvica
Gisygirl6 months ago
I have been on Imbruvica for 3 years now and it appears to be working as my lab numbers are all in the normal range now. Even my platelets w...
Venetoclax and spleen enlarging
Barbshow6 months ago
My husband is on an ibrutinib venetoclax combo trial. His spleen reduced after initial few months on ibrutinib but after 4 doses of Ven, it ...
11 Replies2 Likes
Stevediam7 months ago
My father started venetoclax 1 week ago. He is a 71y/o, 17p CLL patient. He must be an inpatient at UPENN for fear of TLS for each ramp ...
Good News from the Doctor Venetoclax is working!
ReneeSusan8 months ago
I started my Venetoclax journey September 7th. A few bumps on the way up from 20mgs. to 400 mgs. And a few more bumps at 400mgs with lots of...
18 Replies7 Likes
CAR-T for CLL
calibella8 months ago
Has anyone gone through CAR-T therapy for CLL? I am looking at a trial in the US. I'm on my 4th treatment and have all the stinky stuff: ...
Anyone Know of or had Quadrant Testing?
Spacee9 months ago
Hubby's has CLL. His sister stage 4 lung cancer which is now in all her bones. WDAnderson just recently did the Quandrant Testing which sho...
Venetoclax and Fatigue
ReneeSusan9 months ago
I finished my 5 week ramp up on Venetoclax and the biggest issue is fatigue. I went shopping today for about an hour and had to leave the ma...
TOMORROW- Free CLL Educational Event
tclementi9 months ago
Join over 300 CLL patients and caregivers to hear the latest in treatment and research from world-renowned experts, including: Dr. Michael K...
Live From Stanford Med X This Weekend!
Our founders, Esther & Andrew will be presenting this weekend at the prestigious Stanford Medicine X conference on “precision medicine” and ...
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Join us for CLL Town Meeting on September 23
Blue Ribbon CLL Panel broadcasting for patients from Portland, OR Saturday Sept 23rd. Please join me - Patient Power founder Andrew Schorr i...
Mythbusters Is Tomorrow!
tclementi10 months ago
Important free educational program tomorrow! There are hundreds of companies researching better treatments for cancer. Some are for YOUR can...
ChristineAM10 months ago
I got a notice from Texas Oncology saying they are willing to help displaced patients in Texas continue their treatment until they can get b...
1 week until Final Clinical Trial Mythbusters Webinar!
Is there medical research going on that is open to you and could be the key to feeling better? That’s what a clinical trial can be, but many...
esplanade10 months ago
Has anyone used homeopathy while on imbruvica? My oncologist's take on this was somewhat vague. Neither a yes nor a no, but leaning more t...
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