Chemo-Free Treatment Best Option for CLL Patients Under 70
GlennSabin13 days ago
There is good news in the advancement of chemo-free approaches to managing chronic lymphocytic leukemia, and I am thrilled to share it with ...
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CLL and life insurance
TimHB19 days ago
Does anyone know if it's possible to buy life insurance after a CLL diagnosis? Has anyone been able to do it? Thanks.
Trisomy 12 found in FISH test
venk_46a month ago
Dx cll in 2013 under watch and wait , mutated , 72 years,,male live in india.
Due to gradual fall in Hb and high ALC ( 95% invovement ) , ...
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Transformation of CLL into prolymphocytic leukaemia
my blood work says that my TLC is 227.9 with Atypical lymphoid cells at 30% , and 65% being prolymphocytes . The rest 5% are Neutrophils.
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Nice to meet you
siciliansoul2 months ago
I am new to this community and to CLL. I was recently diagnosed but have, apparently, had it for years. Despite this, I am early stage. N...
Cdiff and pancolitis during ibrutinib treatment
7907273 months ago
My husband started ibrutinib the end of July after about 3 weeks he started having issues with diarrhea which is one of the side effects so ...
BEN613 months ago
MRD results are in after 3 rounds of FCR. I am wondering if any other members of this group achieved MRD after partial treatment and what yo...
CattieAnne4 months ago
Hi has anyone had any experince with this drug?
CT / PET Scans
JeannineMarie5 months ago
This may be a dumb question but it is one I cannot locate an answer to.
How many scans in a year would be too many? If I do the CT scan sched...
Feeling anxious in the mornings
deveritt5 months ago
I just completed my needs report and discovered that other people also share this. It has been a theme in my life for many years before bein...
Not feeling very confident with the Dr that I have been referred to. Problem is where I live it is the only clinic. All the hematology drs a...
When to start treatment ?
venk_465 months ago
diagnosed CLL in Feb 2013 . Watch and wait , no treatment started, mutated ,no 17 p deletion
Enlarged lymph nodes in neck and stomache, Spl...
Corbins5 months ago
Had to stop for side effects after 9 months, serious joint/bone pain. !0 days later broke out in a serious case of hives. Dr put me on pred...
Ninagram5 months ago
Are patients with Cll more likely to be diagnosed with another cancer. Been on Ibrutinib and venetoclax for 4 months and doing very well. ...
nikolle7 months ago
Hello everyone!Hasvanyone heard of Gerson therapy?
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New York City CLL Support Group May 20 @ 3:00 pm - 6:00 pm
lankisterguy7 months ago
New York City CLL Support Group
May 20 @ 3:00 pm - 6:00 pm
This “Special Session with Dr. Richard Furman” will replace our regularly schedu...
Early stage and few symptoms
Stairbuilder7 months ago
I am posting this introductory note about myself, even though I have been a member of the community for over 3 months. I am early stage 0, ...
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Treatmant for cll
nikolle7 months agoPOPULAR
Hello!My name is Lidia.My husband has cll from 2012 and now his wbc is 140000 and the platelets are 101000.The doctor said that is time for ...
MartiP20098 months ago
Yesterday I saw my oncologist my blood work is out of wack I’ve been on Imbruvica for 4 yrs this month, he ordered a CT scan and researching...
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Hidden9 months ago
I am reading glenn sabin's book right now he is published his bone marrow biopsy results cancer was gone is that possible? So many people ea...
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I m in w&w how long you have been w&w who was the longest what is the reason for you, what do you think
Treatment for unmutated ighv
My husband is preparing to begin FCR treatment. His WBC is 200k, all other numbers below normal. Anyone experienced this treatment who has t...
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Lymphedema in right leg with CLL
Gisygirl10 months ago
Has anyone had the chronic leg swelling problem? I have been on Imbruvica 3 years but for the past year or so, my right leg is just bigger...
Beginning my clinical trial
Ninagrama year ago
I have been on watch and wait since 2008 and the last 6 months my wbc is increasing at each appointment. I have been accepted into a trial ...
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I’m unclear what to think of my diagnosis
Blondielocks65a year ago
I’m new here and not clear about the diagnosis given on my Flow Cytometry, which classified me with atypical CLL, Mantle Cell Lymphoma, and ...
10 Replies2 Likes
Imbruvica and Anxiety
Lana47a year ago
Does anyone take Imbruvica have anxiety issues? Does lowering the dosage help?
Need to talk & advice, WBC
grace2017a year ago
Hi I just wanted to read your posts they have helped me over the past year cope with my Dad having CLL. I feel for everyone that faces cance...
StasiaURosa year ago
I am on Imbruvica for 3 years 12 trisomy doing well but I read that some of you are resistent and need additional Biologics after 3 years wi...
I am waiting to be accepted into a clinical trial for my cll. just had a bone marrow biopsy and see my doctor Jan 16, hopefully I will be ac...
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Falling Platelets with Venetoclax
prbilda year ago
I started Venetoclax in October when Ibrutinib became ineffective after three years with the white blood cell count rising and the platelets...
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