Stevediama month ago
My father started venetoclax 1 week ago. He is a 71y/o, 17p CLL patient. He must be an inpatient at UPENN for fear of TLS for each ramp ...
Good News from the Doctor Venetoclax is working!
ReneeSusan2 months ago
I started my Venetoclax journey September 7th. A few bumps on the way up from 20mgs. to 400 mgs. And a few more bumps at 400mgs with lots of...
13 Replies6 Likes
CAR-T for CLL
calibella2 months ago
Has anyone gone through CAR-T therapy for CLL? I am looking at a trial in the US. I'm on my 4th treatment and have all the stinky stuff: ...
Anyone Know of or had Quadrant Testing?
Spacee2 months ago
Hubby's has CLL. His sister stage 4 lung cancer which is now in all her bones. WDAnderson just recently did the Quandrant Testing which sho...
1 Reply1 Like
Venetoclax and Fatigue
I finished my 5 week ramp up on Venetoclax and the biggest issue is fatigue. I went shopping today for about an hour and had to leave the ma...
TOMORROW- Free CLL Educational Event
tclementi3 months ago
Join over 300 CLL patients and caregivers to hear the latest in treatment and research from world-renowned experts, including: Dr. Michael K...
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Live From Stanford Med X This Weekend!
Our founders, Esther & Andrew will be presenting this weekend at the prestigious Stanford Medicine X conference on “precision medicine” and ...
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Join us for CLL Town Meeting on September 23
Blue Ribbon CLL Panel broadcasting for patients from Portland, OR Saturday Sept 23rd. Please join me - Patient Power founder Andrew Schorr i...
Mythbusters Is Tomorrow!
Important free educational program tomorrow! There are hundreds of companies researching better treatments for cancer. Some are for YOUR can...
ChristineAM3 months ago
I got a notice from Texas Oncology saying they are willing to help displaced patients in Texas continue their treatment until they can get b...
1 week until Final Clinical Trial Mythbusters Webinar!
Is there medical research going on that is open to you and could be the key to feeling better? That’s what a clinical trial can be, but many...
esplanade3 months ago
Has anyone used homeopathy while on imbruvica? My oncologist's take on this was somewhat vague. Neither a yes nor a no, but leaning more t...
Free CLL Event- join in-person or online!
Join CLL Global Research Foundation and Patient Power, in collaboration with The US Oncology Network, on Saturday, September 23 in Portland,...
Cd3134 months ago
It has officially been one year and five months since I was diagnosed with CLL. It has been mentally the most challenging year and I have h...
Pro lymphocytes 42% in blood report
venk_464 months ago
I am CLL patien and was Dxin feb 2013. Presently wait and watch
Recent blood report revealed the total WBC 1,73,000 and 52% lymphocytes ,...
fdshulman4 months ago
I was diagnosed with CLL, 15 months ago and am seeking A CLL support group in Brooklyn, N.Y. Any ideas? Fred
I'm 75 with cll. What can I do for my lack of energy and fatigue?
Questions now that I'm 3 wks into using ibrutinib
esplanade4 months ago
I'll be seeing my oncologist this week and will be asking her these questions. I'm curious to know what users of ibrutinib have to say a...
Corbins4 months ago
On Ibrutrinib 3 weeks now. No real side effects except serious fatigue and pretty consistent muscle and joint pain. What is one to take to...
Help us get to 1,000 Survey Responses
tclementi4 months ago
Please take a few minutes to participate in our Patient Power survey to let us know how we can do better for you. It really help us. If we c...
My Cll progression
Ninagram5 months ago
Hi have been on wait and watch since 1908 my WBC has increased and platelet count is dropping. Being evaluated for a clinical trial of ibru...
10 Replies1 Like
Thankful To Find Peers and Encouragement!
Chris7205 months ago
I am so happy to find a site for info and support for CLL. I was diagnosed one year ago and am also caregiver for my 59 yr. old, educabl...
2 Replies3 Likes
drop in ALC during wait and watch
venk_465 months ago
I was dx cll in feb 2013 and still under wait and watch. no bad markers in Flowcytometry( negative for CD38 and Zap70 ) IGVH mutated, WBC/...
Take Our 2017 Survey
tclementi5 months ago
Is Patient Power helping you? How can we do better? Share your views and your story in our latest survey. It really helps us help you!
CLL in Rochester NY
g00dr1ch6 months ago
Hi - looking to start CLL Support Group in Rochester NY - ping me if interested - thanks
5 Replies1 Like
Venetoclax/Ibrutinib trial needing surgery
Louie_CC6 months ago
Hi, I have been on Ibrutinib for 6 months and added Venetoclax 2 weeks ago. My WBC is in range and my Lymphocytes and Neutrophils are within...
Register now to attend our 2 webinars next week!
tclementi6 months ago
Next Wednesday: Are Clinical Trials a Gamble for Me or My Loved One?
Next Thursday: CLL Lab Tests: What Follow-...
ATTENTION CLL + SLL PATIENTS AND CAREGIVERS
LCAdmin6 months ago
Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for:
Ibrutinib and Medicare
ReneeSusan7 months ago
I'm from NJ and have relapsed SLL - unmutated - as far as I know I don't have any the mutations that make the disease really high risk. My...
"Living Well With CLL: Treatment & Research News" Replays Now Available!
tclementi7 months ago
Attention CLL community! The replays are now available from Saturday’s town meeting in Denver. Hear our expert panel’s perspectives includin...
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