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CLL America Support

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CLlL and thyroid concern

Has anyone been diagnosed with CLL and is showing a low T3 in thyroid testing? Ty in advance for help.

Has anyone been diagnosed with CLL and is showing a low T3 in thyroid testing? T...

Limelake

•4 days ago

2 Replies

CLL and weight loss

I have had CLL in w&w status for 18 months but with continued weight loss doctor started me on Calquence 6 weeks ago. No weight gain as yet. Does anyone have...

I have had CLL in w&w status for 18 months but with continued weight loss doctor...

Healthysearcher

•4 months ago

1 Reply

Mohs Skin Surgery

Have any CLL patients had Mohs surgery at MD Anderson? How was your experience? TIA

Have any CLL patients had Mohs surgery at MD Anderson? How was your experience? ...

ElmTree71

•6 months ago

7 Replies

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test results finally in

After waiting over a month my oncologist finally called to tell me I have the agressive form of this disease....CLL....he is looking for a clinical trial for...

After waiting over a month my oncologist finally called to tell me I have the ag...

DianeSH

•6 months ago

1 Reply

changes in markers and new treatment

I am a 76 yo woman. I was DX in 2016 and was in a trial at MD Anderson from 2017-2019. I achieved UMRD at the end of the trial of Ibrutinib and Venetoclax. I...

I am a 76 yo woman. I was DX in 2016 and was in a trial at MD Anderson from 2017...

pkpayne

•6 months ago

4 Replies

Act FAST: Leukemia and Lymphoma Society CLL Financial Assistance

This goes quickly. I applied and received award news in ten minutes....

Lily_Pad_Master

•7 months ago

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My dad has CLL with TP53 mutation

As i am writing this im very frightened And i need someone with similar condition My dad was diagnosed back in 2019 With CLL he did about 3 sessions...

As i am writing this im very frightened And i need someone with similar co...

Ornate2001

•7 months ago

1 Reply

Poikilocytosis

Does anyone know what if any implications Poikilocytosis has on CLL?

ZimmC

•8 months ago

1 Reply

Newbie- Del17p+Unmutated IGHV Diagnosis-Looking for Those Experienced w/Treatments

Hi, After almost 3 months of testing, starting with University of MN Fairview & then Mayo, it looks like they are finally narrowing in on a diagnosis. The...

Hi, After almost 3 months of testing, starting with University of MN Fairview &...

mrgreentea

•8 months ago

2 Replies

Imbalance Issues from CLL treatment?

Hello, I live in Minnesota and was diagnosed with CLL in Oct 2022 and my oncologist at the Masonic Cancer Center put me on the O and V treatment which started...

Hello, I live in Minnesota and was diagnosed with CLL in Oct 2022 and my oncolo...

tenniselbowz

•9 months ago

1 Reply

Cost of Treatment

I'm not currently in treatment, but anticipate I will be at some point down the road. I've been thinking about costs, insurance and asset protection and...

I'm not currently in treatment, but anticipate I will be at some point down the ...

Virabhadrasana

•1 year ago

1 Reply

Anybody going through hairy cell leukemia?

Canicatti01

•1 year ago

1 Reply

low immunoglobulins and knee replacement

I’m contemplating total knee replacement. My concern is that my immunoglobulins have sunk below normal range - but not low enough to start infusions. Has...

I’m contemplating total knee replacement. My concern is that my immunoglobulins ...

shazzy57

•1 year ago

1 Reply

list of CLL specialists

Is there a list of CLL specialist in the Philadelphia area.

farkmark

•1 year ago

2 Replies

alternative supplements

help for cll

Gildford

•1 year ago

1 Reply

No symptoms yet....

I was diagnosed with CLL in 2011. Recently I have had a dramatic increase in my white cell count, more than doubling within the past year to my current level...

I was diagnosed with CLL in 2011. Recently I have had a dramatic increase in my...

lednar

•1 year ago

3 Replies

Covid booster after positive status?

I had Covid about two months ago. I've read that one should wait six months before getting the latest booster. Does that apply to someone with CLL? Thanks...

I had Covid about two months ago. I've read that one should wait six months bef...

Ngtinfu

•1 year ago

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Cll and high crp level

Is there any relation between high serum crp(9.585mg/dl) and stage 0 cll

Nirups

•1 year ago

1 Reply

Grover’s disease

I have had CLL for about five years. I am currently on active surveillance and treatment naive. I had a spinal fusion on July 17 for L4-5 due to...

I have had CLL for about five years. I am currently on active surveillance and t...

BlueJk

•1 year ago

1 Reply

Unintentional weight loss?

