Posts - CLL America Support | HealthUnlocked

CLL America Support

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CLL + Trisomy 8

Was diagnosed with CLL in 2018 at 45yrs old, started treatment in 2019 and just ...

Does W&W really need labs?

I've been on W&W for five years. I started off with just yearly visits, but now ...

Obinutuzumab and venetoclax in relapsed cll,

My father got diagnosed cll october 2009,was on wait and watch till mid 2014,the...
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I have CLL and PV , anyone has thw same condition?

Have CLL , on Ibrutinib 32 months, IGVH unmutated and TP53 mutation. Last week i...

Shingrix efficacy for CLL

Hi there I’m a UK CLL patient and have yet to see any published results on effic...

Prolonged reaction to COVID 19 vaccine?

I'm wondering if anyone else has experienced prolonged reactions to the Moderna ...

Long Island CLL Society Support Group

During this time of social distancing and virtual communication, the CLL Society...

B-PLL or DLBCL

Hi Everyone, My dad was on obinutuzumab/venetoclax combination first-line treatm...

CLL

March 7th I had the first Phizer vaccine and my platelets came down to 152 f...

stopping Ibrutinib for Covid vaccination

For those on Ibrutinib 1-What vaccine did you receive 2- Did your Dr mention pos...

CLL and Radon

I am new to the site and newly diagnosed with CLL. Just curious if anyone has s...

Soooo confused

Hi everyone! I don’t know what to think about all this... When I was first diagn...

*This community is not currently active*

As the banner says \"*This community is not currently active* Please join the ...

CLL and Cough

I was diagnosed w/CLL 2017. Active 70yr. old. Numbers are currently normal. H...

Imbruvica and weight training

Well, I wasn't expecting so soon but, I started treatment. My symptoms had reach...

CAR T Cell therapy for CLL/ R T

Hi, my husband has cll/RT and he is going to have car T cell next week, I would ...

Common cold

Can I take cold and flu tablets whilst taking ibrutinib?

Flying with CLL

Hi. I am 73 with CLL.( still watch and wait but nearing needing treatment) Is i...

CLL and Lewy Bodies Dementia

Cll and Lewy Bodies Dementia! I need help with these diseases. My husband has ha...

CLL 2nd treatment

What treatment follows Gazyva when CLL reemerges?

CLL Specialist in Miami?

I am moving from San Diego to Miami and I am looking for a specialist with the r...

Ibrutinib and LDH

Wondering if it is normal for LDH to bounce around. On ibrutinib for 6 months. ...

Volunteer Network Manager Wanted

The Patient Empowerment Network is seeking a passionate volunteer CLL network ma...

CT Scan After Treatment

Hello, wonder if anyone knows anything about this. Started ibrutinib 3 months ag...

Searching for patients using calquence

Will begin calquence in one more week after 24 months on imbruvica...heard that ...

Prostate

Treatment ended with positive results...now prostate is rapidly swelling such th...

Gum cleaning

I cancelled my appointment with a dentist for the 2nd time because of COVID-19, ...

Cll

I have cll disease since 2017 and I received treatment in 2018 and the disease c...

Fatigue and meds

I’m just curious how other people with debilitating fatigue are dealing with it....

Gazyva

In my 3rd mo after 6th infusion and all well except lymph nodes swelling under a...
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