Is unintentional weight loss common with CLL? My bf hasn’t had much of an appetite recently and he’s lost about 10 pounds without trying. He also gets this...

Is unintentional weight loss common with CLL? My bf hasn’t had much of an appeti...

karmacrepe

•1 year ago

5 Replies

?cll or chronic inflammation?

hi, my mom has had a persistent elevation of wbc, neutrophils and lymphocytes for the past 7 months, since diagnosed with diabetes. Asymptomatic and has...

hi, my mom has had a persistent elevation of wbc, neutrophils and lymphocytes fo...

Xerli

•2 years ago

1 Reply

Update on failing Calquence - Pirtobrutinib is Next

I spoke with my specialist from Upenn today and she wants to switch me to pirtobrutinib once it receives FDA approval for CLL in a few weeks. My questions...

I spoke with my specialist from Upenn today and she wants to switch me to pirtob...

ReneeSusan

•2 years ago

5 Replies

Suggestions needed in East Texas

I live in East Texas. I just turned 80 and have 3 adult kids and 7 grandkids (3 out of college) 1 in college, 3 in high school. I was diagnosed with CLL In...

I live in East Texas. I just turned 80 and have 3 adult kids and 7 grandkids (3...

512216

•2 years ago

4 Replies

Diagnosed with CLL at 40 (Oct 2022) - broken mess

Hello from the SF Bay area Father of 2 (6 and 3 years), Happily married - Recently diagnosed with CLL (Sept 2022) Mentally and emotionally a mess There a...

Hello from the SF Bay area Father of 2 (6 and 3 years), Happily married - Recen...

vman82

•2 years ago

4 Replies

CLL and CGD

I recently had a CT scan and the results say I have an inherited disease called Chronic granulomatous Disease (CGD) where white blood cell (phagocyte) that...

I recently had a CT scan and the results say I have an inherited disease called ...

MyCLLJourney

•2 years ago

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Insurance questions

I am currently in treatment for CLL with Gazyva and Venclexta. I just was looking at my explanation of benefits and it looks like my copay for the Venclexta...

I am currently in treatment for CLL with Gazyva and Venclexta. I just was lookin...

Gradyboy

•2 years ago

4 Replies

SF3B1 QUESTION

I just got some results from a comprehensive HEME panel. One of the items listed SF3B1 GENE at at a VAF of 40%. The only references I can find on this refer...

I just got some results from a comprehensive HEME panel. One of the items list...

73wcll

•2 years ago

2 Replies

After just one dose of Paxlovid, how long should I wait to resume ibrutinib?

I got a false positive Covid reading which prompted me to get the Paxlovid. I also went to get a PCR test just to be sure - it came back negative - as did...

I got a false positive Covid reading which prompted me to get the Paxlovid. I a...

Ngtinfu

•2 years ago

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90% infiltration with CLL cells

Has anyone got a similar result.. what best treatment did you opt for? It’s a desperate situation for us.. pls guide We Were on acalaibrutinib + Venitoclax +...

Has anyone got a similar result.. what best treatment did you opt for? It’s a de...

theoptimistduo

•2 years ago

2 Replies

Joining the Group

Hi, Folks. I am joining as a newly diagnosed SLL patient, currently under treatment with BTKi and Gazyva. So far, I have read through many posts and have...

Hi, Folks. I am joining as a newly diagnosed SLL patient, currently under treat...

tleachhsv

•2 years ago

2 Replies

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Posts - CLL America Support | HealthUnlocked

CLL America Support

CLlL and thyroid concern

CLL and weight loss

Mohs Skin Surgery

test results finally in

changes in markers and new treatment

Act FAST: Leukemia and Lymphoma Society CLL Financial Assistance

My dad has CLL with TP53 mutation

Poikilocytosis

Newbie- Del17p+Unmutated IGHV Diagnosis-Looking for Those Experienced w/Treatments

Imbalance Issues from CLL treatment?

Cost of Treatment

Anybody going through hairy cell leukemia?

low immunoglobulins and knee replacement

list of CLL specialists

alternative supplements

No symptoms yet....

Covid booster after positive status?

Cll and high crp level

Grover’s disease

Unintentional weight loss?

?cll or chronic inflammation?

Update on failing Calquence - Pirtobrutinib is Next

Suggestions needed in East Texas

Diagnosed with CLL at 40 (Oct 2022) - broken mess

CLL and CGD

Insurance questions

SF3B1 QUESTION

After just one dose of Paxlovid, how long should I wait to resume ibrutinib?

90% infiltration with CLL cells

Joining the Group

Search posts

Pinned Posts

Latest poll

Have you watched our ASH 2016 coverage?

Archive